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A Narrative Inquiry Into The Life Of A Mother For A Child With Developmental Disabilities, Ohsun Chang, Jaeyoung Hong, Byungun Jeon May 2024

A Narrative Inquiry Into The Life Of A Mother For A Child With Developmental Disabilities, Ohsun Chang, Jaeyoung Hong, Byungun Jeon

The Qualitative Report

This study explores the life story of Jane, who has an adult child with developmental disabilities and who serves as the director of a community welfare center for people with developmental disabilities in South Korea. To this end, this study used narrative inquiry methodology. The experience of a parent was described in terms of the following themes: (i) Narrative experience as a parent in a family: The irony of life—living in a place where guilt and desire coexist, Sub theme: Building up a broader window of communication; (ii) Narrative Experience as the head of an institution: Learning betrayal and making …


Building Neuro-Inclusive Community, Strengthening Mental Health: The Autism After 21 Utah Project, Sumiko T. Martinez, Anna Smyth, Ann C. Carrick Apr 2024

Building Neuro-Inclusive Community, Strengthening Mental Health: The Autism After 21 Utah Project, Sumiko T. Martinez, Anna Smyth, Ann C. Carrick

Developmental Disabilities Network Journal

Over two decades of research shows strong positive relationships are a consistently powerful indicator of wellbeing and resilience. However, the U.S. Surgeon General notes that loneliness and isolation is an epidemic in the U.S., and that it is exacerbated for individuals with physical and mental disabilities as well as those with isolating economic or environmental situations. A recent review shows that many autistic adults in particular face challenges in finding the connections they want and need. They also often have compounding mental health conditions, such as depression and mental illness, lower incomes, isolating home environments due to a lack of …