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A Critical Analysis Of Intellectual Disabilities And End-Of-Life Decision Making, Saritha Farris Apr 2014

A Critical Analysis Of Intellectual Disabilities And End-Of-Life Decision Making, Saritha Farris

Graduate Research Symposium (GCUA) (2010 - 2017)

Presently, research suggests the involvement of individuals with intellectual disabilities (IDs) in making end-of-life (EOL) decisions appears to be minimal (Ellison & Rosielle, 2008).

The reasons for the lack of involvement include but are not limited to communication challenges, lack of education on caring for individuals with IDs by the medical community, incorrect assumptions that the individual lacks cognitive capacity to consent, and fear of legal consequences if formal caregivers are accused of not providing enough care. (Wagemans et al., 2010).

These factors then often culminate in the individual with IDs having decisions made for them by someone else, whom they ...