Social and Behavioral Sciences Commons^™

The Role Of Family-Led Disability Organizations In Supporting Families With Hearing-Related Concerns, Diane D. Behl, Janet Desgeorges, Karl R. White

Journal of Early Hearing Detection and Intervention

A survey was conducted with state level chapters from Family Voices, Parent Training and Information Centers, and Parent–to-Parent USA to understand their current activities support families of children with hearing-related concerns and to identify gaps in their ability to support families of children who are D/HH. these organizations reported that they are contacted with parent requests for information in regard to family support opportunities, early intervention, referral sources pertaining to hearing concerns, financial help, and providing information about legal rights. Results showed that the greatest challenges for these organizations were related to needing to connect families to financial resources pertaining …