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Rethinking Autism, Communication, And Community Involvement: Exploring Involvement In Online Communities, Communication Preference, Autistic Identity, And Self-Determination, Colleen Anne Kidney
Rethinking Autism, Communication, And Community Involvement: Exploring Involvement In Online Communities, Communication Preference, Autistic Identity, And Self-Determination, Colleen Anne Kidney
Dissertations and Theses
Autistic individuals experience marginalization and stigmatization, and are often not connected to mainstream services or organizations fostering peer relationships (Boundy, 2008; Jaarsma & Welin, 2012; Robertson, 2010). Therefore, the accomplishments of the online Autistic community in building a community for self-advocacy, peer-support, friendships, and identity development (Brownlow & O'Dell, 2006; Kidney, 2012) are important to recognize, empirically examine, and promote (Blume, 1997a; Davidson, 2008). Utilizing a community-based participatory research approach (CBPR; Israel, Schulz, Parker, & Becker, 1998) the Academic Autistic Spectrum Partnership in Research and Education (AASPIRE; www.aaspire.org) conducted the AASPIRE Internet Use, Community, and Well-Being Study, and collected …
Intersections Of Critical Systems Thinking And Community Based Participatory Research In Developing A Web Site For Autistic Adults, Dora Madeline Raymaker
Intersections Of Critical Systems Thinking And Community Based Participatory Research In Developing A Web Site For Autistic Adults, Dora Madeline Raymaker
Dissertations and Theses
People with disabilities, including those on the autism spectrum, comprise the world's largest minority and experience significant inequities in Internet use. Existing standards for accessible web sites are necessary but not sufficient without the direct engagement of end users in identifying access needs. Yet little is known about methods for effective engagement, and there are no systematically derived Web accessibility guidelines for autistic end users. Here I explore a hybrid approach to direct engagement using critical systems thinking (CST) and community based participatory research (CBPR) during the co-development of a healthcare-focused web site by the Academic Autism Spectrum Partnership in …