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Beyond Safe Harbor: Risk Of Exposing Location In De-Identified Clinical Data, Alfred J. Anzalone, Carol Reynolds Geary, James C. Mcclay
Beyond Safe Harbor: Risk Of Exposing Location In De-Identified Clinical Data, Alfred J. Anzalone, Carol Reynolds Geary, James C. Mcclay
Posters and Presentations: Neurological Sciences
The use of de-identified EHR data for clinical and translational research has increased significantly since the HIPAA Privacy Rule De-Identification standards went into effect -Inclusion of SDOH measures in de-identified research is increasing as well, which presents an inherent risk of re-identifying PHI (primarily location units smaller than the state) -Data warehouse architecture and institutional policies need to recognize the risk associated with providing multiple location-based indices -Research interests are secondary to privacy concerns throughout biomedical research, but particularly in de-identified research, which is intended to promote more secure access to EHR data while allowing for expedient access (fewer institutional …
Maintenance Of Onc Terminology For I2b2 Metadata, James Campbell, Alfred J. Anzalone, Jay Pedersen, James C. Mcclay
Maintenance Of Onc Terminology For I2b2 Metadata, James Campbell, Alfred J. Anzalone, Jay Pedersen, James C. Mcclay
Posters and Presentations: Emergency Medicine
ONC terminologies are constantly adding new content and deactivating existing codes. The University of Nebraska Medical Center (UNMC) deploys three primary code sets that require regular updating to support research: SNOMED CT, RXNORM / NDC, and LOINC. A problem across the i2b2 community is keeping these terminologies up-to-date and loading them into i2b2 for timely analysis of EHR data. We have developed tool kits for rapid deployment of SNOMED CT metadata and will be extending the work to RXNORM/NDC and LOINC.