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The Ethics Of Patient And Public Involvement Across The Research Process: Towards Partnership With People With Aphasia, Deborah Hersh, Mark Israel, Ciara Shiggins
The Ethics Of Patient And Public Involvement Across The Research Process: Towards Partnership With People With Aphasia, Deborah Hersh, Mark Israel, Ciara Shiggins
Research outputs 2014 to 2021
Background:
Conducting Patient and Public Involvement (PPI) in health research is a way of building knowledge that incorporates the experience of service users, adds research impact, and helps avoid wasting resources on findings that have little relevance to people or cannot be implemented. We argue that there is a need to extend ethical considerations currently focused on research participants with aphasia to encompass and guide expectations of involvement in partnerships with people with aphasia across the research lifecycle.
Method:
We use the 2018 revision of the Australian National Statement on Ethical Conduct in Human Research as the framework for this …