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Full-Text Articles in Social Work
Validation Of The Caregiving At Life’S End Questionnaire, Jennifer R. Salmon, Jung Kwak, Kimberly D. Acquaviva, Kathleen A. Egan, Katherine E. Brandt
Validation Of The Caregiving At Life’S End Questionnaire, Jennifer R. Salmon, Jung Kwak, Kimberly D. Acquaviva, Kathleen A. Egan, Katherine E. Brandt
Kimberly D. Acquaviva, PhD, MSW
The researchers in this study developed and validated a questionnaire to measure the needs of end-of-life (EOL) caregivers. The model is used to facilitate meaningful and supportive experiences for both the patient and caregiver. The questionnaire was developed using existing scales of meaning, self acceptance, burden, and gain as well as new scales of caregiver comfort, importance of caregiving tasks, and caregiver closure. The sample included 34 current and 17 bereaved caregivers affiliated with The Hospice Institute of the Florida Suncoast. The scales performed well in terms of concurrent validity, internal consistency, and reliability.
Transformative Aspects Of Caregiving At Life's End, Jennifer Salmon, Jung Kwak, Kimberly D. Acquaviva, Katherine Brandt, Kathleen Egan
Transformative Aspects Of Caregiving At Life's End, Jennifer Salmon, Jung Kwak, Kimberly D. Acquaviva, Katherine Brandt, Kathleen Egan
Kimberly D. Acquaviva, PhD, MSW
We do not know to what extent the needs of caregivers involved with patients at the end of life are being met by care providers and whether caregiving at life’s end can be a positive experience. We used the Hospice Experience Model of Care as a framework for understanding the effect of transformative tasks on caregiving at life’s end. We compared current and bereaved caregivers and then, holding background characteristics constant, tested the independent effects of three transformative mediators: self-acceptance, meaning, and closure, as well as comfort with caregiving on several stressors when explaining differences in caregiver burden and gain. …