Library and Information Science Commons^™

Linked Metadata For 3d Models: From Dublin Core To Europeana Data Model, Xiying Mi, Bonita Pollock

Collections and Discovery Faculty and Staff Publications

No abstract provided.

Linked Metadata For 3d Models: From Dublin Core To Europeana Data Model, Xiying Mi, Bonita Pollock, Richard Bernardy

Collections and Discovery Faculty and Staff Publications

No abstract provided.

Standardization Of Questions In Rare Disease Registries: The Prism Library Project, Rachel L. Richesson, Denise Shereff, James E. Andrews

School of Information Faculty Publications

Background: Patient registries are often a helpful first step in estimating the impact and understanding the etiology of rare diseases - both requisites for the development of new diagnostics and therapeutics. The value and utility of patient registries rely on the use of both well-constructed structured research questions and relevant answer sets accompanying them. There are currently no clear standards or specifications for developing registry questions, and there are no banks of existing questions to support registry developers.

Objective: This paper introduces the [Rare Disease] PRISM (Patient Registry Item Specifications and Metadata for Rare Disease) project, a library of standardized …

[Rd] Prism Library: Patient Registry Item Specifications And Metadata For Rare Diseases, Rachel L. Richesson, Denise Shereff, James E. Andrews

School of Information Faculty Publications

Patient registries are important for understanding the causes and origins of rare diseases and estimating their impact; and they may prove critical developing new diagnostics and therapeutics. This paper introduces the [RD] PRISM resource , an NIH-funded project to develop a library of standardized question and answer sets to support rare disease research. The paper presents a project case-driven plan for creating a new registry using questions from an existing related registry, revising and expanding an existing registry, and showing interoperability of data collected from different registries and data sources. Each of the use cases involves the retrieval of indexed …