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Full-Text Articles in Psychology

The Relationship Between Body Mass Index And Depression In College Students, Bryn Kable Jan 2023

The Relationship Between Body Mass Index And Depression In College Students, Bryn Kable

CMC Senior Theses

College student mental health has seen a serious decline over the last decade (Esaki-Smith, 2022). One factor that has been linked to both physical and mental disorders is obesity. A common way to operationalize weight is through body mass index (BMI) (Ilman et al., 2015). There is evidence that BMI and depression are correlated linearly in that individuals with higher BMIs have higher levels of depression (Badillo et al., 2022; Simon et al., 2008). The exact mechanisms of this relationship are still generally unknown; thus, the goal of this study was to investigate the relationship between BMI and depression in …


When The Bough Breaks: Alcohol Misuse Among Jamaican Young Adults, Marsha Smith Jan 2023

When The Bough Breaks: Alcohol Misuse Among Jamaican Young Adults, Marsha Smith

Antioch University Full-Text Dissertations & Theses

The incidence of alcohol misuse globally continues to be a significant problem with copious adverse health and social causes and implications. The prevalence of alcohol misuse in Jamaica, British West Indies, instigated the trifold objective of this study. The ecological systems model provided a framework for conceptualizing multilayered biological and social processes that interact to determine mental health. This study examined anxiety and depression, family structure, and perceived parental warmth and control as predictors of alcohol misuse among young adults ages 18 to 30 residing in Jamaica. The current study revealed a correlation between alcohol misuse and higher levels of …


Body Image Dissatisfaction In Correlation With Self-Efficacy And Depression, Nate Burden Dec 2022

Body Image Dissatisfaction In Correlation With Self-Efficacy And Depression, Nate Burden

Student Works

This literature review focuses on the topic of body image dissatisfaction (BID) and self efficacy/esteem. I aimed to review the association between the two. Multiple databases were included, primarily utilizing terms such as “self-esteem” “Body image dissatisfaction” “depression” and “Self-efficacy”. Results review the various factors of body image dissatisfaction. These factors included aspects of appearance in various regions of the body, but primarily through weight and body shape. I reviewed the association and comparison of depression with body image dissatisfaction. The goal was in identifying the cause effect relationship between the two leading to the next part of the study. …


Storytelling To Promote Mental Health: A Conceptual Analysis And Application With Acceptance And Commitment Therapy For Depression, Carter H. Davis Dec 2022

Storytelling To Promote Mental Health: A Conceptual Analysis And Application With Acceptance And Commitment Therapy For Depression, Carter H. Davis

All Graduate Theses and Dissertations

Mental health treatments can be delivered in many ways. One approach is to use storytelling to communicate healthy practices. While societies across the world have engaged in storytelling for thousands of years, these practices have been used less in the mental health field. The aim of this project was to study the overlap between the areas of mental health and storytelling. We also tested how a storytelling-based mental health treatment could help solve a particular clinical problem. In this case, the problem of people who receive inadequate help for managing depression through medication alone.

We examined one particular mental health …


Psychometric Properties Of The Sindhi Version Of The Mood And Feelings Questionnaire (Mfq) In A Sample Of Early Adolescents Living In Rural Pakistan, Janavi Shetty, Florence Perquier, Susan C. Campisi, Yaqub Wasan, Madison Aitken, Daphne J. Korczak, Suneeta Monga, Sajid Bashir Soofi, Peter Szatmari, Zulfiqar Ahmed Bhutta Nov 2022

Psychometric Properties Of The Sindhi Version Of The Mood And Feelings Questionnaire (Mfq) In A Sample Of Early Adolescents Living In Rural Pakistan, Janavi Shetty, Florence Perquier, Susan C. Campisi, Yaqub Wasan, Madison Aitken, Daphne J. Korczak, Suneeta Monga, Sajid Bashir Soofi, Peter Szatmari, Zulfiqar Ahmed Bhutta

Centre of Excellence in Women and Child Health

There is a need for reliable and valid screening tools that assess depressive symptoms in adolescents in Pakistan. To address this need, the present study examined the psychometric properties and factor structure of a Sindhi-translated and adapted version of the child-report Mood and Feelings Questionnaire (MFQ-C) and the Short Mood and Feelings Questionnaire (SMFQ-C) in a community sample of adolescents living in Matiari, Pakistan. Questionnaires were translated into Sindhi and administered by study psychologists to 1350 participants (52.3% female) 9.0 to 15.9 years old. Measurement structure was examined using confirmatory factor analysis. Internal consistency was estimated, and convergent and divergent …


Exposure To Unpredictability And Mental Health: Validation Of The Brief Version Of The Questionnaire Of Unpredictability In Childhood (Quic-5) In English And Spanish, Natasha G. Lindert, Megan Y. Maxwell, Sabrina R. Liu, Hal S. Stern, Tallie Z. Baram, Elysia Poggi Davis, Victoria B. Risbrough, Dewleen G. Baker, Caroline M. Nievergelt, Laura M. Glynn Nov 2022

Exposure To Unpredictability And Mental Health: Validation Of The Brief Version Of The Questionnaire Of Unpredictability In Childhood (Quic-5) In English And Spanish, Natasha G. Lindert, Megan Y. Maxwell, Sabrina R. Liu, Hal S. Stern, Tallie Z. Baram, Elysia Poggi Davis, Victoria B. Risbrough, Dewleen G. Baker, Caroline M. Nievergelt, Laura M. Glynn

Psychology Faculty Articles and Research

Unpredictability is increasingly recognized as a primary dimension of early life adversity affecting lifespan mental health trajectories; screening for these experiences is therefore vital. The Questionnaire of Unpredictability in Childhood (QUIC) is a 38-item tool that measures unpredictability in childhood in social, emotional and physical domains. The available evidence indicates that exposure to unpredictable experiences measured with the QUIC predicts internalizing symptoms including depression and anxiety. The purpose of the present study was to validate English and Spanish brief versions (QUIC-5) suitable for administration in time-limited settings (e.g., clinical care settings, large-scale epidemiological studies). Five representative items were identified from …


Psychophysiological Effects Of Increasing Awareness Of Nondual Consciousness In Young Adults With Depression And Anxiety, Milena Braticevic Oct 2022

Psychophysiological Effects Of Increasing Awareness Of Nondual Consciousness In Young Adults With Depression And Anxiety, Milena Braticevic

CONSCIOUSNESS: Ideas and Research for the Twenty-First Century

Young adults increasingly suffer from anxiety and depression during the time of transition into adulthood. This research study examined the effects of increasing awareness of nondual consciousness in young adults who were experiencing various levels of anxiety and depression. The methodology was mixed-method and included four 1-hour group-based sessions over 4 weeks. Increasing awareness of nondual consciousness through educational, experiential, and behavioural components resulted in reduction in the average depression score from 19.4 (borderline clinical depression) to 10 (normal), and reduction in the average anxiety score from 12.7 (moderate anxiety) to 6.9 (mild). Participants reported increased mental, emotional, physical, and …


The Relationship Between Chronic Pain And Stress, Anxiety, And Depression In College Students Oct 2022

The Relationship Between Chronic Pain And Stress, Anxiety, And Depression In College Students

Journal of Interdisciplinary Undergraduate Research

The purpose of this study was to measure chronic pain levels as they relate to stress, anxiety, and depression in college students. This is a non-experimental, correlational research design, using a survey methodology. Eighty-four participants, over the age of 18, were recruited (men = 33.3%, women = 66.6%) to participate in this study. The participants were asked to complete a questionnaire which was a compilation of the Chronic Pain Grade Questionnaire (CPGQ) (Von Korff et al., 1992), the Perceived Stress Scale (Wickrama et al., 2013), the Beck Anxiety Inventory (BAI) (Beck et al., 1988), the Beck Depression Inventory-II (BDI-II) (Beck …


Generation Onlyfans: Examining The Effects Of "Raunch Culture" On Depression Via Social Media Use And Social Comparisons, Grace Sinclair, Duncan Jordan Sep 2022

Generation Onlyfans: Examining The Effects Of "Raunch Culture" On Depression Via Social Media Use And Social Comparisons, Grace Sinclair, Duncan Jordan

Faculty & Staff Research and Creative Activity

"Raunch culture" is a term describing the promotion of overtly sexual representations of women. This concept may provide people opportunities to engage in positive social comparisons, but also negative social comparisons. As such, this concept could also relate to the phenomenology of depression in women. In an attempt to further investigate the effects of raunch culture, this study examined relationships between raunch culture, depression, and social media use in undergraduate students. Participants (N = 199) from a moderately-sized university in the Midwest completed measures of raunch culture, depression, social comparison, and social media use via an online platform. Primary hypotheses …


Thoughts, Feelings, Actions; The Brevity Of Being: A Haiku Method, Scott Medeiros Sep 2022

Thoughts, Feelings, Actions; The Brevity Of Being: A Haiku Method, Scott Medeiros

Expressive Therapies Capstone Theses

The difficulties of delivering clinical services during the pandemic showed that there was a need for interventions that were able to be adapted to virtual sessions. In addition, lack of training and expertise regarding specialized therapies require modern day clinicians to be able to synergize current theory with the reality of the mental health landscape. In this study, 19 individuals participated in a psychoeducation group that taught a therapeutic thought mapping technique that was then adapted towards the creation of a haiku. It was noticed that participants were able to learn a psychological concept, apply it towards their life, create …


Postpartum Depression In Women Of Color, Barbara Sanchez Sep 2022

Postpartum Depression In Women Of Color, Barbara Sanchez

McNair Research Journal SJSU

Postpartum Depression (PPD) is a mental health complication experienced during pregnancy and/or in the months following childbirth. Women may struggle to seek treatment due to lack of education, unstable relationships, lack of support, and being low-income. Some of these factors may be particularly salient for women of color. Cultural nuances may also deter these women from seeking treatment and finding support to help manage their PPD symptoms. Treatment options and therapy have demonstrated a reduction in symptoms for women experiencing PPD. Future directions are also discussed.


Neuroanatomy In Mild Cognitive Impairment: Relationship To Functional Skills, Treatment Expectancy, And Comorbid Depression, Sara Rushia Sep 2022

Neuroanatomy In Mild Cognitive Impairment: Relationship To Functional Skills, Treatment Expectancy, And Comorbid Depression, Sara Rushia

Dissertations, Theses, and Capstone Projects

Mild cognitive impairment (MCI) is a neurocognitive disorder defined by cognitive decline in older adults. Although MCI has been studied for decades, there remain important areas to be explored in order to adequately characterize aspects of this disorder that provide information valuable for possible interventions and disease progression to dementia, including a better understanding of the neuroanatomical variables relevant to this disorder. Such neuroanatomical variables include cortical thickness, hippocampal volume, and white matter hyperintensities (WMHs). This dissertation consists of three separate studies aimed at addressing gaps in the literature on MCI in relation to brain morphometrics and under-studied characteristics involved …


Ssri-Induced Emotional Blunting: A Study Of Cognitive Changes In Pharmaceutically Treated Depression, Carly Tocco Sep 2022

Ssri-Induced Emotional Blunting: A Study Of Cognitive Changes In Pharmaceutically Treated Depression, Carly Tocco

Dissertations, Theses, and Capstone Projects

Objective: In recent years, approximately 12.7% of the American population are on a prescribed antidepressant medication. Selective Serotonin Reuptake Inhibitors (SSRIs) are a widely used pharmacological treatment for depressive and anxiety disorders, primarily due to their tolerance levels, mild side effects in comparison to other antidepressants, and broad range of clinical indications. However, there are still numerous concerns about SSRIs’ ability to improve depressive symptoms without adding side effects such as sexual dysfunction, gastrointestinal upset, and a restricted range of emotions. Although patients typically claim that they have less emotional pain while on SSRIs than they do during a depressive …


Using Motor Imagery As An Alternative To Exercise For Improvement Of Mental Health: A Qualitative Investigation, Madelyn Colbert Aug 2022

Using Motor Imagery As An Alternative To Exercise For Improvement Of Mental Health: A Qualitative Investigation, Madelyn Colbert

Spectra Undergraduate Research Journal

Exercise is a commonly used non-pharmacological treatment to improve the mental and physical health of patients with varying conditions. However, not all patients have the means to participate in exercise and/or physical exertion. Motor imagery training (MIT) is visualizing a task without motor output. Evidence has demonstrated MIT to enhance physical function with and without adjacent physical practice. A qualitative research study was conducted to examine the effectiveness of utilizing MIT as a depression and anxiety reducing alternative to exercise. Seven participants meeting the selection criteria were randomized into (a) the exercise group, or (b) the MIT group. The three …


Self-Regulation, Emotion Regulation, & Social Problem-Solving: Common & Distinct Pathways To Depression, Michelle L. Buffie Aug 2022

Self-Regulation, Emotion Regulation, & Social Problem-Solving: Common & Distinct Pathways To Depression, Michelle L. Buffie

Electronic Theses and Dissertations

The present study examined the relationships among three psychological constructs: self-regulation (SR), emotion regulation (ER), and social problem-solving (SPS), and their connection to depressive symptomology. SR, ER, and SPS arose from independent, well-established literature bases and each has demonstrated links to psychopathology. The theories underlying these constructs, however, suggest overlap in their operationalization and measurement. Despite these concerns, no empirical investigations to date have examined the measurement and predictive validity of measures of SR, ER, and SPS in the context of one another. Undergraduate students aged 18-29 (N = 592) completed three self-report measures each of the constructs interest, …


Inhibitory Control And Mentalizing: Potential Contributing Factors To Maladaptive Interpersonal Behaviors Associated With Depressive Symptoms, Eliot Fearey Aug 2022

Inhibitory Control And Mentalizing: Potential Contributing Factors To Maladaptive Interpersonal Behaviors Associated With Depressive Symptoms, Eliot Fearey

Electronic Theses and Dissertations

The current project considered the role of inhibitory control and mentalizing as vulnerability factors for engagement in excessive reassurance seeking, negative feedback seeking, and conversational self-focus among a sample of 222 older adolescents. It was hypothesized that lower levels of both inhibitory control and mentalizing would exacerbate the effect of elevated depressive symptoms on higher levels of the three interpersonal behaviors. Additional analyses further explored the role of self-reported gender identity. Models tested inhibitory control and mentalizing separately. In assessing inhibitory control, a self-report measure of impulsivity was used as a proxy for inhibitory control, and the Go/No-Go task was …


Relationship Between Humor Styles And Individual Difference Variables, Mira Ismail Aug 2022

Relationship Between Humor Styles And Individual Difference Variables, Mira Ismail

Undergraduate Student Research Internships Conference

Humor styles provide a better understanding of one’s personality and may vary based on individual difference variables. This study explores humor by looking at how different humor styles may correlate with other variables such as, loneliness, depression, the Big Five traits, self-esteem, age and sex. The following poster outlines the methodology used, as well as the proposed means of data analysis that will be conducted.


Depression, Anxiety, And Stress Severity Impact Social Media Use And Tiktok Addiction, Skylar L. Maguire, Hollie Pellosmaa Aug 2022

Depression, Anxiety, And Stress Severity Impact Social Media Use And Tiktok Addiction, Skylar L. Maguire, Hollie Pellosmaa

Chancellor’s Honors Program Projects

No abstract provided.


Associations Between Instagram Addiction, Academic Performance, Social Anxiety, Depression, And Life Satisfaction Among University Students, Behzad Foroughi, Mark D. Griffiths, Mohammad Iranmanesh, Yashar Salamzadeh Aug 2022

Associations Between Instagram Addiction, Academic Performance, Social Anxiety, Depression, And Life Satisfaction Among University Students, Behzad Foroughi, Mark D. Griffiths, Mohammad Iranmanesh, Yashar Salamzadeh

Research outputs 2014 to 2021

The use of social networking sites (SNSs) has become increasingly popular. Although several studies have been carried out on the addictive use of SNSs such as Twitter and Facebook, there is little research on Instagram addiction and its drivers. The present study investigated the association between students’ needs and Instagram addiction by incorporating physical activity as a moderator among 364 university students. Additionally, the associations between Instagram addiction, academic performance, depression, social anxiety, and life satisfaction were investigated. The results showed that recognition needs, social needs, and entertainment needs all contributed to Instagram addiction. However, information needs were not a …


Cortisol Administration Normalizes Aberrant Functional Connectivity In Women With Depression, Adam C. Runyan Jul 2022

Cortisol Administration Normalizes Aberrant Functional Connectivity In Women With Depression, Adam C. Runyan

Dissertations

Previous resting-state functional connectivity (rsFC) research has identified aberrant connectivity in several large brain networks in depression, including the default mode (DMN), frontoparietal (FPN), and salience networks (SN). Connectivity of these networks is also related to depressive symptom severity and is affected by cortisol levels. To our knowledge, this is the first study to investigate the effects of acute cortisol administration on rsFC of DMN, FPN, and SN in individuals varying in depression history and severity. We collected resting-state fMRI scans for 74 women with and without a history of depressive disorder after administration of cortisol and placebo using a …


Is The Phq-9 A Unidimensional Measure Of Depression? A 58,272-Participant Study, Renzo Bianchi, Jay Verkuilen, Sharon Toker, Irvin Sam Schonfeld, Markus Gerber, Elmar Brähler, Kurt Kroenke Jun 2022

Is The Phq-9 A Unidimensional Measure Of Depression? A 58,272-Participant Study, Renzo Bianchi, Jay Verkuilen, Sharon Toker, Irvin Sam Schonfeld, Markus Gerber, Elmar Brähler, Kurt Kroenke

Publications and Research

The PHQ-9 has become a measure of reference in depression research and clinical practice. However, the issue of the PHQ-9’s unidimensionality has not been fully elucidated, and the usability of the PHQ-9’s total score requires clarification. In this study, we examined the dimensionality, scalability, and monotonicity properties of the PHQ-9 as well as the scale’s total-score reliability. We did so based on exploratory structural equation modeling (ESEM) bifactor analysis and Mokken scale analysis (MSA). We relied on a total of 58,272 participants (63% female; Mage = 43, SDage = 13) from 29 samples involving seven different countries (e.g., Germany, the …


Interparental Conflict In Early Childhood As A Predictor Of Depression And Anxiety Symptoms At Age 15, Abigail Picinich May 2022

Interparental Conflict In Early Childhood As A Predictor Of Depression And Anxiety Symptoms At Age 15, Abigail Picinich

Theses - ALL

Research has continually demonstrated a number of adverse externalizing outcomes for children from conflictual families, though the impact of interparental conflict on adolescents' internalizing problems is less well understood. This study utilized longitudinal data from the Fragile Families and Child-Wellbeing Study, which is a stratified, multistage sample following 4,898 children from low-income families from birth to age 15. Self-report data from both the mothers and focal-teens was utilized to examine the impact of interparental conflict, at age 3, on both anxiety and depressive symptoms, at age 15. Findings indicated that there is a significant relationship between higher frequency of interparental …


Predictors Of Emotional Health Across Autistic And Non-Autistic Students' First Semester Of College, Erin E. Mckenney May 2022

Predictors Of Emotional Health Across Autistic And Non-Autistic Students' First Semester Of College, Erin E. Mckenney

Theses and Dissertations

The prevention and treatment of mental health concerns, including depression, are significant priorities for autistic adults. While several theories have been proposed to explain the high prevalence of depression in autistic populations, little longitudinal research has been done on potential causal mechanisms. Additional research is needed to explore how proposed contributors to depression from general population research -- namely, negative repetitive thinking, lack of social opportunity, and attributional style -- predict and/or moderate the development of depressive symptoms in autistic individuals. The current study investigates these potential predictors' relationship to internalizing symptoms over the course of college students' first semester. …


Covid‑Specific Coercive Control Among Emerging Adults Attending College: A Brief Note, Heather Littleton, Katie Edwards, Kayla E. Sall, Stephanie Lim, Victoria Mauer May 2022

Covid‑Specific Coercive Control Among Emerging Adults Attending College: A Brief Note, Heather Littleton, Katie Edwards, Kayla E. Sall, Stephanie Lim, Victoria Mauer

Faculty Publications, Department of Psychology

The COVID-19 pandemic represents a “perfect storm” with regards to risk for intimate partner violence (IPV). Abusive partners may engage in novel forms of coercive control, such as pressuring their partner to engage in activities associated with COVID-19 infection risk (e.g., attend a large gathering). However, no empirical research has focused on COVIDspecific coercive control. The current study sought to evaluate the prevalence of COVID-specific coercive control in a large sample of U.S. college students, as well as its association with other forms of IPV and depression and anxiety. A total of 2,289 undergraduate students attending eight U.S. universities who …


The Role Of Prenatal Anxiety Sensitivity On Postpartum Anxiety And Depression, Ryann Holman May 2022

The Role Of Prenatal Anxiety Sensitivity On Postpartum Anxiety And Depression, Ryann Holman

Honors Theses

Pregnancy is a vulnerable period for women, with roughly 15% of women experiencing psychopathology during pregnancy and postpartum. The most common mental health concerns during this period are anxiety and depression, which have been linked to adverse outcomes on both mother and baby, such as low birth weight and preterm birth. In understanding their onset, anxiety sensitivity has been found to be a potential mechanism for the development of both anxiety and depressive disorders. The goal of the current study was to examine the association between prenatal anxiety sensitivity and postpartum anxiety and depression. Pregnant women were given a battery …


Exploring Social Media Usage And Its Effects On College Students' Mental Health: A Mixed-Methods, Intervention Study, Kimanh Le May 2022

Exploring Social Media Usage And Its Effects On College Students' Mental Health: A Mixed-Methods, Intervention Study, Kimanh Le

Health and Kinesiology Theses

Background: Social media can cause detrimental effects to college students’ mental wellbeing. The purpose of this study was to examine UT Tyler students’ social media usage and its effects on mental health such as depression, anxiety, stress, self-esteem, and the fear of missing out (FoMO). The researcher wanted to see if one specific social media site, Instagram, had more deleterious effects compared to other social media platforms and if reducing time usage would help improve mental health.

Methods: A mixed-methods, intervention design was used. An online quantitative survey link, which contained questions about demographics, social media usage, and mental health …


The Role Of Trauma Coping Self-Efficacy And Shame In The Relationship Between Variants Of Self-Blame And Psychological Outcomes, Melody Robinson May 2022

The Role Of Trauma Coping Self-Efficacy And Shame In The Relationship Between Variants Of Self-Blame And Psychological Outcomes, Melody Robinson

Electronic Theses, Projects, and Dissertations

Exposure to sexual violence is associated with deleterious mental health consequences (Campbell et al., 2009). Survivors’ perceptions of self-blame can exacerbate these difficulties (Miller at al., 2007). Characterological self-blame has been associated with negative outcomes (e.g., PTSD, depression, & anxiety; Hassija & Gray, 2013; Janoff-Bulman, 1979). On the other hand, behavioral self-blame may be more adaptive, especially when the victim believes they have control over their future behavior (Hassija & Gray, 2013). However, the underlying mechanisms that account for both variants of self-blame’s impacts warrant further investigation. We predicted that posttraumatic shame, conceptualized as negative attributions and criticisms towards the …


Investigating The Efficacy Of Mental Health App Features On Depressive Symptoms And Adherence: The Airheart Pilot Study, Stephanie G. Six May 2022

Investigating The Efficacy Of Mental Health App Features On Depressive Symptoms And Adherence: The Airheart Pilot Study, Stephanie G. Six

All Theses

Mental health apps have shown promise for improving mental health and quality of life in a variety of contexts, such as depression, anxiety, and stress. However, a limited amount of research aimed at understanding how app features and design can optimize the therapeutic benefits and adherence of such mental health apps exists. Consequently, the primary purpose of the current pilot study is to investigate the effect avatar customization on depressive symptoms, adherence, and motivation to use a mental health app. Furthermore, the secondary aim of the current pilot study is to examine whether specific app features, including journaling, mood tracking, …


The Effects Of Covid-19 Induced Stress, Anxiety And Depression On The Eating Behavior Of College Women, Natalie Simpson May 2022

The Effects Of Covid-19 Induced Stress, Anxiety And Depression On The Eating Behavior Of College Women, Natalie Simpson

Undergraduate Honors Thesis Collection

Increases in the prevalence of disordered eating patterns have been linked to distress and poor mental well-being. Additionally, COVID-19 has been linked to both depressive and anxious symptomatology, along with increased feelings of distress (Fitzpatrick et al., 2020). Because disordered eating is particularly prevalent among college-aged women, this study sought to determine how depression, anxiety, and stress affect eating behaviors of college women in the context of the COVID-19 pandemic. 179 women at Butler University, aged 18-24, gave informed consent before completing a questionnaire pertaining to their demographics, their stress surrounding COVID, and their weight change since March 2020. The …


Healthcare Access, Satisfaction, And Health‑Related Quality Of Life Among Children And Adults With Rare Diseases, Amanda Hemmesch, Kathleen Bogart, Erica Barnes, Thomas Blissenbach, Arthur Beisang, Patti Engel, Chloe Barnes Advisory Council On Rare Diseases May 2022

Healthcare Access, Satisfaction, And Health‑Related Quality Of Life Among Children And Adults With Rare Diseases, Amanda Hemmesch, Kathleen Bogart, Erica Barnes, Thomas Blissenbach, Arthur Beisang, Patti Engel, Chloe Barnes Advisory Council On Rare Diseases

Psychology Faculty Publications

Background: Research in a variety of countries indicates that healthcare access and health-related quality of life are challenged among people with a variety of rare diseases (RDs). However, there has been little systematic research on the experiences of children and adults with RDs in the American healthcare system that identifies commonalities across RDs. This research aimed to: (1) Describe demographics, disease characteristics, diagnostic experiences, access to healthcare, knowledge about RDs, support from healthcare professionals, and patient satisfaction among people with RDs and their caregivers; (2) examine predictors of patient satisfaction among adults with RDs; (3) compare health-related quality of life …