Arts and Humanities Commons^™

Positive Women: Emotion, Memory, And The Power Of Narrative In Women Organized To Respond To Life-Threatening Diseases, 1991-2020, Eleanor Naiman

Swarthmore Undergraduate History Journal

Note: In lieu of an abstract, this is the article's first paragraph.

"By 1992, the AIDS epidemic in the United States had reached seemingly catastrophic proportions. Over ten years after the first published report of AIDS-related lung infection, the number of AIDS cases in the United States far exceeded 100,000. It would be four years until the FDA approval of the first protease inhibitor. Over ten thousand women had been diagnosed with the disease, and experts expected over ninety thousand more were already infected. The disease, lacking effective treatment, increasingly struck women and people of color in the early 1990s; …

Theatrical Illness: Tuberculosis And Hiv As Presented By "La Boheme" And "Rent", Jessica Downing

Swarthmore Undergraduate History Journal

Note: In lieu of an abstract, this is the article's first paragraph.

"The musical Rent made its Broadway debut on January 25, 1996, a century after the opening performance of the opera, La Boheme. This correlation was a coincidence, though Rent draws significantly on the story of La Boheme, to the extent that a New York Times reviewer deemed it a "contemporary answer to Puccini's 'Boheme."' Each of these productions presents the troubles and tragedies of the bohemian lifestyle in a specific time and place-La Boheme in Paris during the 1830s and Rent in New York City during 1989. Disease, …

Too Much And Too Graphic: Dr. Ruth Westheimer And The Struggle For 1980s And 1990s Feminism, Louisa Marshall

Voces Novae

During the second wave of feminism, spanning from the mid 1960s to the mid 1970s, the United States saw unprecedented levels of change regarding the status of women. However, the conservative administrations of Reagan and H.W. Bush that followed turned the tides against the feminist movement and towards re-establishing traditional gender roles. Trail blazing women, including sex therapist Dr. Ruth Westheimer, dedicated their 20th century careers to combating traditional sentiment, thus changing gender roles forever.

The Anti-Orpheus: Queering Myth In Ducastel Et Martineau’S Théo Et Hugo Dans Le Même Bateau (Paris 05:59), Todd W. Reeser

Studies in 20th & 21st Century Literature

Olivier Ducastel and Jacques Martineau’s 2016 film Théo et Hugo dans le même bateau (Paris 05:59: Théo & Hugo) concludes on an Orphic note, inviting a consideration of the entire film as based on the myth of Orpheus and Eurydice. The film appropriates but also radically transforms elements of the foundational myth—including especially Orpheus’s turn to pederasty in Ovid’s Latin version—crafting a queer love story based on potentiality out of the tragedy of the heterosexual love story. In so doing, the film channels Herbert Marcuse’s idea of Orphic refusal in Eros and Civilization, opening up the myth …

Quiet Heroes, William L. Blizek

Journal of Religion & Film

This is a film review of Quiet Heroes (2018), directed by Jenny Mackenzie, Jared Ruga, and Amanda Stoddard.

“I Don’T Fit In A Box; No One Does:” Intersectionality And Gay Male Identity, Jesse L. Grainger, Brent E. Cagle

The Winthrop McNair Research Bulletin

Using an intersectionality framework, this qualitative study explores how stigma affects identity development and how intersecting identities can compound to either foster resiliency or create health concerns for 11 men who are emerging adults (18-29), same sex identified, African American, HIV +, and homeless. Semi-structured one-on-one interviews were conducted through RAIN (Regional Aids Interfaith Network) in Charlotte, NC. Questions were formulated to understand how participants view themselves and perceived stigmas, current/past health conditions, and their five to ten year prospects. This study uses grounded theory as a guide to analyze and interpret data. Themes explored include: risks (acquiring HIV through …

Use Of Craigslist.Org To Hook Up: Age Differences In Sex Requests, Hiv Disclosure And Negotiated Safety Among Men-Seeking-Men, Kristen Clements-Nolle, Aliya Buttar, Lindsey Dermid-Gray, Tyler Peterson, Andrea Esp

Nevada Journal of Public Health

Data from 984 “men-seeking-men” Craigslist.org postings in five cities were analyzed to assess differences in sexual requests, HIV status disclosure, and negotiated safety between young (18-24 years) and older (25 years and older) men who have sex with men (MSM). Young MSM were less likely than older MSM to post their HIV status or the preferred status of a partner (p=0.04), disclose and/or request a partner who was disease and drug free (p=.01), and request use of a condom in their posting (p=0.01). Interventions aimed at changing the culture and content of postings on Craigslist.org by encouraging HIV status disclosure …

“Work What You Got”: Political Participation And Hiv-Positive Black Women’S Work To Restore Themselves And Their Communities, Monica L. Melton

Journal of Interdisciplinary Feminist Thought

Black women’s rates of HIV/AIDS infection have skyrocketed in comparison to other racial and ethnic groups over the past thirty years. Despite these rates, HIV-positive Black women’s perspectives are rarely sought regarding best practices to eradicate and interrupt HIV/AIDS among African American women, even though historically Black women have often proved phenomenal agents of social change. HIV-positive Black women’s activism has been understudied and input from the community in crisis has rarely been deemed as valuable to public health officials in HIV/AIDS prevention and interventions. Through the narratives of thirty HIV-positive Floridian Black women, I present HIV-positive Black women’s political …

A Feminist Struggle? South African Hiv Activism As Feminist Politics, Katarina Jungar, Elina Oinas

Journal of International Women's Studies

This paper is a feminist reading of HIV activism in South Africa, of a social movement that does not describe itself as a women’s movement: it advocates both women’s and men’s, trans, hetero- and homosexual peoples’ rights for adequate health care and antiretroviral medication. Like many others, Chandra Talpade Mohanty suggests that today’s powerful feminism is found in anti-globalization movements that do not necessarily call themselves feminist. These critiques maintain that the theory, critique and activism of grass-root women across the globe, for example around anti-globalization, should also inform academic feminist discussions. This article studies discourses on HIV in Africa …

Antecedent And Sequalae Issues Of Nepalese Women Trafficked Into Prostitution, Chandra Kant Jha, Jeanne Madison

Journal of International Women's Studies

Using a qualitative descriptive methodology, this study explored the experiences of Nepalese women trafficked into prostitution in India. The study found that poverty and lack of awareness about being at risk for trafficking are the major precursors for their trafficking experience. Abduction, fake marriages and the seduction of a better job were the major approaches adopted by pimps to traffic the women. The study also showed that after returning from the Indian brothel(s), they were rejected by their family and community. Such rejections occurred as family and community perceived these young women as at high risk for HIV infection. Strategies …

The Disabling Nature Of The Hiv / Aids Discourse Among Hbcu Students: How Postcolonial Racial Identities And Gender Expectations Influence Hiv Prevention Attitudes And Sexual Risk-Taking, Bruce H. Wade

Wagadu: A Journal of Transnational Women's & Gender Studies

This analysis reveals how some African American college students respond to the discourse on HIV / AIDS as a social disability. The methodology includes surveys (n = 217), focus groups and interviews with convenience samples of students attending a consortium of historically black colleges and universities (HBCUs) in the U.S. The findings show that the perceived risk of HIV is high in this community, that nearly half of students use condoms inconsistently even though they are well aware of the risks of unprotected sex and their levels of HIV / AIDS knowledge are high. Social stigma, gender role expectations, an …

Editor's Note, Padraig O'Malley

New England Journal of Public Policy

On occasion, the New England Journal of Public Policy will devote an entire issue to consideration of a public policy matter of major importance. The AIDS epidemic is such a matter, with a likely impact of overwhelming consequence well into the twenty-first century. The epidemic raises fundamental questions regarding the nature of individual freedom, our responsibilities to others, the always delicate balance between private rights and the public interest, and society's obligation to its "out" groups — whose members it has stigmatized, discriminated against, ridiculed, and treated as less than full and equal citizens. Indeed, it requires us to ask …

The Acquired Immunodeficiency Syndrome In New England: An Epidemiological Review Of The First Six Years, Laureen M. Kunches, Jeanne M. Day

New England Journal of Public Policy

Between 1981 and 1987 — the six-year period following initial recognition of the acquired immunodeficiency syndrome (AIDS) — 1,475 cases were reported among residents of the six New England states. Of nearly 40,000 cases nationwide, 3.8 percent occurred among New England residents, though the region 's population represents 5.5 percent ofthe total United States population. The groups most affected include homosexual or bisexual men (65 percent) and intravenous drug users (20 percent). However, in the two southernmost states — Rhode Island and Connecticut — 32 to 40 percent of all cases have used intravenous drugs. In these states, the male:female …

The Quest For An Aids Vaccine, Robert T. Schooley

New England Journal of Public Policy

More than fifty thousand cases of AIDS have been reported in the United States since the disease wasfirst described in 1981. Many times this number of people are infected with human immunodeficiency virus (HIV), which has been identified as the agent responsible for the illness. The seriousness of the disease, coupled with the relatively rapid spread of HIV, has fueled the effort for development of an effective vaccine.

Much is now known about the life cycle of the virus, and about its structural components. This information, and information about methods of transmission of the virus, form the basis for a …

Understanding The Psychological Impact Of Aids: The Other Epidemic, Marshall Forstein

New England Journal of Public Policy

HIV has created two epidemics, one of disease, the other the consequence of the psychological response to that disease. Thus far, behavioral change is the only effective means of interrupting the transmission of HIV. The underlying psychological dimensions of the societal and individual responses to AIDS are discussed, with suggestions for how both rational thinking and irrational fears and anxiety contribute to the development of public policy. Examples are given of how short-term solutions to reduce anxiety may actually create long-term problems, potentially increasing the risk of transmission of HIV. Specific psychological mechanisms that contribute to the epidemic of fear …

Aids: An Overview, Loretta Mclaughlin

New England Journal of Public Policy

"We stand nakedly in front of a very serious pandemic, as mortal as any pandemic there ever has been," said Halfdan Mahler, director-general of the World Health Organization (WHO). "I don't know of any greater killer than AIDS, not to speak of its psychological, social and economic maiming. Everything is getting worse and worse with AIDS and all of us have been underestimating it, and I in particular. We're running scared. I cannot imagine a worse health problem in this century." When asked to compare AIDS to other epidemics, such as smallpox, that have infected and killed over the course …

Other Journeys, Phillip Dross

New England Journal of Public Policy

Phillip Dross was a writer. He was forty-three years of age when he died of AIDS in January 1987. Four years earlier, he had come to Newburyport, Massachusetts, to live and to face hard realities about himself — the legacy of a painful, confusing childhood in Florida, where he grew up, bouts with alcoholism, and his own shortcomings as a writer, for although he drove his friends to distraction talking about writing, he could not endure long hours alone, especially at the typewriter.

He made progress — the slow, plodding progress that characterizes the struggle within oneself that can be …

Neuropsychiatric Complications Of Hiv Infection: Public Policy Implications, Alexandra Beckett, Theo Manschreck

New England Journal of Public Policy

The human immunodeficiency virus (HIV) infects the central nervous system (CNS), causing symptoms in most persons with AIDS-related complex (ARC) and AIDS, and in a significant proportion of those classified as asymptomatic seropositive. The most common clinical syndrome secondary to CNS infection is known as HIV encephalopathy. When sufficiently disabling, HIV encephalopathy is known as AIDS dementia, and must be reported to the Centers for Disease Control as a case of AIDS.

AIDS dementia is a complex of cognitive, affective, behavioral, and motor symptoms which varies widely in its presentation. In some persons, cognitive impairment predominates, manifesting in a loss …

Aids And A-Bomb Disease: Facing A Special Death, Chris Glaser

New England Journal of Public Policy

In 1979 it was called "gay cancer," and it took the life of an acquaintance. Then "gay-related immune deficiency," or GRID, claimed neighbors, friends of friends, fellow activists. I began grief and death counseling with a segment of the population ordinarily concerned with life's ambitions and enjoyments: men in their twenties and thirties. Hospital visits and memorial services became more frequent.

By 1983, when it had come to be called AIDS, my own friends began to be affected. One was a man I dated in seminary, and I was devastated to learn of his illness only upon receiving a notice …

The Role Of Education In Aids Prevention, George A. Lamb, Linette G. Liebling

New England Journal of Public Policy

The severity of the current AIDS epidemic, combined with the lack of successful biological interventions, necessitates an active educational program as the primary intervention strategy. Health education theories abound, but relatively little definitive application of these theories has been made to the issues involved with HIV transmission: sexual behavior and the sharing of intravenous drug apparatus. Significant behavior changes have occurred in some people, but the consistency of the behavior change may be difficult to sustain. Thus, the authors suggest that health education should be delivered repeatedly in culturally acceptable language and format, by community leaders, and through many different …

Accounts Of An Illness: Extracts, Ron Schreiber

New England Journal of Public Policy

The following pieces, with an introduction by the author, are from a work in progress entitled John, to be published in the fall of 1988 by Hanging Loose Press and Calamus Books, New York City. In this work, Ron Schreiber, John's lover of nine years, writes a chronicle of a terminal illness from diagnosis to death.

Ron Schreiber's poems first appeared in Radical America's "Facing AIDS," a special issue devoted to AIDS.

Politics And Aids: Conversations And Comments, Steven Stark

New England Journal of Public Policy

As AIDS has emerged as a medical and social concern, it has become a political issue as well. In a series of interviews, we asked some leading authorities for their opinions on how AIDS is emerging as a political issue, particularly during the campaign of 1988. In all cases, the comments that follow represent an edited version of their remarks. Those participating were Ronald Bayer, director of the Project on AIDS and the Ethics of Public Health at the Hastings Center; William Schneider, resident fellow at the American Enterprise Institute; Jonathan Handel, a gay activist and a member of the …

The Clinical Spectrum Of Hiv Infections: Implications For Public Policy, Kenneth H. Mayer

New England Journal of Public Policy

The term acquired immunodeficiency syndrome (AIDS) is a definition developed by the Centers for Disease Control to explain the epidemic of immunosuppression first seen in the United States among gay and bisexual men and intravenous drug users in the early 1980s. It is now known that the human immunodeficiency virus (HIV) is the necessary agent for the compromise of the immune system which results in AIDS; however, there is a wide range of manifestations associated with HIV infection. Individuals with AIDS tend to have severe opportunistic infections or malignancies, and the vast majority ofindividuals die within two years after the …

The Hiv Seropositive State And Progression To Aids: An Overview Of Factors Promoting Progression, Paul H. Black, Elinor M. Levy

New England Journal of Public Policy

We have considered factors that predispose to infection by the human immunodeficiency virus as well as the clinical consequences of infection. We have also reviewed what is known about the virological status of the asymptomatic carrier, particularly the female, and the fact that pregnancy may be a cofactor for progression of HIV disease in seropositive women. Additionally, we have discussed several other cofactors that may promote the progression of HIV infection. These include intercurrent infection, excessive use of recreational drugs and alcohol, malnutrition, and stress. With respect to stress, we have reviewed evidence indicating that certain personality factors, by buffering …

Hiv Antibody Screening: An Ethical Framework For Evaluating Proposed Programs, Ronald Bayer, Carol Levine, Susan M. Wolf

New England Journal of Public Policy

The acquired immunodeficiency syndrome (AIDS) poses a compelling ethical challenge to medicine, science, public health, the legal system, and our political democracy. This report focuses on one aspect of that challenge: the use of blood tests to identify individuals who have been infected with the retrovirus human immunodeficiency virus (HIV). In this article, we follow the terminology recently proposed by the International Committee on the Taxonomy of Viruses; that is, we use the term human immunodeficiency virus. This replaces the more cumbersome dual terminology of human T-cell lymphotropic virus type III/lymphadenopathy-associated virus (HTLV-III/LAV).

The issue is urgent: the tests are …

Hiv Antibody Testing: Performance And Counseling Issues, Michael Gross

New England Journal of Public Policy

This article assesses the performance of currently used tests for exposure to human immunodeficiency virus (HIV), the infectious agent associated with acquired immunodeficiency syndrome (AIDS); suggests, in view of that information, guidelines for counseling people seeking HIV antibody testing; and evaluates the claim that because antibody test results will effect behavior change in those who are infected, all members of high-risk groups should be tested.

HIV testing is likely to yield a high proportion of false-positive results in low-risk populations and infants born to infected mothers. A negative result may not establish freedom from infection in high-risk groups or the …

Ethical Issues In Aids Research, Michael A. Grodin, Paula V. Kaminow, Raphael Sassower

New England Journal of Public Policy

There is a need for carefully controlled and scientifically rigorous research studies of the acquired immunodeficiency syndrome (AIDS). The morbidity and mortality associated with AIDS patients and the public health concerns for control of this epidemic have distorted the usual process of research. The Institutional Review Board at Boston City Hospital is suggested as an appropriate mechanism for clarifying the distinctions between research and innovative therapies and for assuring the protection of this vulnerable population of research subjects. This article addresses ethical concerns relating to the time frame of research, drug and antibody testing, vaccine trials, and questions of justice …

The Aids Epidemic: A Prism Distorting Social And Legal Principles, Alec Gray

New England Journal of Public Policy

The AIDS epidemic is affecting American society in far-reaching and unexpected ways. It touches our institutions, our value systems, and our private lives. Social issues seem to change and become distorted by the epidemic 's prismlike effect. This article examines some of the major public health issues raised by the epidemic, ranging from testing to contact tracing and quarantine. It argues that while the civil rights of individuals may have to be sacrificed to stem the spread of the disease, those rights should not be abandoned unless a clear benefit to the public health would result.

Issues of discrimination in …

We Were There, Irene Burns

New England Journal of Public Policy

Irene Burns and Robin Macdonald are friends. Neither knew Mitchell Holsman or Gretta Wren. And neither did Mitchell or Gretta know each other. All four live and work in New York City — Irene as a telecommunications consultant; Robin as a paralegal; Gretta as an office administrator; and Mitchell as a fashion designer — and all four were friends of John Krieter. It was the love inspired by that friendship that brought them together to care for him. He died of AIDS on January 24, 1988.

Behavioral Change In Homosexual Men At Risk Of Aids: Intervention And Policy Implications, Suzanne B. Montgomery, Jill G. Joseph

New England Journal of Public Policy

With more than fifty thousand cases of acquired immunodeficiency syndrome (AIDS) diagnosed since its initial recognition in 1981 and no cure or vaccine in sight, experts agree that prevention is of the utmost importance. Yet very little research has investigated how existing social-psychological and health behavioral knowledge can be applied to the special circumstances of programmatic responses to AIDS. One of the central aims of our own research group has been to describe the psychosocial determinants of successful behavioral risk reduction among homosexual men, the largest affected group. This work is reviewed and its implications for the development of intervention …