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Caring For Children With Severe Cerebral Palsy: The Lived Experience Of Parents, Jason Eric Cook
Caring For Children With Severe Cerebral Palsy: The Lived Experience Of Parents, Jason Eric Cook
Department of Physical Therapy Student Theses, Dissertations and Capstones
The purpose of this study is to explore the lived experience of parents who care for their child withcerebral palsy who function at Gross Motor Function Classification System (GMFCS) Level V. Additionally, the study also explores the parent’s understandings and beliefs about pain and non-pain related emotional distress, and the meaning of caring, providing care, and providing comfort for their child with GMFCS Level V cerebral palsy. The study was conducted using a qualitative, hermeneutic phenomenology approach with semi-structured interviews and participant-initiated journaling. The study included 11 participants who are caregiving parents of their child with GMFCS Level V cerebral …