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Neuropsychological Functioning, Parenting Behaviors, And Healthcare Behaviors Among Youth With Spina Bifida, Lauren Kelly O'Hara

Dissertations

Objective This study was designed to examine whether neurocognitive functioning (attention and executive functions) and parenting behaviors (acceptance, behavioral control and psychological control) are associated with medical adherence and autonomy among preadolescents and adolescents with spina bifida. Methods Questionnaire and observational data were collected from a sample of 8 to 15 year olds with spina bifida (n = 139) and their mothers, fathers, and teachers. Youth also completed neuropsychological testing. Results Youth with spina bifida demonstrated impairment on measures of attention and executive function, based on questionnaire and test data. Attention, executive function, and parenting behaviors were associated with medical …

Agreement And Disagreement In Parent And Child Perceptions Of Spina Bifida Medical Responsibilities During The Transition To Adolescence, Alexandra Psihogios

Master's Theses

The purpose of this study was to examine the validity of informant discrepancies by evaluating levels of parent-child agreement and disagreement over who takes responsibility for SB medical tasks in relation to family conflict and medical adherence. Participants were 140 preadolescents with SB. Data used in this study are taken from the first wave of data collection (when adolescents were between the ages of 8-15) in a larger longitudinal study. Although disagreement levels predicting family conflict and medical adherence were non-significant (p > .05), a significant main effect of agreement and two significant Agreement x Conflict interactions predicting medical adherence were …

Autonomy Through Social Skill Development: A Camp Intervention For Young People With Spina Bifida, Lauren Nicole Zurenda

Dissertations

Spina bifida is a complex condition that presents multiple physical and psychosocial challenges to autonomy development. Pediatric psychology may play a role in promoting autonomy development in this population through the implementation of empirically-supported, developmentally-appropriate, and syndrome-specific interventions. The current study was one attempt to meet the need for such interventions.

This study represents one step in a line of intervention research designed to promote autonomy gains among young people with spina bifida. Its purpose was to evaluate a manual-based curriculum as a part of a one-week long overnight camp exclusively for young people with spina bifida. It was hypothesized …