Social Work Commons^™

An Exploration Of Service Needs And Preferences Of Dementia Caregivers In Kentucky, Heehyul Moon, Sunshine Rote, Allison Kacmar, Amy Kostelic, Bari Lewis

The Journal of Extension

As Americans live longer, the prevalence of Alzheimer’s disease and related dementias will increase. Caregivers are critical to the care and life quality of people with dementia. Yet, dementia caregivers are at increased risk for health issues, social isolation, and financial challenges. To help educators with the University of Kentucky Cooperative Extension Service work with their local Alzheimer’s Association and the University of Louisville to better support dementia families, we explored caregiver needs and service utilization using an online survey. Our findings highlighted the need for counseling/support, care management skills, resource education, self-care strategies, and legal services. Extension Service Educators …

Most Home-Delivered Meal Recipients With Dementia Receive Support From Friends And Family, But More Social Activity Is Needed, Claire Pendergrast

Population Health Research Brief Series

Home-delivered meal programs reduce hunger and food insecurity, promote socialization, and improve health and wellbeing for older adults. Regular social support from home-delivered meal drivers, alongside social support from friends and family, may be key to preventing isolation and improving health for older adults with dementia. This research brief shows that home-delivered meal recipients with dementia receive significant support from friends and family, but 83% would like more social activity. To better support older adults with dementia and family caregivers, aging services providers should expand virtual and dementia-friendly social engagement programming.

Social Support Of Caregiver Sons Of Parents With Dementia, Ralph Callanta Pascual

Walden Dissertations and Doctoral Studies

Despite the growing number of male caregivers, few researchers have examined social supports for caregiver sons of parents with dementia. The purpose of this qualitative interpretative phenomenological study was to contribute to the empirical literature on the social support of caregiver sons of aging parents with dementia. The research question centered on the lived experience of social support of caregiver sons of parents with dementia. The theoretical framework was the social role theory. The sample consisted of eight caregiver sons of parents with dementia. Participants were interviewed using semi-structured, researcher-developed questions. The results were generated from coding and thematizing processes, …

Defying Dementia: An Exploration Of Recovery, Deb Miller, Corey W. Johnson

The Qualitative Report

Exploring the human side of dementia helps put a face on this fast-growing affliction. This study reflects one elderly woman’s story of recovery from dementia that arose following a stroke. Painting a portrait of life with dementia can help us conceptualize the experience, how people live and how they would like to live. The woman is Marcia, my mom, and this is a qualitative inquiry with a collaborative narrative design to explore her experiences and to document my own. This study may help dementia patients and their support teams better understand the process of living with dementia and can perhaps …

Risk And Protective Factors Of Dementia Among Adults With Post-Traumatic Stress Disorder: A Systematic Review Protocol, Karen A. Lawrence, Theresia M. Pachner, Molly M. Long, Stephanie Henderson, Donna L. Schuman, Brenda L. Plassman

Social Work Faculty Publications

INTRODUCTION: Post-traumatic stress disorder (PTSD) is associated with an increased risk of dementia. Individual epidemiological studies have controlled for several confounders of the relationship between PTSD and increased dementia risk, yet particular risk factors underlying this relationship have not been determined. This systematic review protocol aims to identify risk and protective factors of dementia among adults with PTSD.

METHODS AND ANALYSIS: We will conduct an electronic search of the databases: PubMed, CINAHL, PsychINFO, The Cochrane Library, Scopus and ProQuest Dissertation and Theses Global. After screening the studies, quantitative synthesis will be performed, if possible. Otherwise, a narrative synthesis will be …

Creating A Paradigm Shift: Culture Change Around Dementia, Ahna H. Soli

2019 Symposium

A Culture Change Presentation about Creating Dementia Friendly Communities that support residents who are affected by Dementia remaining integrated in their community through supports and community trainings. According to the Dementia Action Collaborative of Washington State, over 100,000 people live with Dementia’s or Alzheimer’s in Washington with that number continuing to grow. Our society and culture is not equipped with the tools to help them lead productive, purposeful lives. Currently, the population affected by Dementia is placed in institutional care communities where they are considered safe and well taken care of. Using the behavior strategies and culture change tools presented …

Vietnamese Family Caregivers’ Adjustment Process To Their Caregiving Roles For Family Members With Dementia, Trang Nguyen

Theses and Dissertations

This study explores the psychological process that Vietnamese family members go through to adjust to the caregiving role for their relatives with dementia. Adopting constructivist grounded theory, 30 face-to-face, semi-structured interviews, including 10 follow-up interviews, were conducted with 20 Vietnamese primary family caregivers of relatives with dementia from the National Geriatric Hospital in Vietnam. The study results reveal that Vietnamese family caregivers held limited understanding of dementia. They used a mixed explanatory model, combining both folk (e.g., dementia as normal aging) and biomedical approaches (e.g., dementia as a brain-related disease) to explain causes of dementia. Family cohesion and responsibility are …

Non-Pharmacological Interventions In Residents With Behavioral And Psychological Symptoms Of Dementia, Kelli Ray

Master of Social Work Clinical Research Papers

Changes in behavior are common in dementia and can be challenging to address. The purpose of this pilot study was to look at how effective non-pharmacological interventions are in decreasing associated behaviors among residents in a skilled nursing facility. Pharmacological interventions have been the primary method to decreasing these behaviors; however, these interventions may lead to faster disease progression. There is an increased awareness of the potential uses of non-pharmacological treatment for residents with dementia; however, there are challenges that go along with this approach. A set of interview questions was asked to four staff members of a nursing home …

The Effects Of Animal-Assisted Therapy In Older Adults With Dementia, Alison Waid Higgins

Master of Social Work Clinical Research Papers

No abstract provided.

Exploring Non-Pharmacological Interventions For Behavioral Symptoms Of Dementia: A Social Work Perspective, Ashley Schoonover

Master of Social Work Clinical Research Papers

Dementia is a progressive neurological brain disease that affects the quality of life of those diagnosed (Goldberg, 2017; Tjia et al., 2017). The diagnosis of dementia affects the patient and the caregiver in different ways: those diagnosed with dementia may have difficulty in thinking, memory and physical or psychological skills. Those diagnosed with dementia may experience behavior and psychological symptoms of dementia (BPSD). Behavioral symptoms can be heterogeneous and unpredictable, which can be difficult for caregivers to manage (Cerejeira et al., 2012). Social workers are able to connect families with in-home services and institutional care services if requested by the …

Dreamweaver Foundation Impact Study: Fulfilling Lifelong Dreams For Terminally Ill Seniors In Need, Pamela Ashley, Natalie Scarpa

Reports

Dreamweaver Foundation describes their work as “...fulfill(ing) lifelong dreams for terminally ill seniors in need.” This impact study was designed to provide evidence of how the Foundation is making a difference in the lives of the dreamers and their families. This study applied a systematic and objective approach to understanding the impact of the Dreamweaver Foundation by conducting and analyzing interviews with a representative group of dreamers and their families. The richness of their experiences was captured through these interviews and analyzed to identify themes of impact. In order to provide a solid foundation for the interview process, the study …

African American Women Caring For Loved Ones With Alzheimer's Disease And Dementia, Lisa M. Forbes

Walden Dissertations and Doctoral Studies

Abstract

In 2016, a dramatic shift occurred in demographics in the United States because the oldest people in the baby boomer generation, which consists of people born between 1946 and 1964, reached age 65. The larger aging population and longer lifespans have produced an increased need for care and services. There are an estimated 5.4 million Americans of varying ages living with a diagnosis of dementia or Alzheimer's disease. Diagnoses of Alzheimer's disease are more prevalent among African Americans than other ethnicities. With little research found on culturally appropriate interventions for specific ethnic groups, a more detailed review of the …

An Exploration Of Dementia Friendly Communities From The Perspective Of Persons Living With Dementia, Catherine Hebert

Electronic Theses and Dissertations

The growing global prevalence of dementia coupled with a shift in public perception from a hopeless disease to the possibility of living well with dementia has led to the formation of dementia friendly communities (DFC). DFCs are a new phenomenon in the United States, with a gap in knowledge on input from people living with dementia (PLWD). This study investigated DFCs from the perspective of PLWD in Western North Carolina, with the following research questions:

1. How are interactions and relationships experienced by persons living with dementia in the community?
2. How is community engagement experienced by PLWD?
3. To what extent and …

Transitional Care For Older Adults With Dementia: Variation Across Patients And Providers, Patricia Prusaczyk

Arts & Sciences Electronic Theses and Dissertations

Older adults with dementia are particularly vulnerable to negative outcomes and adverse events when they transition between healthcare settings such as being discharged from the hospital. However, little is known about how healthcare providers help patients prepare for a care transition – known as transitional care – among older adults with dementia. Therefore, this study sought to understand the transitional care currently delivered by hospital healthcare providers to older adults with dementia, how it compared to that received by older adults without dementia, and how it varied across different patient and provider characteristics. Guided by key provider/informant interviews and theory, …

Identifying And Mitigating Caregiver Burnout: The Role Of Adult Day Social Workers, Annika Grafstrom

Master of Social Work Clinical Research Papers

This qualitative research study will explore the role of adult day social workers in identifying and mitigating caregiver burnout. To collect data for this study, eight semi-structured interviews with adult day social workers were completed to analyze their experience with caregivers, their role in recognizing burnout and their response to caregivers experiencing burnout. A grounded theory methodology approach will be used to analyze data. This method will use an open-coding process that will lead to selective coding, which will assist in identifying and validating themes and concepts from the participant’s responses to interview questions. The findings from this study indicate …

Benefits Of Adult Day Services For Dementia Caregivers: A Systematic Review, Jessie Sorvaag Marg

Master of Social Work Clinical Research Papers

Dementia is a growing problem in the world; not only for those with the disease, but also for their families, friends, and caregivers. Adult day services can provide much needed respite for caregivers of people with dementia. This systematic review was devised to answer the question: what are the benefits of and how effective is adult day services as a form of respite for caregivers of persons with dementia? Searches for peer reviewed articles in SocINDEX, Social Work Abstracts, PsycINFO, and PubMed were performed using the terms “adult day services” or “adult day care” or “adult day health care” AND …

The Benefits Of Non-Pharmacological Interventions For Individuals With Dementia: A Systematic Review, Nicole Sintler

Master of Social Work Clinical Research Papers

Individuals with dementia experience many symptoms as the illness progress. Some of the common symptoms of dementia are memory loss, depression, anxiety, agitation, and aggression. Non-pharmacological interventions can help alleviate the common symptoms of dementia. Some of these interventions include therapies, relaxation techniques, and creative activities. This systematic review was designed to explore the research question: What are the benefits for non-pharmacological interventions for individuals with dementia? The systematic review used peer-reviewed articles that were published in the last eight years. The databases that were used in the review were PsychINFO, PubMed, and the search terms that were used were …

Communicative Behaviors Elicited By Leisure Activities In Memory Care Units, Tarynn Clune

Honors Projects

A wide variety of leisure activities used in reminiscence care have been studied for their merits in terms of preventing cognitive decline, and increasing quality of life; however, little is known about what different types have to offer in terms of communicative opportunities. Communication with peers is imperative for quality of life, and is crucial for maintenance of relationships between the person with dementia (PWD) and their loved ones. As a result of this importance, an exploration of communication elicited by different activities facilitated in a unit was conducted. The communication explored in this study was solely vocal, and included …

Use Of A Music And Memory Program By Caregivers Of Persons With Dementia, Barbara Mendez Campos

Honors Undergraduate Theses

Although use of personal music devices by persons with dementia and their caregivers is now widespread, there is limited literature concerning music and memory’s effects on caregivers for persons with dementia. Caregivers were provided an iPod by two respite agencies and were encouraged to use it with their care recipient. A mailed survey of 50 caregivers who received an IPod explored: (a) associations between use of an iPod and caregiver self-efficacy, burden, and care recipient functional abilities, and; (b) if the method of presenting the music playlist was associated with use of the iPod. Associations were examined for 10 complete …

Effects Of Mind And Body Interventions On Family Dementia Caregivers: A Systematic Review, Katherine C. Johnson

Master of Social Work Clinical Research Papers

Family members caring for a loved one with dementia encounter a multitude of physical and psychological stressors. Current interventions address some of these concerns, but are not adequate to address the daily psychological stress that leads so many dementia caregivers to anxiety and depression. The current review selects empirical research from the past twelve years on the effects of mind and body interventions on family dementia caregivers and finds that, while intervention type varies widely, overall results suggest that MBSR and yoga-based methods implemented for eight weeks can have a beneficial impact on caregiver anxiety, depression, mood, stress, and quality …

Quality Of Life For Patients With Dementia: A Systematic Review, Kate Ryg

Master of Social Work Clinical Research Papers

There is an increase in the amount of people becoming diagnosed with dementia. With that increase, a concern has been created in regards to maintaining a person’s quality of life and intervention strategies to properly maintain their quality of life. The systematic review was set up using peer-reviewed articles published after 2001. The database SocINDEX was used to conduct the search for articles using the terms; “dementia and intervention strategies,” “dementia and non-pharmacological interventions,” “caregiver support,” “dementia and medications,” and “dementia and behavioral interventions.” Out of these searches, 32 articles satisfied criteria for inclusion and were used in the final …

Individuals With Dementia In Respite Care: Longitudinal Changes In Anxiety, Social Engagement, And Problem Behaviors, Rachael Elizabeth Mills

LSU Master's Theses

Individuals with Alzheimer’s disease (AD) and dementia commonly referred to as persons with dementia (PWD), often experience behavioral and psychological symptoms as a result of the disease process. With no cure for AD and no way to prevent the onset of this disease, studies are analyzing methods to manage the symptoms of this disease. Previous literature on the effect of social adult day models is limited, especially pertaining to particular symptoms linked to this disease. This study explored three presenting symptoms associated with AD: anxiety, problem behaviors, and social engagement. Using a secondary data analysis, a sample of 30 participants …

Participation In Active And Passive Music Interventions By Individuals With Alzheimer's Disease And Related Dementias: Effects On Agitation, Robert J. Prattini

LSU Doctoral Dissertations

The ability of music to produce calming effects on us is well documented, and its use is becoming an increasingly accepted intervention with populations displaying agitated and disruptive behaviors, such as people with Alzheimer’s disease (AD) or other dementias. One reason for its widespread use is because research has demonstrated music’s efficacy in reducing agitation, and consequently disruptive behaviors, in those with AD. Prior studies on music’s effects on agitation in older people with AD have utilized either recorded music used passively, or active sessions with a music therapist or musicians, but none have compared the effects of each type …

Psychometric Extension Of The Memory For Names Test, Heather Chance Foil

LSU Master's Theses

The purpose of this study was to re-evaluate the psychometric properties of the Memory for Names (Mem4Names) test among a sample of older adults without cognitive impairment. Mem4Names is a test of famous face recognition that was shown to be a reliable and valid measure of semantic memory in older adults both with and without cognitive impairment (Brouillette et al., 2011). The current study re-examined the psychometric properties of the Mem4Names test among 133 volunteers at Pennington Biomedical Research Center’s Institute for Dementia Research and Prevention. The study confirmed previously reported calculations of the test’s reliability by calculating Cronbach’s alpha …

Investigating The Theory Of Ambiguous Loss: The Role Of Ambiguity Tolerance In Pre-Death Grief For Caregivers Of Individuals With Dementia, Megan Kale-Cheever

Graduate Theses and Dissertations

This thesis sought to investigate the relationship between ambiguity tolerance and caregiver grief within the framework of ambiguous loss theory. Thirty-one family caregivers completed a quantitative survey comprising two pre-existing scales and several demographic questions designed to assess level of ambiguity tolerance, level of grief, caregiver age and gender, type of relationship to the care recipient, living situation, length of caregiving career, level of Social support and frequency of difficult behaviors. Quantitative data analysis revealed that while no relationship existed between total ambiguity tolerance and total caregiver grief, a modest, inverse relationship exists between tolerance toward general-type ambiguity and burden, …

The Support Group Experience Of Older Male Caregivers In Providing Care For A Relative With Dementia, Olivia T. Tise

Master of Social Work Clinical Research Papers

It is estimated that 40% of caregivers of individuals living with dementia are men (Alzheimer’s Association, 2013). As the number of people diagnosed with dementia rises, older male caregivers will increasingly meet the demand for care. Men over the age of 65 may be an especially vulnerable group of caregivers. Support groups are one of the most widely used and popular interventions with family caregivers (Hornillos & Crespo, 2012). However, few studies have examined the support group experience of older male caregivers in providing care for a relative with dementia. This qualitative study explored the caregiving experiences of older male …

Caregiver Support Within The Dementia Context: Best Practices In Responding To Ambiguous Loss, Michel Rousseau

Master of Social Work Clinical Research Papers

The purpose of this study was to use the concept of ambiguous loss as a lens to explore common challenges that family caregivers experience when caring for a loved one with dementia. This study attempted to collect qualitative data from licensed social workers who have experience working with family members and their diagnosed loved ones. Key findings made in this study include the different forms in which ambiguous loss may cause distress on behalf of caregivers: A physical presence yet psychological absence (an example of boundary ambiguity) on behalf of the diagnosed individual, the loss of future potential on behalf …

Goffman And The Infantilization Of Elderly Persons: A Theory In Development, Stephen M. Marson, Rasby M. Powell

The Journal of Sociology & Social Welfare

Infantilization is a behavioral pattern in which a person of authority interacts with, responds to, or treats an elderly person in a child-like manner. This paper uses Erving Goffman’s theories as a framework from which to analyze the reasons for and the results of infantilization of elderly residents in partial and total institutions (i.e., adult day care centers and nursing homes). First, we review the literature on infantilization. Next, we offer a brief summary of Goffman’s work and delineate his major theoretical assumptions. Then, we analyze the process of infantilization through Goffman’s theories. Finally, we offer suggestions for advancing research …

The Effects Of An Experiential Learning And Mentorship Program Pairing Medical Students And Persons With Cognitive Impairment: A Qualitative Content Analysis, Darby J. Morhardt

Dissertations

The United States population is aging rapidly and with it a tremendous rise in the number of people with dementia. In the future, as now, physicians and other health care professionals will likely provide the majority of health care for older people and those with dementia. The non-geriatric trained workforce must have the attitudes, knowledge and skills needed to provide high quality care for this aging and increasingly cognitively impaired population. There is evidence that prevailing stigma regarding older adults can be modified with experiential opportunities early in students' career. Few of these programs are aimed at persons with dementia. …

The Impact Of A Memory Box Activity On Relationships Between Residents Of A Long Term Care Facility And The Staff, Camilla Reynolds

Senior Honors Theses and Projects

When working in a residential facility it is difficult for staff to take the time to really get to know whom they are helping due to time constraints. This study conducted a pre and post test to determine the impact that a Memory Box Activity has on staff attitudes about the residents. The Memory Box is a box put together by residents (with staff help) that includes items that have meaning to them. The presumption was that by participating in this activity with the residents the staff attitudes would be positively impacted. This study was conducted at two local long-term …