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Full-Text Articles in Arts and Humanities
Benefit-Sharing And Other Protections For Communities In Genetic Research, Charles Weijer
Benefit-Sharing And Other Protections For Communities In Genetic Research, Charles Weijer
Charles Weijer
No abstract provided.
Protecting Communities In Biomedical Research, Charles Weijer, E. Emanuel
Protecting Communities In Biomedical Research, Charles Weijer, E. Emanuel
Charles Weijer
Although for the last 50 years, ethicists dealing with human experimentation have focused primarily on the need to protect individual research subjects and vulnerable groups, biomedical research, especially in genetics, now requires the establishment of standards for the protection of communities. We have developed such a strategy, based on five steps. (i) Identification of community characteristics relevant to the biomedical research setting, (ii) delineation of a typology of different types of communities using these characteristics, (iii) determination of the range of possible community protections, (iv) creation of connections between particular protections and one or more community characteristics necessary for its …