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University of New Mexico

2022

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"Sometimes You Just Want To Be Another Parent And Another Kid At The Party": Exploring Parental Narratives Surrounding Disclosure Of Child's Epilepsy, Lisa German Jul 2022

"Sometimes You Just Want To Be Another Parent And Another Kid At The Party": Exploring Parental Narratives Surrounding Disclosure Of Child's Epilepsy, Lisa German

Communication ETDs

Epilepsy is currently the fourth most common neurological disorder in the world (Epilepsy Foundation, 2022). However, it is largely misunderstood by both the public and those with epilepsy. In addition, epilepsy is still a stigmatized condition in most areas of the world.

In part due to the stigma, as well as the impact on quality of life factors, disclosure of an epilepsy diagnosis can be a struggle for those with epilepsy as well as their parents or caregivers. Therefore, this study explored disclosure challenges faced by parents of children with epilepsy, utilizing Communication Privacy Management theory and Stigma Management Communication …