Education Commons^™

Paths To Equity: Parents In Partnership With Ucedds Fostering Black Family Advocacy For Children On The Autism Spectrum, Elizabeth H. Morgan, Benita D. Shaw, Ida Winters, Chiffon King, Jazmin Burns, Aubyn Stahmer, Gail Chodron

Developmental Disabilities Network Journal

Racism and ableism have doubly affected Black families of children with developmental disabilities in their interactions with disability systems of supports and services (e.g., early intervention, mental health, education, medical systems). On average, Black autistic children are diagnosed three years later and are up to three times more likely to be misdiagnosed than their non-Hispanic White peers. Qualitative research provides evidence that systemic oppression, often attributed to intersectionality, can cause circumstances where Black disabled youth are doubly marginalized by policy and practice that perpetuates inequality. School discipline policies that criminalize Black students and inadequate medical assessments that improperly support Black …

Frequently Asked Questions About Receiving Tele-Intervention Services, Ronda Rufsvold, Betsy Moog Brooks, Amanda M. Rudge, National Center For Hearing Assessment And Management (Ncham) Tele-Intervention Learning Community

Journal of Early Hearing Detection and Intervention

The purpose of this article is to provide resources related to parent perceptions and needs in receiving tele-intervention (TI) services.

Working With Families Of Young Children Who Are Deaf Or Hard Of Hearing Through Tele-Intervention, Amanda M. Rudge Phd, Betsy Moog Brooks Edd, Arlene Stredler-Brown Phd

Journal of Early Hearing Detection and Intervention

Tele-intervention services have been utilized for many years to serve families of young children, in addition to or in lieu of traditional in-person intervention services. Recently, the COVID-19 pandemic cultivated urgent dependence on access to effective services via a distance connection. As such, the need for information, guidance, and resources related to tele-intervention as a primary service model has increased. This article serves as the introduction to a monographic series aiming to describe practices, circumstances, and perceptions surrounding tele-intervention services for families of children aged birth to five who are deaf or hard of hearing. Topics include: (a) a brief …

Community Conversations: Finding Solutions To Increase Employment For Individuals With Intellectual And Developmental Disabilities, James Sinclair, Kyle Reardon, Katherine W. Bromley, Christen Knowles, Dana Cohen Lissman, Megan Kunze

Developmental Disabilities Network Journal

This study describes the implementation and findings of a pilot community conversations event in the state of Oregon to identify innovative solutions to under- and unemployment experienced by individuals with intellectual and developmental disabilities (IDD). The event was facilitated in partnership with the University of Oregon UCEDD, local Arc chapter, and other relevant community stakeholders. A total of 36 diverse individuals (e.g., school personnel, business owners, individuals with IDD, and caregivers of individuals with IDD) participated in a two-hour community conversations event about how to improve employment opportunities for those experiencing IDD. Participants engaged in discussions about solutions to employment …

Parents’ Beliefs Regarding Shared Reading With Infants And Toddlers, Emma Brezel Mbe, Libby Hallas-Muchow Ms, Alefyah Shipchandler, Jennifer Hall-Lande Phd, Lp, Karen Bonuck Phd

Developmental Disabilities Network Journal

Parent beliefs about reading to young children- and factors related to such beliefs- affect a child’s reading skill. But, little is known about parent beliefs about reading to infants and toddlers. To fill this gap, three University Centers of Excellence in Developmental Disabilities (UCEDDs) studied 43 English and Spanish speaking parents of children aged 9-18 months. The three UCEDDs were working on a project to create a children’s book that had tips for parents about how their one year-old learns and grows. The UCEDD study survey asked about parent beliefs about reading to young children (4 questions) and factors related …

The Origins Of University Centers On Developmental Disabilities: Second Generation Expectations And Growth, Bryce Fifield, Marvin G. Fifield

Developmental Disabilities Network Journal

Part two of a two part publications tracing the evolution of University Centers on Disabilities. Originally University Affiliated Facilities evolved into University Affiliated Programs on disabilities. Early expectations outlined by President Kennedy's Committee on Mental Retardation grew as funding for disability services and programs became available. Key legislation, program developments and organizational decisions are described for the time frame of 1970 through 2000.

Parents Of Children With Disabilities In The Early Months Of Covid-19: Knowledge, Beliefs And Needs, Mary Beth Bruder Phd, Tara M. Lutz Phd, Kelly E. Ferreira Phd

Developmental Disabilities Network Journal

COVID-19 has impacted families across the world. Besides the huge task of keeping their children and themselves healthy, families had more responsibilities such as supporting their children’s learning at home when they could not go to school. We asked 457 parents of children with disabilities about their knowledge, beliefs, and needs during the first few months of the pandemic. The parents reported a decrease in formal supports available to them. They also reported a decrease in being able to access informal supports. The parents stated concerns about the health and well-being of their families, the loss of jobs and income, …

Evolution Of A Multi-Layered World Of Science To Benefit Children With Hearing Loss, Ellen Rhoades, Rachel Glade

Journal of Early Hearing Detection and Intervention

This is a brief but broad narrative and non-systematic review of developments that led up to how 21^st century digital technology and translational research influenced, in particular, cognitive psychology and our improved understanding of mental resources among children with hearing loss. In turn, systemic multi-disciplinary research findings gave birth to Auditory Cognitive Neuroscience (ACN). Three broad constructs unique to ACN, i.e., auditory attention, effortful listening, and auditory fatigue, are then described in relation to children with hearing loss. This review concludes with a brief examination of future opportunities for researchers and clinicians who can ensure that children with hearing …

Beliefs And Self-Efficacy Of Parents Of Young Children With Hearing Loss, Sophie E. Ambrose, Margo Appenzeller, Alexandra Mai, Jean L. Desjardin

Journal of Early Hearing Detection and Intervention

The purpose of this study was to learn more about the beliefs and self-efficacy of parents of young children with hearing loss. Seventy-two parents completed the Scale of Parental Involvement and Self-Efficacy - Revised (SPISE-R), which queries parents about their child’s hearing device use and their perceptions of their own beliefs, knowledge, confidence, and actions pertaining to supporting their child’s auditory access and spoken language development. Two beliefs were identified that related to parents’ action scores and one belief was identified that related to children’s hearing device use. Knowledge and confidence scores were significantly correlated with action scores and children’s …

Using Technology To Monitor Hearing Device Use And Linguistic Environments: Early Intervention Providers’ Perspectives, Margo C. Appenzeller, Sophie E. Ambrose

Journal of Early Hearing Detection and Intervention

To optimize outcomes of children with hearing loss, early intervention professionals must work with families to optimize both children’s hearing device use and the linguistic and auditory features of their environments. Two technologies with potential use in monitoring these domains are data logging and Language Environment Analysis (LENA) technology. This study had two objectives: 1) to determine whether providers’ experiences, perspectives, and current practices indicate there is a need for tools to better monitor these domains, and 2) to gain a better understanding of providers’ experiences with and perspectives on use of data logging and LENA technology using an internet-based …

Odds Of Autism At 5 To 10 Years Of Age For Children Who Did Not Pass Their Aabr Newborn Hearing Screen, But Were Diagnosed With Normal Hearing, Shihfen Tu, Craig A. Mason, Deborah L. Rooks-Ellis, Patricia Lech

Journal of Early Hearing Detection and Intervention

Background: Research has found atypical Auditory Brainstem Response (ABR) activity in some children with Autism Spectrum Disorder (ASD). The current study examined whether an association may also be found between ASD and pass/refer results obtained via Automated Auditory Brainstem Response (AABR) screening. As stewards of large-scale AABR data, an AABR – ASD association may be of interest to EHDI programs.

Methods: State EHDI data for 29,350 children born in Maine between 2003 and 2005 were linked with education records, including special education status, for the 2010/2011 and 2013/2014 school years.

Results: Children who did not pass their …

Involvement Of Adults Who Are Deaf Or Hard Of Hearing In Ehdi Programs, Elizabeth Shuler-Krause, Karl R. White

Journal of Early Hearing Detection and Intervention

Consistent with a position statement of the Joint Committee on Infant Hearing (JCIH, 2007), several key organizations and groups have supported involving deaf and hard of hearing (DHH) adults in Early Hearing Detection and Intervention (EHDI) systems, including providing families of children who are DHH with opportunities to interact with adults who are DHH. This article reviews the available data on the involvement of adults who are DHH in EHDI systems to determine the availability of opportunities for families who have children who are DHH to interact with adults who are DHH, how families feel about these experiences, and to …

Effects Of Frequency Of Early Intervention On Spoken Language And Literacy Levels Of Children Who Are Deaf Or Hard Of Hearing In Preschool And Elementary School, Ann E. Geers, Jean S. Moog, Amanda M. Rudge

Journal of Early Hearing Detection and Intervention

Language delays associated with hearing loss during infancy may have a negative impact on academic development throughout childhood. Early intervention provided by the Moog Center for Deaf Education prior to 36 months of age was quantified, and associations with later outcomes were examined for 50 students who are DHH representing Moog Center alumni. The objective was to determine whether the amount of early intervention (referred to hereafter as dose of early intervention received at the Moog Center during the time children were 0-36 months of age) contributed uniquely to outcomes in preschool (4–6 years) and in elementary school (8–14 years). …

21st Century Teenagers And Young Adults Who Are Deaf Or Hard Of Hearing: Outcomes And Possibilities, Jean S. Moog, Amanda M. Rudge 3730756

Journal of Early Hearing Detection and Intervention

The purpose of this study was to document demographics, characteristics, and long-term outcomes of teenagers and young adults who are deaf or hard of hearing (DHH) and who all attended the Moog Center for Deaf Education for preschool and/or a portion of elementary school. Data were obtained via an online survey that was designed to assess educational, personal, and professional outcomes of individuals who were currently in high school and beyond. Survey questions were about the lives of these individuals after leaving the Moog Center. Participants included 108 individuals who were DHH, ranging from 15 to 32 years of age. …

Home Visiting Programs For Families Of Children Who Are Deaf Or Hard Of Hearing: A Systematic Review, Nannette Nicholson, Patti Martin, Abby Smith, Sheila Thomas, Ahmad A. Alanazi M.Aud.

Journal of Early Hearing Detection and Intervention

Prelingual hearing loss greatly restricts a child’s language development, hindering his or her behavioral, cognitive and social functioning. Although technology such as hearing aids and cochlear implants are an option for providing access to sound, they fail to teach the child how to listen or attend, how to process language (whether visual or spoken), or how to produce language and communicate. Home visiting is widely recognized as a cost-effective intervention service delivery model. Home visiting programs for promoting language development in children who are diagnosed as deaf or hard of hearing have been in existence for over 50 years, yet …

Promoting Immigrant Parents’ Engagement In Early Intervention Through Culturally And Linguistically Responsive Service Delivery, Wendy B. Wieber, Lucia Quinonez Sumner

Journal of Early Hearing Detection and Intervention

This article focuses on the use of culture-based play, songs, and games in the early education of newcomers to the United States. Current studies examine culturally inclusive practices in PreK-12 schools in America, Canada, and Australia and suggest that parents participate more enthusiastically when their cultural orientation is honored. Although there is scant research regarding in-home early intervention for infants and toddlers who are deaf or hard of hearing for recent immigrants to the United States, the same principle may hold true for this group of immigrants. The type of parent involvement that an early interventionist in the U.S. hopes …

Professional Competence To Promote Resilience For Children Living In Poverty, Jenna M. Voss, Susan Lenihan

Journal of Early Hearing Detection and Intervention

Poverty has a tremendous impact on the educational results of all children, including those who are deaf or hard of hearing. With targeted, evidence-based interventions during the first three years of life, Early Hearing Detection and Intervention (EHDI) professionals can protect children from the numerous risk factors which impede development. While EHDI professionals often serve children and families living in poverty, it remains the case that the professional preparation programs offer limited instruction and experience in how to best serve children and families living in poverty. The purpose of this study was to explore professional preparedness to serve children who …

The Role Of Family-Led Disability Organizations In Supporting Families With Hearing-Related Concerns, Diane D. Behl, Janet Desgeorges, Karl R. White

Journal of Early Hearing Detection and Intervention

A survey was conducted with state level chapters from Family Voices, Parent Training and Information Centers, and Parent–to-Parent USA to understand their current activities support families of children with hearing-related concerns and to identify gaps in their ability to support families of children who are D/HH. these organizations reported that they are contacted with parent requests for information in regard to family support opportunities, early intervention, referral sources pertaining to hearing concerns, financial help, and providing information about legal rights. Results showed that the greatest challenges for these organizations were related to needing to connect families to financial resources pertaining …