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2016

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Articles 1 - 30 of 148

Full-Text Articles in Medicine and Health

Mending Invisible Wounds: The Efficacy And Legality Of Mdma-Assisted Psychotherapy In United States' Veterans Suffering With Post-Traumatic Stress Disorder, Jonathan Perry Dec 2016

Mending Invisible Wounds: The Efficacy And Legality Of Mdma-Assisted Psychotherapy In United States' Veterans Suffering With Post-Traumatic Stress Disorder, Jonathan Perry

Journal of Law and Health

Though Veteran Affairs has provided crucial life sustaining—and often lifesaving—treatments to returning soldiers, the substantial and ever-increasing rates of veteran suicides, drug addictions, and criminal behavior indicate a need for broader options in treatment. One of the most profound discoveries uncovered through MDMA-assisted psychotherapy research is MDMA’s facilitation of the alleviation of addictive behavior in subjects, and, as a result, an alleviation of addictions in general. Addiction is one of the key symptoms of post-traumatic stress disorder (PTSD) and drug abuse plays a large role in the other afflictions suffered by veterans, namely criminal activity and a high rate of …


Self-Care Among Older Adults With Heart Failure, Sumayya Attaallah, Kay Klymko, Faith Pratt Hopp Dec 2016

Self-Care Among Older Adults With Heart Failure, Sumayya Attaallah, Kay Klymko, Faith Pratt Hopp

Social Work Faculty Publications

Background: It is estimated that 5.7 million Americans are living with heart failure (HF) today. Despite the fact that HF is one of the most common reasons people aged 65 years and older are admitted into the hospital, few studies describe the self-care in this older adult population. Purpose: The purpose of the study was to review the current literature on self-care in this population to better understand the influence of selected factors on self-care and health outcomes. Methods: A literature search was completed and resulted in including 28 studies. Results: Multiple factors have been reported as barriers to self-care …


Career Morph: Quantitizing Adversity In Academic Medicine, Carol Isaac, Rebecca Mcsorley, Alexandra Schultz Dec 2016

Career Morph: Quantitizing Adversity In Academic Medicine, Carol Isaac, Rebecca Mcsorley, Alexandra Schultz

The Qualitative Report

Many qualitative researchers reject textual conversion based on philosophical grounds although others believe it facilitates pattern recognition and meaning extraction. This article examined interview data from 52 physicians from a large academic medical center regarding work–life balance. Analysis ranked men and women in four career tracks: Clinician-Educator, Clinician-Researcher, Clinician-Practitioner, and residents. The purpose of this paper is to illustrate how a qualitatively driven (QUAL→quan) mixed method design illustrated differences between stratified groups. Although many initial codes were similar for men and women, their language was gendered and generational in context of work-life balance. Results indicated that women (and low-status men) …


The Emotional Arcs Of Stories Are Dominated By Six Basic Shapes, Andrew J. Reagan, Lewis Mitchell, Dilan Kiley, Christopher M. Danforth, Peter Sheridan Dodds Dec 2016

The Emotional Arcs Of Stories Are Dominated By Six Basic Shapes, Andrew J. Reagan, Lewis Mitchell, Dilan Kiley, Christopher M. Danforth, Peter Sheridan Dodds

College of Engineering and Mathematical Sciences Faculty Publications

Advances in computing power, natural language processing, and digitization of text now make it possible to study a culture’s evolution through its texts using a ‘big data’ lens. Our ability to communicate relies in part upon a shared emotional experience, with stories often following distinct emotional trajectories and forming patterns that are meaningful to us. Here, by classifying the emotional arcs for a filtered subset of 1,327 stories from Project Gutenberg’s fiction collection, we find a set of six core emotional arcs which form the essential building blocks of complex emotional trajectories. We strengthen our findings by separately applying matrix …


Staying Current In Your Field Of Interest: Tips For Aspiring Students As Researchers, Dor D. Abelman Dec 2016

Staying Current In Your Field Of Interest: Tips For Aspiring Students As Researchers, Dor D. Abelman

Health Studies Publications

Undergraduate students are becoming increasingly involved in research. They already posses the skills required to make meaningful contributions to their field of interest. Some important components of their success relates to a student's ability to stay up to date in the research of their field, and to learn practical skills pertaining to the publishing process. This article hopes to help with this through presenting easy-to-follow summary tables and short paragraphs on tips for success. Topics include staying up to date in a practical way, getting involved, reaching out for help, and publication. For students, by students, this report is relatable …


Worldwide Trends In Blood Pressure From 1975 To 2015: A Pooled Analysis Of 1479 Population-Based Measurement Studies With 19·1 Million Participants, Bin Zhou, James Bentham, Mariachiara Di Cesare, Honor Bixby, Goodarz Danaei, Melanie J. Cowan, Christopher J. Paciorek, Gitanjali Singh, Kaveh Hajifathalian, James E. Bennett, Cristina Taddei, Con Burns, Tara Coppinger, Ver Bilano, Rodrigo M. Carrillo-Larco, Shirin Djalalinia, Shahab Khatibzadeh, Charles Lugero, Niloofar Peykari, Wan Zhu Zhang, Yuan Lu, Gretchen A. Stevens, Leanne M. Riley, Pascal Bovet, Paul Elliott, Dongfeng Gu, Nayu Ikeda, Rod T. Jackson, Michel Joffres, Andre Pascal Kengne, Tiina Laatikainen, Tai Hing Lam, Avula Laxmaiah, Jing Liu Nov 2016

Worldwide Trends In Blood Pressure From 1975 To 2015: A Pooled Analysis Of 1479 Population-Based Measurement Studies With 19·1 Million Participants, Bin Zhou, James Bentham, Mariachiara Di Cesare, Honor Bixby, Goodarz Danaei, Melanie J. Cowan, Christopher J. Paciorek, Gitanjali Singh, Kaveh Hajifathalian, James E. Bennett, Cristina Taddei, Con Burns, Tara Coppinger, Ver Bilano, Rodrigo M. Carrillo-Larco, Shirin Djalalinia, Shahab Khatibzadeh, Charles Lugero, Niloofar Peykari, Wan Zhu Zhang, Yuan Lu, Gretchen A. Stevens, Leanne M. Riley, Pascal Bovet, Paul Elliott, Dongfeng Gu, Nayu Ikeda, Rod T. Jackson, Michel Joffres, Andre Pascal Kengne, Tiina Laatikainen, Tai Hing Lam, Avula Laxmaiah, Jing Liu

Publications

Background Raised blood pressure is an important risk factor for cardiovascular diseases and chronic kidney disease. We estimated worldwide trends in mean systolic and mean diastolic blood pressure, and the prevalence of, and number of people with, raised blood pressure, defined as systolic blood pressure of 140 mm Hg or higher or diastolic blood pressure of 90 mm Hg or higher. Methods For this analysis, we pooled national, subnational, or community population-based studies that had measured blood pressure in adults aged 18 years and older. We used a Bayesian hierarchical model to estimate trends from 1975 to 2015 in mean …


Distributing Condoms And "Hope": Race, Sex, And Science In Youth Sexual Health Promotion, Chris A. Barcelos Nov 2016

Distributing Condoms And "Hope": Race, Sex, And Science In Youth Sexual Health Promotion, Chris A. Barcelos

Doctoral Dissertations

This project uses discursive, visual, and ethnographic approaches situated in a critical feminist methodology to understand how ways of knowing about youth sexuality and reproduction influence community health work. I understand the “problem” in this inquiry as the discursive contexts that limit critical ways of knowing about young people’s sexual subjectivities and practices and about the design of policies and programs. Although race, class, gender, and sexuality are understood in the public health literature as important social determinants of health, there is a lack of research that applies a critical, feminist lens to these constructs. I draw on three years …


Transnational Engagement And Immigrants’ Well-Being In Canada, Jonathan Anim Amoyaw Nov 2016

Transnational Engagement And Immigrants’ Well-Being In Canada, Jonathan Anim Amoyaw

Electronic Thesis and Dissertation Repository

After migration, most immigrants do not dissociate themselves from their relational networks in their homeland. Instead, they nourish, reproduce, and maintain ties with their non-migrant relatives and friends by engaging in various forms of transnational activities. Within the transnational paradigm, remittances are central to maintaining transnational relationships. Immigrants’ demonstration of affection and solidarity in the absence of physical propinquity and intimacy is highly contingent on their remittance transfers. Over the years, the motives, determinants, benefits, and consequences of these financial flows on the well-being of recipients in origin communities have been extensively studied. However, the existing literature is mainly informed …


The Professionalization Of Male Circumcision In Turkey, Oyman Basaran Nov 2016

The Professionalization Of Male Circumcision In Turkey, Oyman Basaran

Doctoral Dissertations

Male circumcision is seen as a cultural and religious event and a rite of passage for boys in Turkey. It is surrounded by public rituals and as there is no equivalent rite of passage for girl children, circumcision signifies a crucial marker of not only religious but also gender differentiation between boys and girls. Circumcision is a men’s affair and performing circumcision bestows economic privilege and social status on circumcisers (sünnetçi). In this dissertation, I trace the practical and discursive changes in the experience of male circumcision from the perspectives of practitioners. I argue that while circumcision was always a …


Young Adult Perspectives On The Selection Of Pharmaceuticals For Mental Health Treatment, Alaina N. Talboy, Angela M. Aylward, Daniel Lende, Rodney P. Guttmann Nov 2016

Young Adult Perspectives On The Selection Of Pharmaceuticals For Mental Health Treatment, Alaina N. Talboy, Angela M. Aylward, Daniel Lende, Rodney P. Guttmann

Patient Experience Journal

Shared decision making places an emphasis on patient understanding and engagement. However, when it comes to treatment selection, research tends to focus on how doctors select pharmaceutical treatments. The current study is a qualitative assessment of how patients choose among three common treatments that have varying degrees of scientific support and side effects. We used qualitative data from 157 undergraduates (44 males, 113 females; mean age = 21.89 years) that was collected as part of a larger correlational study of depression and critical thinking skills. Qualitative analysis revealed three major themes: shared versus independent decision making, confidence in the research …


Fish, Christine Stark Nov 2016

Fish, Christine Stark

Dignity: A Journal of Analysis of Exploitation and Violence

No abstract provided.


The Health Care Expenditure And Income: A Global Perspective, Badi H. Baltagi, Raffaele Lagravinese, Francesco Moscone, Elisa Tosetti Nov 2016

The Health Care Expenditure And Income: A Global Perspective, Badi H. Baltagi, Raffaele Lagravinese, Francesco Moscone, Elisa Tosetti

Center for Policy Research

This paper investigates the long-run economic relationship between health care expenditure and income in the world using data on 167 countries over the period 1995-2012, collected from the World Bank data set. The analysis is carried using panel data methods that allow one to account for unobserved heterogeneity, temporal persistence, and cross-section dependence in the form of either a common factor model or a spatial process. We estimate a global measure of income elasticity using all countries in the sample, and for sub-groups of countries, depending on their geo-political area and income. Our findings suggest that at the global level, …


Results From Ireland North And South's 2016 Report Card On Physical Activity For Children And Youth, Deirdre M. Harrington, Marie Murphy, Angela Carlin, Tara Coppinger, Alan Donnelly, Kieran P. Dowd, Teresa Keating, Niamh Murphy, Elaine Murtagh, Wesley O'Brien, Catherine Woods, Sarahjane Belton Nov 2016

Results From Ireland North And South's 2016 Report Card On Physical Activity For Children And Youth, Deirdre M. Harrington, Marie Murphy, Angela Carlin, Tara Coppinger, Alan Donnelly, Kieran P. Dowd, Teresa Keating, Niamh Murphy, Elaine Murtagh, Wesley O'Brien, Catherine Woods, Sarahjane Belton

Publications

Background: Physical activity (PA) is a key performance indicator for policy documents in both the Republic of Ireland and Northern Ireland. Building on baseline grades set in 2014, Ireland's second Report Card on Physical Activity for Children and Youth allows for continued surveillance of indicators related to PA in children and youth. Methods: Data and information were extracted and collated for 10 indicators and graded using an international standardized grading system. Results: Overall, 7 grades stayed the same, 2 increased, and 1 decreased. Grades were assigned as follows: Overall PA, D (an increase); Sedentary Behavior (TV), C-; Physical Education, D-; …


Validating A Measure Of Beliefs In Health Prevention Screenings Among Old Adults In China, H. Xu, Paulin Tay Straughan, W. Pan, Z. Zhen, B. Wu Nov 2016

Validating A Measure Of Beliefs In Health Prevention Screenings Among Old Adults In China, H. Xu, Paulin Tay Straughan, W. Pan, Z. Zhen, B. Wu

Research Collection School of Social Sciences

We aimed to examine the psychometric properties of a modified 16-item Attitudinal Index (AI), a measure of health beliefs in health prevention screenings among Chinese older adults. We used the 2013 Shanghai Longitudinal Survey of Elderly Life and Opinion data including 3418 respondents aged 60 and above. We examined the validity and reliability of the modified AI. Psychometric evaluation of the modified AI revealed good response patterns. The overall scale had good reliability (Cronbach’s alpha = 0.835) with four distinct dimensions: barriers, fatalism, unnecessary, and detects (Cronbach’s alpha = 0.815 to 0.908). Confirmatory factor analysis of the modified AI’s factor …


Chemical Reactions: Marijuana, Opioids, And Our Families, Denise A. Hines Ph.D, Staci Gruber Ph.D, John F. Kelly Ph.D, Kathleen M. Palm Reed, Hilary Smith Connery M.D., Ph.D. Oct 2016

Chemical Reactions: Marijuana, Opioids, And Our Families, Denise A. Hines Ph.D, Staci Gruber Ph.D, John F. Kelly Ph.D, Kathleen M. Palm Reed, Hilary Smith Connery M.D., Ph.D.

Mosakowski Institute for Public Enterprise

Chemical Reactions: Marijuana, Opioids, and Our Families is the seventh Massachusetts Family Impact Seminar. This seminar was designed to emphasize a family perspective in policymaking on issues related to the legalization of marijuana and managing the opioid abuse crisis in the Commonwealth. In general, Family Impact Seminars analyze the consequences an issue, policy, or program may have for families.


Involvement In The Juvenile Justice System For African American Adolescents: Examining Associations With Behavioral Health Problems, Dexter R. Voisin Oct 2016

Involvement In The Juvenile Justice System For African American Adolescents: Examining Associations With Behavioral Health Problems, Dexter R. Voisin

Faculty Scholarship

While researchers have found that African American youth experience higher levels of juvenile justice involvement at every system level (arrest, sentencing, and incarceration) relative to their other ethnic counterparts, few studies have explored how juvenile justice involvement and number of contacts might be correlated with this broad range of problems. A convenience sample of 638 African American adolescents living in predominantly low-income, urban communities participated in a survey related to juvenile justice involvement. Major findings using logistic regression models indicated that adolescents who reported juvenile justice system involvement versus no involvement were 2.3 times as likely to report mental health …


Disaggregating The Evidence Linking Biodiversity And Ecosystem Services, Taylor H. Ricketts, Keri B. Watson, Insu Koh, Alicia M. Ellis, Charles C. Nicholson, Stephen Posner, Leif L. Richardson, Laura J. Sonter Oct 2016

Disaggregating The Evidence Linking Biodiversity And Ecosystem Services, Taylor H. Ricketts, Keri B. Watson, Insu Koh, Alicia M. Ellis, Charles C. Nicholson, Stephen Posner, Leif L. Richardson, Laura J. Sonter

Rubenstein School of Environment and Natural Resources Faculty Publications

Ecosystem services (ES) are an increasingly popular policy framework for connecting biodiversity with human well-being. These efforts typically assume that biodiversity and ES covary, but the relationship between them remains remarkably unclear. Here we analyse >500 recent papers and show that reported relationships differ among ES, methods of measuring biodiversity and ES, and three different approaches to linking them (spatial correlations, management comparisons and functional experiments). For spatial correlations, biodiversity relates more strongly to measures of ES supply than to resulting human benefits. For management comparisons, biodiversity of â € service providers' predicts ES more often than biodiversity of functionally …


Actually, Let’S Not Talk About Sex: The Value-Laden Sex Education Received By China’S Young Women, Allyson Tsu Oct 2016

Actually, Let’S Not Talk About Sex: The Value-Laden Sex Education Received By China’S Young Women, Allyson Tsu

Independent Study Project (ISP) Collection

No abstract provided.


The Costs Of Cancer, Jamie Mosely Oct 2016

The Costs Of Cancer, Jamie Mosely

Honors Papers and Posters

This poster explores the relationship between more advanced cancer-fighting technologies and the increase in healthcare costs over the last several decades, and the socioeconomic impact this has for patients with less disposable income or no health insurance.


Developing Nations And Disadvantaged Populations: How The 2009 H1n1 Influenza Pandemic Exacerbated Disparities And Inequities, Rebecca Lebeaux Oct 2016

Developing Nations And Disadvantaged Populations: How The 2009 H1n1 Influenza Pandemic Exacerbated Disparities And Inequities, Rebecca Lebeaux

Independent Study Project (ISP) Collection

The 2009 H1N1 influenza pandemic, although not as deadly or long lasting as initially projected, demonstrated that the world was and is ill prepared to handle a mass pandemic. As the first pandemic of the twenty-first century, the pandemic revealed global health insecurities and asymmetrical disease burdens for disadvantaged individuals and countries. This paper will analyze why both developing countries and disadvantaged individuals suffered disproportionately from the pandemic. Using the framework of structural violence, this paper will investigate how socioeconomic and political disparities encountered before and during the pandemic caused differential health, societal, political, and economic outcomes. These preexisting disparities …


Estigma Y Discriminación Hacia Hombres Que Tienen Sexo Con Otros Hombres (Hsh) Y Mujeres Trans: El Impacto En La Vulnerabilidad Y Riesgo Frente Al Vih/Sida / Stigma And Discrimination Against Men Who Have Sex With Men (Msm) And Transgender Women: The Impact On Vulnerability And Risk Of Hiv / Aids, Alessandra Scher Oct 2016

Estigma Y Discriminación Hacia Hombres Que Tienen Sexo Con Otros Hombres (Hsh) Y Mujeres Trans: El Impacto En La Vulnerabilidad Y Riesgo Frente Al Vih/Sida / Stigma And Discrimination Against Men Who Have Sex With Men (Msm) And Transgender Women: The Impact On Vulnerability And Risk Of Hiv / Aids, Alessandra Scher

Independent Study Project (ISP) Collection

Research Question – How does stigma and discrimination toward men who have sex with men (MSM) and transgender women affect their vulnerability toward HIV/AIDS?

Background – Although there has been progress over the years on improving attitudes towards, and knowledge about, sexual diversity, LGBT persons continue to be harshly discriminated against and stigmatized. The conservative and machista nature of Chilean society, as well as a lack of information about sexual diversity, perpetuates this treatment and marginalization of those who do not conform to the social expectations surrounding sexual relations and strict gender norms, specifically homosexual men and other MSM, as …


Pathways To Positive Change: A People's Perspective Of Healthcare In Humla, Wensday Meyers Berman Oct 2016

Pathways To Positive Change: A People's Perspective Of Healthcare In Humla, Wensday Meyers Berman

Independent Study Project (ISP) Collection

The villagers of Humla have suffered from unreliable health services and unjust indifference from the Nepali government for too long. Many global health initiatives and international NGOs have tried and failed to step in and make an improvement of health within these villages, because they are lacking an understanding of how these villages are run, what villagers prioritize, and how to continue providing reliable, supervised support. Because of the remoteness of the Humla area, it is difficult for allopathic medicine to be sufficiently provided here, and access to emergency medical resources are limited. Global health organizations such as WHO and …


Powerful Words: An Exploration Of Linguistic Hierarchy In Moroccan Hospitals, Ellelan Degife Oct 2016

Powerful Words: An Exploration Of Linguistic Hierarchy In Moroccan Hospitals, Ellelan Degife

Independent Study Project (ISP) Collection

Morocco is a country of distinct diversity, which exists as a result of the settling of multiple peoples and European colonization. As a result of this diversity, many languages are employed in different settings and spaces, and of these languages, French represents remnants of colonialism and continual elitism in the country. One of the spheres that French commands in Moroccan society is medicine, which creates a dichotomy between the educated health care providers and the underprivileged patients in public hospitals. The aim of this paper is to explore the effect of French on the doctor-patient relationship in urban, public Moroccan …


Continuing Efforts To Alleviate "Orange Pain" An Internship With The Da Nang Association Of Victims Of Agent Orange/Dioxin, Loan Heilner Oct 2016

Continuing Efforts To Alleviate "Orange Pain" An Internship With The Da Nang Association Of Victims Of Agent Orange/Dioxin, Loan Heilner

Independent Study Project (ISP) Collection

This year marked the 55th anniversary of Vietnam’s Agent Orange Disaster. Decades after the end of the war, Vietnamese people are still largely being affected by the remnants of the United States’ Agent Orange herbicide sprays. Dioxin chemical has now been confirmed detrimental to human and environmental well-being, but unfortunately it still remains in high concentrations in certain areas of Vietnam. Dioxin chemical is passed on through genetics to new generations, but one of the leading causes of dioxin-related health defects today are due to environmental residue. In Da Nang, Agent Orange was stored and loaded at the local airbase …


The Importance Of Nature: An Investigation On How Geography Influences Well-Being, Christina Cobb Oct 2016

The Importance Of Nature: An Investigation On How Geography Influences Well-Being, Christina Cobb

Independent Study Project (ISP) Collection

The objective of this community service project (CSP) was to study how a community’s location, specifically within nature, influences their well-being. I hoped to see how the community’s location, within Chapada Diamantina national park, influences the many ways health is promoted, and how these ways are affected by their location within nature. This project was built upon a review of the literature, which found that there is a theoretical basis for the notion that contact with nature is beneficial, a term deemed Biophilia. There is a robust body of academic research that highlights the health benefits deriving from contact …


Consecuencias De La Dictadura: La Salud Mental Transgeneracional En Hijos De Detenidos Desaparecidos / Consequences Of The Dictatorship: Transgenerational Mental Health In Children Of Disappeared Detainees, Catherine Sillari Oct 2016

Consecuencias De La Dictadura: La Salud Mental Transgeneracional En Hijos De Detenidos Desaparecidos / Consequences Of The Dictatorship: Transgenerational Mental Health In Children Of Disappeared Detainees, Catherine Sillari

Independent Study Project (ISP) Collection

Research Question: What are the trends seen in the mental health of the children of the people who were “disappeared” by the Pinochet dictatorship?

Objectives: The general objective of this study is to look for trends in the mental health of children of disappeared people. The specific objectives are to understand the particular stresses that come with disappearances versus other types of deaths, to gage the general opinion of the government’s system of reparation, and to identify common coping methods.

Background: Between the years of 1973-1990, Chile was under the military dictatorship of Augusto Pinochet. During this time, major …


New Measures To Capture End Of Life Concerns In Huntington Disease: Meaning And Purpose And Concern With Death And Dying From Hdqlife (A Patient-Reported Outcomes Measurement System)., N E Carlozzi, N R Downing, M K Mccormack, S G Schilling, J S Perlmutter, E A Hahn, J S Lai, S Frank, K A Quaid, J S Paulsen, D Cella, S M Goodnight, J A Miner, M A Nance Oct 2016

New Measures To Capture End Of Life Concerns In Huntington Disease: Meaning And Purpose And Concern With Death And Dying From Hdqlife (A Patient-Reported Outcomes Measurement System)., N E Carlozzi, N R Downing, M K Mccormack, S G Schilling, J S Perlmutter, E A Hahn, J S Lai, S Frank, K A Quaid, J S Paulsen, D Cella, S M Goodnight, J A Miner, M A Nance

Rowan-Virtua School of Osteopathic Medicine Faculty Scholarship

PURPOSE: Huntington disease (HD) is an incurable terminal disease. Thus, end of life (EOL) concerns are common in these individuals. A quantitative measure of EOL concerns in HD would enable a better understanding of how these concerns impact health-related quality of life. Therefore, we developed new measures of EOL for use in HD.

METHODS: An EOL item pool of 45 items was field tested in 507 individuals with prodromal or manifest HD. Exploratory and confirmatory factor analyses (EFA and CFA, respectively) were conducted to establish unidimensional item pools. Item response theory (IRT) and differential item functioning analyses were applied to …


Hdqlife: Development And Assessment Of Health-Related Quality Of Life In Huntington Disease (Hd), N E Carlozzi, S G Schilling, J-S Lai, J S Paulsen, E A Hahn, J S Perlmutter, C A Ross, N R Downing, A L Kratz, M K Mccormack, M A Nance, K A Quaid, J C Stout, R C Gershon, R E Ready, J A Miner, S K Barton, S L Perlman, S M Rao, S Frank, I Shoulson, H Marin, M D Geschwind, P Dayalu, S M Goodnight, D Cella Oct 2016

Hdqlife: Development And Assessment Of Health-Related Quality Of Life In Huntington Disease (Hd), N E Carlozzi, S G Schilling, J-S Lai, J S Paulsen, E A Hahn, J S Perlmutter, C A Ross, N R Downing, A L Kratz, M K Mccormack, M A Nance, K A Quaid, J C Stout, R C Gershon, R E Ready, J A Miner, S K Barton, S L Perlman, S M Rao, S Frank, I Shoulson, H Marin, M D Geschwind, P Dayalu, S M Goodnight, D Cella

Rowan-Virtua School of Osteopathic Medicine Faculty Scholarship

PURPOSE: Huntington disease (HD) is a chronic, debilitating genetic disease that affects physical, emotional, cognitive, and social health. Existing patient-reported outcomes (PROs) of health-related quality of life (HRQOL) used in HD are neither comprehensive, nor do they adequately account for clinically meaningful changes in function. While new PROs examining HRQOL (i.e., Neuro-QoL-Quality of Life in Neurological Disorders and PROMIS-Patient-Reported Outcomes Measurement Information System) offer solutions to many of these shortcomings, they do not include HD-specific content, nor have they been validated in HD. HDQLIFE addresses this by validating 12 PROMIS/Neuro-QoL domains in individuals with HD and by using established PROMIS …


You Poor Thing: A Retrospective Autoethnography Of Visible Chronic Illness As A Symbolic Vanishing Act, Alexandra Ch Nowakowski Sep 2016

You Poor Thing: A Retrospective Autoethnography Of Visible Chronic Illness As A Symbolic Vanishing Act, Alexandra Ch Nowakowski

The Qualitative Report

In this autoethnography, I outline a framework for understanding illness as deviance, contextualizing general sociological theory on sick role dynamics to the specific case of chronic conditions that manifest with visible physical differences. I demonstrate two distinct ways in which chronic conditions can foster labeling and stigma. First, I explore how social norms can result in sanctions for showing physical evidence of chronic conditions. I describe sanctions I have experienced for violating conventional ideas about youth and female beauty, and associated behavioral expectations. Second, I explore how double jeopardy can result from failing to meet usual social expectations for sickness. …


Young People’S Perceptions Of Advice About Sexual Risk Taking, Christopher Donoghue, Consuelo Bonillas, Jennifer Moreno, Melissa Cheung Sep 2016

Young People’S Perceptions Of Advice About Sexual Risk Taking, Christopher Donoghue, Consuelo Bonillas, Jennifer Moreno, Melissa Cheung

Department of Sociology Faculty Scholarship and Creative Works

Sexual and reproductive health indicators for young people in the USA have improved in recent decades, but teenage pregnancies remain high, and large differences between Whites and non-Whites persist in teenage births, abortions, and the acquisition of sexually transmitted infections. Prior research shows that young people are receptive to communication about sex from parents and friends, but peers have been found to be more influential on sexual risk taking. In this study of 617 young people aged 13–20 years in high-risk neighbourhoods for teenage pregnancy in New Jersey, we asked whether sexually inexperienced young people differed from sexually experienced young …