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Washington University in St. Louis

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Disability Studies

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Modeling Disability: Softly Making The Invisible Visible, Libby Evan May 2020

Modeling Disability: Softly Making The Invisible Visible, Libby Evan

Bachelor of Fine Arts Senior Papers

“I am not asking for pity. I am telling you about my disability.” -Eli Clare

In the following Bachelor of Fine Arts thesis statement, you will not find someone overcoming their disability. You will not find a tale of inspiration. You will not find a cure for ableism. You simply will find an individual's experience of disability— my experience of disability.

My invisible disability puts the medical model and social model of disability in constant tension as I navigate everyday life living with Chronic Fatigue Syndrome and severe arthritis. Both models seek to find blame for disability, whether in searching …