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Brian S. Carter Oral History.
Pediatric Palliative Care Oral History Project
Dr. Brian Carter begins the interview describing his early career journey exploring the intersectionality of bioethics and neonatology. Dr. Carter viewed some of the early practices of intensivists to "resuscitate people until they die" as exceptionally "egregious," which prompted him to feel "an obligation. . . to make inroads [to neonatal and pediatric palliative care] via the route of ethics: making better choices, trying to discern [the] right action." Dr. Carter then describes the evolution of early practices in neonatology that were visibly distressing to babies, and how the work of him and his peers around children experiencing pain began …
Balfour Mount Oral History.
Pediatric Palliative Care Oral History Project
Dr. Balfour Mount begins the interview by describing a pivotal moment when he heard Dr. Elisabeth Kubler-Ross lecture at McGill University's Royal Victoria Hospital. Dr. Mount had not previously heard of Kubler-Ross's work and was impressed to learn about the unmet needs of the dying. When Dr. Mount conducted a similar study at the RVH, he found the same deficiencies in care and carried out a two year pilot project aimed at addressing these needs through the creation of an in-patient ward, a consultation service, a home care program, an outpatient clinic, and a bereavement follow-up service.
Kathleen Faulkner Oral History.
Kathleen Faulkner Oral History.
Pediatric Palliative Care Oral History Project
Dr. Faulkner begins the interview by describing her early career experiences and how those shaped her journey into pediatric palliative care. She attributes a lot the success of her early career to her "nurturing environment" of like-minded clinicians. She then describes some of her experiences being a part of an early practice to make death a more natural and less isolated experience for the patient and family. Dr. Faulkner then how she helped to evolve end of life care to become more inclusive for families, while also supporting improved communications between providers and family decision makers. Dr. Faulkner became involved …
Joan Marston Oral History.
Pediatric Palliative Care Oral History Project
Ms. Marston introduces her career beginnings as a response to the HIV/AIDS crisis in South Africa and describes some of the memorable experiences with youth she cared for. She explains her role in the initial implementation of pediatric palliative day care and home care as well as some of the challenges around growing provider, political, and community education in South Africa. Ms. Marston then talks about her international experiences meeting other in pioneers in the pediatric palliative care field. She touches on her work in developing hospice programs as well as some of the global challenges she's experienced while establishing …
Stephen Connor Oral History.
Pediatric Palliative Care Oral History Project
Dr. Stephen Connor begins by describing some of his early professional experiences and mentors who supported him as he developed his interest in death and dying. Dr. Connor explains that after several "epiphany moments" and observing some of the death and dying practices abroad, he and several other like-minded professionals said: "You know, really, we should just start a hospice." Dr. Connor then describes his early professional experiences of co-founding some of the earliest hospice programs in the United States, which drove his career from local hospice programming to national programming and finally into the international programming, research, publications, and …