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"I Stayed There The Whole Night": Exploring Caregivers' Experiences With The Healthcare System When Caring For A Parent At The End Of Life, Lillian Mehran

Dissertations and Theses

Background: In the United States, there are nearly 53 million individuals serving as caregivers to a loved one. Half of all caregivers are caring for a parent or parent-in-law, and 79% of caregivers are caring for a person aged 50 or older. In New York State, there are an estimated 4.1 million caregivers who collectively provide over 2.6 billion hours of unpaid care, with those caring for a person at the end of life providing twice as many hours of caregiving per week compared to other caregivers. The number of individuals requiring caregiving is expected to increase as a significant …

A Look Towards The Future Of Eldercare: Lessons Learned From Social Care Models In Japan, Caroline M. Steil

Honors Theses

The rapidly accelerating trend of population aging is redefining the state of eldercare globally, as every country is currently or will soon face a gap in the excess demand for care versus the scarce supply of caregivers, both formal and informal. Specifically, there is a decrease in the number of elders seeking care through a family member as well as less caregivers in institutions to provide care for elders. Japan is at the vanguard of this caregiving gap, and thus provides key lessons, particularly from two innovative models of eldercare: Ibasho, a grass-roots, non-profit organization, and Japan's Long-Term Care Insurance …

Care Infrastructure Accessibility And The Gender Wage Gap – A Way To Improve Women’S Ability To Equitably Engage In The Paid Labor Market?, Julia Schinnenburg

Electronic Theses and Dissertations

World-wide, women are less integrated into the labor force than men and if they are, they earn considerably less on average. This unequal treatment of women results in negative consequences for all members of society, as it harms women’s financial realities and also affects women’s care receivers due to a lack of resources that women can spend on their care giving. The research presented analyses how much the institution of better accessible care infrastructure could improve women’s ability to work for pay and decrease their daily workloads. The extent to which improved care infrastructure accessibility affects women’s lives is determined …

Stay-At-Home Fathers: What Is Their Life Really Like? An Intimate Portrayal, Christi Ann Hosking

MSU Graduate Theses

Reinforced by years of gender stereotypes is modern societies’ definition of masculinity, which has long been characterized by breadwinning and providing. Current literature has observed the growing trend which finds an increasing number of men engaged in the role of caregiver and the dynamic change in the home-work balance. Only a few studies looked at what life is like for a stay-at-home father and even fewer have allowed these fathers a unique voice for sharing their story. The purpose of this study was to gain an in-depth understanding of what day to day life was really like as a stay-at-home …

Intersectionality, Relational Positionality, And The Lived Experiences Of Inequality: Contextualizing Intergenerational Opioid Use And The Constrained Choices Of Indigenous, Latina, And White Women Caregivers In Rural New Mexico, Carmela M. Roybal

Sociology ETDs

Opioid addiction is a serious and persistent global health issue. The federal Centers for Disease Control and Prevention (CDC) reported that between 1999 and 2016, more than 630,000 people in the United States died of an overdose of a prescription opioid or illicit drug (CDC 2018). Extant research has suggested that for nearly a century, New Mexico has experienced some of the highest rates of prescription and illicit opioid death in the nation (Goldstein and Herrera, 1995; Landon, 2003; Shah et al., 2008). I examined intergenerational opioid dependence through the lived experience of women caregivers of opioid-addicted family members. Data …

Emotion Identification And Beliefs About Emotions As Mediators Of Ptsd And Parenting Meta-Emotion Philosophies, Maegan Calvert

Graduate Theses and Dissertations

Approximately 20% of women are sexually victimized and incarcerated women’s rates of victimization are much higher. In addition, women have a higher rate of PTSD and trauma-related sequelae than men. Interpersonal trauma experiences can have a negative impact on emotional processes such as alexithymia, recognizing others’ emotions, and healthy beliefs about emotional experiences. These difficulties are associated with problematic parenting. However, the mediational processes by which PTSD and disruptive emotional processes affect parenting is unclear. The current study examines the associations among PTSD, alexithymia, negative beliefs about emotions, emotion recognition in children, and parenting meta-emotion philosophies in incarcerated women presenting …

Fathers’ Caregiving In Fragile Families: Variation By Family Contexts, Gender Ideology, Race And Ethnicity, Rachel Teressa Macfarlane

UNLV Theses, Dissertations, Professional Papers, and Capstones

Using data from the Fragile Families and Child Well-Being Study, I explore factors that predict fathers’ caregiving for children up to five years old. I study the role of social contexts in fathers’ caregiving trajectories for their young children, including family dynamics and parent’s gender ideology, across ethnoracial groups. I use OLS regressions to investigate how fathers’ early caregiving experiences, their linked-lives with others, and their attitudes about the fatherhood role predict later caregiving for their children, and how those patterns very between families with different ethnoracial backgrounds. I use summed averages of itemized caregiving by fathers, rather than proxy …

The Role Of Workplace Supervisor Support In Cargivers' Marital Relationships, Kenona H. Southwell

Open Access Dissertations

Family caregivers make important contributions to care recipients and the economy. However, providing care for ill or disabled family members can be challenging, particularly when the role of caregiver is accompanied by additional roles such as employee, spouse, and parent ( Hammer & Neal, 2008). There is some evidence that the demands of caregiving may negatively influence the quality of caregivers’ marriages (Bookwala, 2009). Much of caregiving research, however, is focused on the influence of caregiving and multiple caregiving roles on caregivers’ health (see Pinquart & Sörensen, 2011), but less attention has been paid to other aspects of caregivers’ lives …

Parent Participation In Child Therapeutic Settings, Robert Doss

All Graduate Theses, Dissertations, and Other Capstone Projects

Researchers agree that more caregiver participation and higher levels of engagement in child therapeutic settings lead to better outcomes. However, challenges arise in families of low socioeconomic status (SES) where resources are already spread thin. The current study evaluates the efficacy of implementing a single caregiver participation session during an eight-week physical activity and play group for kids aged 6 to 9 years old. Results indicate that the group as a whole is useful in improving some emotional and behavioral issues in children, but the participation session did not seem to have an impact on improvement. A discussion of results, …

The Role Of Unpaid Volunteers In A Group Caregiving Approach : Validation Of The Sharetm The Care Program, Amy Hegener

Legacy Theses & Dissertations (2009 - 2024)

The growing population of older adults will lead to a change in the age structure in the United States, with older people outnumbering younger people for the first time. The changing age structure will affect the current workforce and place demands on the health and long term services and supports system. Moreover, with the suspension of many government programs and hospitals working to cut readmissions the burden on caregivers is increasing. On the other hand, the new generation of older adults will be healthier and better educated than previous generations. They are expected to be more productive and civically engaged, …

Relationship Between Stress Burden And Perceived Support Among Elderly Male Spousal Caregivers, Stephanie Fitzsimmons Sexton

Walden Dissertations and Doctoral Studies

As older couples age, often one partner becomes more competent and able to care for the other, in which case they are able to remain in their homes. In one township in the northeastern United States, the caregiving role had a significant effect on the lives of elderly men who care for their wives. The purpose of this quantitative project study was to determine the relationship between perceived stress burden and perceived level of social support services and between perceived stress burden and use of support services by elderly male spousal caregivers residing in active adult communities. Watson's theory of …

"They're Our Bosses": Representations Of Clients, Guardians, And Providers In Caregivers' Narratives, Dina Vdovichenko

USF Tampa Graduate Theses and Dissertations

The purpose of this study is to examine how various characters are portrayed within the self-narratives of women who are employed to care for adults with disabilities. This research looks at how these women's personal narratives construct characters-their clients (the individuals they provide services for), clients' guardians, and how these women portray themselves as caregivers. Interviews were conducted with eight women who provide paid care services to physically and/or cognitively impaired adults who receive services through the Florida Developmental Disabilities Home and Community Based Services Waiver Program. This program endorses specific expectations about the nature and purpose of caregiving. According …

Beyond The Door: Disability And The Sibling Experience, Morgan Violeta Sanchez Taylor

USF Tampa Graduate Theses and Dissertations

This thesis explores the experiences of adult siblings of individuals with impairments. It expands on the existing literature by exploring the complexity of the sibling experience of disability while moving beyond the concepts of burden and maladjustment that have characterized much of the previous literature. In addition, it expands upon and extends to the sibling experience an emerging view of disability by examining the ways in which themes identified in sibling narratives cross lines between the Medical and Social Models of Disability. Building on work by Mark Priestly and Tom Shakespeare, I call this emerging view the Interactional Model of …

Caregiving And The Work-Life Balance; The Impact Of Gender Expectations On Employed Parent Caregivers, Meghan Amato

Dissertations and Theses

The purpose of this research is to understand how men and women differ in how they handle the division of caregiving for aging parents and children and work responsibilities. Previous literature states that gender differences in caregiving exist due to the structure of the workforce and family. The workforce is often inflexible concerning employees’ personal schedules and is more welcoming for individuals who do not have to compromise career with family responsibilities. Often, one spouse must curtail his or her career to make time for child or parent care. Care work is typically seen as a “feminine” job and often …

Adult Grandchildren Providing Care To Frail Elderly Grandparents, Tamara Lynn Smith

Legacy Theses & Dissertations (2009 - 2024)

A larger proportion of adult grandchildren today have grandparents still alive than in any previous historical era. An older grandchild implies an older grandparent -- and, as chronic illnesses increase with age, these grandparents are likely to be ill. Little attention has been given to the dynamics of the grandchild-grandparent relationship in the face of illness of the grandparent, although demographic shifts indicate that most grandchildren and their grandparents will share a period of time during which the grandparent is suffering from a chronic illness. This dissertation examines adult grandchildren who provide regular assistance to a grandparent with health limitations. …

An Examination Of Caregiving Dyads: Community Dwelling Chronically Ill Older Adults And Their Caregivers, Jessica E. Haxton

Electronic Theses and Dissertations

Increases in life expectancy among older adults raise important concerns about the availability of resources for an aging population living with chronic and debilitating illnesses. Living longer is complicated by the fact that many elders prefer to reside in their homes until medical or other conditions require an alternative living arrangement. The strong desire to remain at home expressed by older persons in the United States has in turn created an increased demand on informal caregiving. Consequently, adult children often bear the burden of providing care to their aging parents. In view of this demand it is critical that research …

Black And White Women In Blue: A Case Study Of Policewomen, Danielle Marie Teunion-Smith

Wayne State University Dissertations

This exploratory study examines the policing experiences of fourteen African American and White female police officers using interviews and observations. There is ample research that addresses the ability of women to perform policing duties, but most of the literature presumes that White and African American policewomen are a single aggregate. These ignored societal differences and social realities of black and white policewomen, based on distinctive assigned social positions, histories, images and location, possibly contribute to different perspectives and experiences in law enforcement. These same social realities shape occupational positions, perspectives, perceptions, and treatment within law enforcement organizations. There are broad …

Financing Home And Community-Based Long-Term Care: Adult Children Caregiver Perspectives, Patricia K. Davis

All Graduate Theses and Dissertations, Spring 1920 to Summer 2023

Large numbers of baby boomers and a shift towards home-based long-term care designate a need for a greater understanding of caregiver attitudes surrounding the financing of long-term home-based care. This study examined more fully the types of home-based long-term care services that family caregivers were utilizing for their parents. In addition, the willingness and ability of caregivers to privately fund these services for aging parents were explored.

The study utilized a preexisting data set of qualitative interviews that were conducted with 30 family caregivers helping to provide long-term care for an elderly parent or older-generation relative. Participants in the sample …

Changes In Formal-Informal Caregiving In Elderly Stroke Survivors, Holly Anne Beard

Health Services Research Dissertations

The purpose of this study is to determine the extent to which the Andersen and Aday Model of Health Services Use to predict cross-sectional and longitudinal differences in the caregiving source among stroke survivors (n=477) over a six-year period. This study involves a secondary analysis of a longitudinal panel study focusing upon three waves of interview data from the HAS/AHEAD study spanning 1998 through 2002. Multinomial logistic regression was utilized to examine caregiving source cross-sectionally at each wave. Clustered multinomial logistic regression was used to examine relationships between predictor variables in the model and caregiving source across waves while holding …

Who Helps In A Crisis: Differentiating Among Adult Children As Sources Of Support For Their Caregiving Mothers, Michael J. Patterson

LSU Master's Theses

This thesis uses a combination of quantitative and qualitative data collected from 134 mothers about their relationships with 381 adult children during the first few months after the mothers began caring for a spouse or older parent. Building on a framework that draws on theories of social structural similarity, I anticipated that adult children who shared more social statuses with their parents would be more likely to be sources of emotional and instrumental support and less likely to be sources of interpersonal stress to their caregiving mothers. Multivariate analyses revealed no effects of structural similarity and few effects of other …