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Mind The Gap: A White Paper On Maine's Missing Covid-19 Surveillance Data, How They Perpetuate Health Disparities Of Maine's Citizens With Disabilities, And What Can Be Done To Increase Maine's Public Health Data & Service Equity, Michelle Fong
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A white paper by Michelle Fong, a 2023 NH-ME Leadership Education in Neurodevelopmental and Related Disabilities (LEND) trainee and MPH student at the University of New England. Equitable health data represents all populations and can be linked to their common characteristics. Maine’s COVID-19 data can be disaggregated by gender, race, ethnicity, and age, but not by disability status or type. It is an example of inequity in data collection, or a data gap, that prevents analysis of pandemic health outcomes for Mainers with disabilities.