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Resource Restraints: Rethinking Disclosure Of Individual Genomic Findings, Michael Ulrich
Resource Restraints: Rethinking Disclosure Of Individual Genomic Findings, Michael Ulrich
Faculty Scholarship
While there has been a seemingly endless debate over whether individual results should be disclosed in genomic research, the role that resources should play in determining a researcher's duty has been left unanswered. This commentary fills this void by fully examining how resource limitations constrain a researcher's duty to disclose. This paper is the first to anchor an obligation in the duty to rescue alone, and as a result, the first to find not only an ethical floor of what must be returned, but also a ceiling of the amount of resources that may be utilized to fulfill this duty. …