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Undesirable Implications Of Disclosing Individual Genetic Results To Research Participants, Leslie Meltzer Henry
Undesirable Implications Of Disclosing Individual Genetic Results To Research Participants, Leslie Meltzer Henry
Faculty Scholarship
The bioethics and legal community are divided over whether investigators who conduct biomedical research are ethically and/or legally obligated to disclose incidental genetic findings to research participants. This paper argues that the justification for disclosure rests on the mistaken view that principles of beneficence, respect, reciprocity, and/or justice require researchers to offer participants individual genetic results. Whereas these principles and others obligate physicians to share individually relevant results with patients with whom they share a fiduciary relationship in the clinical care setting, they do not similarly obligate investigators to share such information with participants in the research setting. Furthermore, proposals …
Collaborative Action Research: Making It Happen, Victoria Traynor, Phillipa Baker, Joanna Defriez, Wilna Dirkse Van Schalykwyk, Julie Mcgarry, Deborah Thompson, Ruth Bartlett
Collaborative Action Research: Making It Happen, Victoria Traynor, Phillipa Baker, Joanna Defriez, Wilna Dirkse Van Schalykwyk, Julie Mcgarry, Deborah Thompson, Ruth Bartlett
Faculty of Health and Behavioural Sciences - Papers (Archive)
No abstract provided.
Setting Directions For Research Capacity Building In Primary Health Care: A Survey Of A Research Network, Karin Ried, Elizabeth Farmer, Kathryn M. Weston
Setting Directions For Research Capacity Building In Primary Health Care: A Survey Of A Research Network, Karin Ried, Elizabeth Farmer, Kathryn M. Weston
Graduate School of Medicine - Papers (Archive)
Background
The South Australian Research Network 'SARNet' aims to build research capacity in primary health care, as part of a national government-funded strategy to integrate research into clinical practice. Internationally, research networks have been a fundamental part of research culture change, and a variety of network models exist. The 'SARNet' model uses a whole system, multidisciplinary approach to capacity building and supports individuals and groups. We undertook a descriptive baseline survey in order to understand the background and needs of SARNet members and to tailor network activities towards those needs.
Methods
A questionnaire survey, assessing members' professional background, research experience, …
Research Annual Report 2005, Children's Mercy Hospital
Research Annual Report 2005, Children's Mercy Hospital
Research Annual Reports
Annual report of the research at Children's Mercy Hospital in Kansas City MO, a pediatric medical center.