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Full-Text Articles in Arts and Humanities
Protecting Communities In Research: Current Guidelines And Limits Of Extrapolation, Charles Weijer, Gary Goldsand, Ezekiel Emanuel
Protecting Communities In Research: Current Guidelines And Limits Of Extrapolation, Charles Weijer, Gary Goldsand, Ezekiel Emanuel
Charles Weijer
As genetic research increasingly focuses on communities, there have been calls for extending research protections to them. We critically examine guidelines developed to protect aboriginal communities and consider their applicability to other communities. These guidelines are based on a model of researcher-community partnership and span the phases of a research project, from protocol development to publication. The complete list of 23 protections may apply to those few non-aboriginal communities, such as the Amish, that are highly cohesive. Although some protections may be applicable to less-cohesive communities, such as Ashkenazi Jews, analysis suggests substantial problems in extending these guidelines in toto …
Another Tuskegee?, Charles Weijer
The Analysis Of Risks And Potential Benefits In Research, Charles Weijer
The Analysis Of Risks And Potential Benefits In Research, Charles Weijer
Charles Weijer
No abstract provided.
Duty And Healing: Foundations Of A Jewish Bioethic, Benjamin Freedman, Charles Weijer
Duty And Healing: Foundations Of A Jewish Bioethic, Benjamin Freedman, Charles Weijer
Charles Weijer
No abstract provided.