Digital Commons Network^™

Increasing Nursing Aide Knowledge On Benefits Of Light For Sundowning Syndrome, Grace Hilfiker, Julie Masters

Honors Theses

In this study, the knowledge of nursing aides on the benefits of light for sundowning syndrome was investigated. While dementia and sundowning syndrome is discussed during nursing aide training in the state of Nebraska, there is no discourse focused on how light plays beneficial role in lessening the symptoms of sundowning syndrome for those who are afflicted with dementia. This study asked what the current knowledge base surrounding dementia and sundowning syndrome is of nursing aides in the state of Nebraska. The aim was to justify adding a focus on concrete methods to use when caring for patients with dementia …

Improving Dementia Symptoms Through Personalized Music, Lindsay Grainger

SC Upstate Research Symposium

Alzheimer's disease and related dementia (ADRD) is a prevalent, costly, and complicated disease. With over 6 million Americans affected and the cost of treatment soaring to over $320 billion dollars annually, there is a growing need for low-cost interventions to treat symptoms. Routinely listening to personalized music selections has been shown to reduce agitation—the most common symptom of Alzheimer’s disease and related dementia. The purpose of this study was to provide a personalized music listening (PML) intervention of thirty minutes to 10 nursing home residents with dementia. Thirty-minute PML sessions occurred multiple times a week over six weeks. The inclusion …

What Factors Increase Risk Of Alzheimer's Disease And Related Dementia?, Elizabeth Vásquez, Kai Zhang

Population Health Research Brief Series

Alzheimer’s disease is the most common form of dementia and ranks 7th in the leading causes of death in the United States (U.S.). This data slice uses nationwide data from 3,155 counties in the U.S. to identify the factors that best predict county-level rates of Alzheimer’s Disease and Related Dementias (ADRDs) in 2018. The results indicate that insufficient sleep, consuming less than one serving of fruits and vegetables per day, having no high school diploma, Black population percentage, and social vulnerability were among the leading factors predicting county-level ADRD prevalence.

Craftivism As Inquiry: Holding Life’S Threads, Chloe Watfern, Gaynor Macdonald, Michele Elliot, Lynne Stone, Imelda Gilmore, Manuel Tecson, Najla Turk, Penny Bingham, Jane Mears, Ann Dadich, Barbara Doran, Katherine Boydell, Sarah Wallace

The Qualitative Report

In this article, we share insights regarding an arts-based research project where carers of people with dementia conveyed their experiences in cloth. Carers face high rates of mental ill health and burnout, while forming a largely undervalued and unrecognised workforce. Through this project, carers’ knowledge was valued and amplified using an innovative methodology – craftivism. During a series of five workshops in 2021, a small group of carers, researchers and artists gathered online to develop an exhibition of craftivist textile works. They evoked the complexity of their makers’ journeys supporting loved ones at the end of life, finding joy and …

Perceptions Of Acute Care Telemedicine Among Caregivers For Persons Living With Dementia: A Qualitative Study, Anita Chary, Norvin Hernandez, Ana Paulina Rivera, Vivian Ramont, Tracey Obi, Ilianna Santangelo, Christine Ritchie, Hardeep Singh, Emily Hayden, Aanand D Naik, Shan Liu, Maura Kennedy

Journal Articles

Persons living with dementia (PLWD) have high emergency department (ED) utilization. Little is known about using telemedicine with PLWD and caregivers as an alternative to ED visits for minor acute health problems. This qualitative interview-based study elicited caregivers' perspectives about the acceptability of telemedicine for acute complaints. We performed telephone interviews with 28 caregivers of PLWD from two academic EDs, one in the Northeast and another in the South. Using a combined deductive-inductive approach, we coded interview transcripts and elucidated common themes by consensus. All caregivers reported they would need to participate in the telemedicine visit to help overcome communication …

How Marital Stress May Affect The Onset Of Dementia In Older Adults, Khunza Asma

All Graduate Theses, Dissertations, and Other Capstone Projects

Marital stress has been identified as a significant factor influencing the cognitive health of older adults, with emerging evidence suggesting a potential link between marital discord and the risk of developing dementia. This study will review the existing literature on the relationship between chronic stress, depression, marital discord, and the development of cognitive impairment which can increase the risk of developing dementia in older adults. However, the purpose of studying how marital stress affects the onset of dementia is to deepen our understanding of the complex interplay between psychosocial factors and cognitive health in older adults, with the ultimate goal …

Male Caregiver Strain: The Mental Effects Of Being An Informal Caregiver For A Family Member With Dementia And Alzheimer's Disease, Alessandra M. Barillas, Elijah Rammel B. Borja

Nursing | Student Research Posters

Background: Caregivers are vital in fulfilling patients' primary care needs, and families prefer them over sending their loved ones to skilled nursing facilities (SNFs). Alzheimer's Disease and Dementia are prevalent conditions necessitating continuous assistance due to memory and cognition impairments. As a result, support is essential for tasks like mobility, feeding, bathing, and perineal care, as well as emotional and physical challenges inherent in caregiving. Purpose: Upon diving into the mental health impacts of serving as an informal caregiver for individuals with Alzheimer's Disease and Dementia, a notable research gap becomes evident, especially concerning male caregivers. This lack of information …

Colonial Drivers And Cultural Protectors Of Brain Health Among Indigenous Peoples Internationally, Rita Henderson, Joyla A Furlano, Shayla Scott Claringbold, Ashley Cornect-Benoit, Anh Ly, Jennifer Walker, Lisa Zaretsky, Pamela Roach

Journal Articles

Despite relatively higher rates of dementia among Indigenous populations internationally, research into drivers of disparities in brain health and cognitive function has tended to focus on modifiable risk factors over cultural understandings and contextual determinants. By seeking to characterize social and cultural factors that shape brain health and cognition in Indigenous populations, this mini scoping review expands prevailing schools of thought to include Indigenous knowledge systems. This reveals important gaps in culturally aligned care. It also reclaims horizons for research important to Indigenous Peoples that have garnered diminished attention in biomedical approaches. Twenty-three sources were included for data extraction. This …

Implementing An Alzheimer’S And Dementia Library Outreach Program: A Partnership Between The Nebraska Chapter Of The Alzheimer’S Association And Nebraska Libraries, Casey Wilkinson

Theses/Capstones/Creative Projects

This paper focuses on the establishment of an Alzheimer’s and dementia library outreach program in Nebraska, initiated by the Nebraska Chapter of the Alzheimer’s Association. The program aims to address the lack of community resources and support for individuals affected by dementia-related diseases in Nebraska. Extensive research, including interviews with successful library outreach programs globally, informed the program's foundation. A survey distributed to Nebraska libraries had a stellar response rate, with 57 libraries expressing interest in collaborating. An in-depth guide was created and distributed to the interested libraries, outlining program components such as educational programming, support groups, and a designated …

Building An Age & Dementia Friendly Barnstable: An Action Plan, Caitlin Coyle, Beth Rouleau, Shayna Gleason

Center for Social and Demographic Research on Aging Publications

The Town of Barnstable has long-been aware of its aging population and, as a result, has initiated a number of planning processes to advance the livability of the community for all ages---this report documents the Age & Dementia Friendly planning process and associated ideas for action.

Occupational Therapists’ Perspectives On Using The Physical Environment In Skilled Nursing Facilities, Jennie L. Digrado

Walden Dissertations and Doctoral Studies

Occupational therapists (OTs) are among the health care professionals who assist individuals with neurocognitive disorders (NCDs) to engage in self-care and leisure skills in a skilled nursing facility (SNF) environment. Although the SNF environment has been researched, a gap exists regarding how OTs use the built environment to help clients with a NCD engage in self-care and leisure-related activities. The purpose of this qualitative case study was to understand how OTs use the physical environment in a SNF to help individuals with a NCD engage in self-care and leisure related activities. The conceptual framework that guided this study was the …

Occupational Therapists’ Perspectives On Using The Physical Environment In Skilled Nursing Facilities, Jennie L. Digrado

Walden Dissertations and Doctoral Studies

Occupational therapists (OTs) are among the health care professionals who assist individuals with neurocognitive disorders (NCDs) to engage in self-care and leisure skills in a skilled nursing facility (SNF) environment. Although the SNF environment has been researched, a gap exists regarding how OTs use the built environment to help clients with a NCD engage in self-care and leisure-related activities. The purpose of this qualitative case study was to understand how OTs use the physical environment in a SNF to help individuals with a NCD engage in self-care and leisure related activities. The conceptual framework that guided this study was the …

Aging In Middleton: A Community Needs Assessment, Sue Berger, Caitlin Coyle

Center for Social and Demographic Research on Aging Publications

This report describes research undertaken by the Center for Social & Demographic Research on Aging within the Gerontology Institute at the University of Massachusetts Boston, on behalf of the Town of Middleton. The content of this report is meant to inform the Middleton Council on Aging (COA), and organizations that work with and on behalf of older residents of Middleton, for the purposes of planning and coordination of services. Through a process of community engagement and mixed method data collection, the goals of this project are twofold: 1) to inform the planning and design of the future senior center space …

The Impact Of Having Foreign Domestic Workers On Informal Caregivers Of Persons With Dementia: Findings From A Multi-Method Research In Singapore, Qi Yuan, Yunjue Zhang, Ellaisha Samari, Anitha Jeyagurunathan, Tee Hng Tan, Fiona Devi, Peizhi Wang, Harish Magadi, Richard Goveas, Li Ling Ng, Mythily Subramaniam

Research Collection School of Social Sciences

Background: Informal caregivers of persons with dementia (PWDs) sometimes engage foreign domestic workers (FDWs) to support their caregiving journey. However, there has not been much research to establish if this is really beneficial. The current study aims to investigate whether engaging FDWs specifically for caregiving of PWDs truly moderates caregiver stress and to explore caregivers’ experiences of engaging FDWs. Methods: A multi-method study design with a quantitative and qualitative sub-study was adopted. For the quantitative sub-study, 282 informal caregivers of PWDs were recruited. Propensity score matching analysis was used. For the qualitative sub-study, 15 informal caregivers with FDWs were interviewed. …

“We Live On An Island:” Perspectives On Rural Family Caregiving For Adults With Alzheimer’S Disease And Related Dementias In The United States, Heather J. Williamson, Andria B. Begay, Dorothy J. Dunn, Rachel Bacon, Mark Remiker, Yolanda E. Garcia, Michael J. Mccarthy, Julie A. Baldwin

The Qualitative Report

As the United States’ aging population grows, there will be increased prevalence of individuals living with Alzheimer’s Disease and related dementias (ADRD), who largely rely on the support of their family caregivers. Family caregivers residing in rural areas face additional challenges with managing caregiving responsibilities and navigating support services. The purpose of this multilevel phenomenological qualitative study was to explore the assets, unique needs, and resources of rural-residing ADRD caregivers from the caregiver, provider, and policy influencers’ perspectives. The study took place between 2019 through 2021 in northern Arizona, a largely rural and geographically vast area home to caregivers from …

Adult Day Services In Maine: Benefits, Challenges, And Opportunities, Elizabeth Gattine Jd, Eileen Griffin Jd, Kimberly I. Snow Mhsa, Ba

Disability & Aging

In Maine and nationally, adult day services tend to be underfunded and underutilized compared to other types of long term services and supports (LTSS). In part, investment in adult day services is hampered by a lack of standardized data collection and limited research on issues of accessibility, cost-effectiveness, and the impact of adult day services on the broader health system. Lack of uniformity in state regulatory frameworks for licensing, program design, service delivery, and other administrative requirements further complicates cross-state comparisons. Considering these limitations, a key goal of this report is to provide a more detailed and comprehensive understanding of …

Most Home-Delivered Meal Recipients With Dementia Receive Support From Friends And Family, But More Social Activity Is Needed, Claire Pendergrast

Population Health Research Brief Series

Home-delivered meal programs reduce hunger and food insecurity, promote socialization, and improve health and wellbeing for older adults. Regular social support from home-delivered meal drivers, alongside social support from friends and family, may be key to preventing isolation and improving health for older adults with dementia. This research brief shows that home-delivered meal recipients with dementia receive significant support from friends and family, but 83% would like more social activity. To better support older adults with dementia and family caregivers, aging services providers should expand virtual and dementia-friendly social engagement programming.

African-American Lay Pastoral Care Facilitators’ Perspectives On Dementia Caregiver Education And Training, Nik M. Lampe, Nidhi Desai, Tomeka Norton-Brown, Alexandra C. H. Nowakowski, Robert L. Glueckauf

The Qualitative Report

The African-American Alzheimer’s Caregiver Training and Support Project 2 (ACTS 2) is a faith-integrated, skills-training and support program for distressed African American family caregivers of persons living with dementia across Florida. Caregivers participate in a 12-week, telephone-based, skills-building and support program led by faith community workers (i.e., lay pastoral care facilitators) who provide volunteer services to their denominations. In this case study, we examined facilitators’ perspectives and recommendations for supplementary audiovisual and written training materials to optimize group process and goal-setting skills. Utilizing a qualitative approach, we explored facilitators’ needs, experiences in using current training materials, and recommendations for supplementary …

Dementia Care Among Somali Elders, Emmanuel Asante Opoku

All Graduate Theses, Dissertations, and Other Capstone Projects

Caring for persons with dementia is demanding and complicated since there is “no one-size-fits all formula for dementia care. The care needs to be modified to fit the various stages of the condition and each family's unique situation. Racial and ethnic differences place unique demand on all the forms of dementia care; in-home care (IHC), long-term care (LTC), adult day centers(ADC), short term care (STC) and hospice care (HC).

This paper aimed to study how Somali elders think and interact with dementia care services, from in-home care to hospice care. Some recommendations to study this issue is to do a …

The Physiological Factors Of Diabetes And Their Effect On The Cognitive And Emotional Functioning In Older Populations: A Secondary Data Analysis, Celeste Anahi Alvidrez

Open Access Theses & Dissertations

Background: The rates of Type 2 Diabetes (T2D) have increased over the past 20 years in all age groups. The physiological factors that underlie T2D could have impact on specific brain pathways that support cognitive and emotional functioning. Aims and Objective: The goal of this study was to examine whether older Mexican American individuals with a history of T2D were more likely to develop later cognitive impairment and/or depression. Hypotheses: It was predicted that elderly participants (mean age at time of interview = 87.87 years) with a history of T2D onset prior to age 65, are more likely to have …

A Rapid Review Of Internet Mediated Research Methods With People With Dementia: Practical, Technical And Ethical Considerations, Tharin Phenwan Dr, Judith Sixsmith Prof, Linda Mcswiggan Dr, Deans Buchanan Dr

The Qualitative Report

Doing research with People with Dementia (PwD) can be challenging given that disease symptoms of anxiety, forgetfulness, and fluctuating mental capacity can make recruitment and data collection difficult. Once COVID-19 made face-to-face data collection impractical, using internet-based methods became an alternative option to continue with research. However, data collection with PwD over the internet requires strategies to observe, support, and enable them to engage with research, especially with qualitative approaches. Nine articles were selected via a decade rapid scoping review (undertaken March-June 2020) to identify qualitative online methods used with PwD and associated challenges. Methods used were online interviews, clinical …

Life Satisfaction: Aging Female Informal Caregivers Of Persons With Dementia, Deborah Ann Monson

Dissertations

Purpose/Aims

The purpose of this study was to describe the relationship between aging female informal caregivers of persons with dementia (PWD) and care recipients’ PWD demographic factors, aging female informal caregivers of PWD social support factors, positive and negative feelings, a sense of flourishing, stress, and life satisfaction.

Background/Rationale

Older adults with dementia are living longer and the majority are receiving care by aging female informal caregivers. Dementia incrementally worsens over time impacting informal caregiver life satisfaction. Most studies have focused on negative aspects of informal caregiving. Therefore, this study investigated both positive and negative aspects of caregiving.

Conceptual Basis …

A Person-Centered Care Model’S Effectiveness For Older Adults With Dementia: A Systematic Review And Meta-Analysis, Karen Goeschel

Honors Theses

I evaluated the effectiveness of person-centered care interventions for older adults with dementia. Quality of life and agitation levels were used as primary outcomes for the effectiveness of the intervention. Electronic databases were searched for studies which satisfied the inclusion principles and did not satisfy exclusion principles. Cluster-randomized trials and non-randomized control trials which compared person-centered care approaches to usual care were included. I performed two random-effects meta-analyses. Six studies with 1,384 patients were included. For older adults with dementia, person-centered care had no significant impact on quality-of-life improvement (SMD = -0.116, p = 0.206) or agitation reduction (SMD = …

Analyzing The Use Of A Montessori-Based Activity & Its Effect On Engagement & Affect In Persons With Dementia: A Replication Study, Emilee J. Andersen

All Graduate Theses, Dissertations, and Other Capstone Projects

Activities are an essential element in institutionalized settings for persons with dementia. Challenges are faced, however, when developing and implementing stimulating and meaningful activities for this population. Over the past two decades, Montessori-based activities (MBAs) have been investigated as a means for meeting the needs of persons with dementia residing in long-term care facilities. MBAs were developed to enhance the quality of life for individuals experiencing dementia through maximization of engaging and meaningful activities. The purpose of the current study was to expand on the empirical literature related to the use of MBAs for persons with dementia by replication of …

Social Support Of Caregiver Sons Of Parents With Dementia, Ralph Callanta Pascual

Walden Dissertations and Doctoral Studies

Despite the growing number of male caregivers, few researchers have examined social supports for caregiver sons of parents with dementia. The purpose of this qualitative interpretative phenomenological study was to contribute to the empirical literature on the social support of caregiver sons of aging parents with dementia. The research question centered on the lived experience of social support of caregiver sons of parents with dementia. The theoretical framework was the social role theory. The sample consisted of eight caregiver sons of parents with dementia. Participants were interviewed using semi-structured, researcher-developed questions. The results were generated from coding and thematizing processes, …

Optimizing The Use Of Normative Data In Dementia Diagnostic Evaluations, Laurie Holler

Walden Dissertations and Doctoral Studies

Cognitive tests are typically scored and interpreted using an appropriate normative reference group, often similar age individuals with similar levels of education. Psychometric testing theory presupposes that demographic correction is always beneficial, supporting the ubiquitous use of age and education correction in clinical practice. In the context of dementia, however, there is some evidence suggesting that demographic correction (specifically age correction) may reduce the sensitivity of cognitive tests to age-related cognitive decline. It was hypothesized that age correction would reduce the utility of cognitive tests for detecting cognitive change in individuals with mild cognitive impairment and mild dementia due to …

Caregiver Knowledge And Perceptions Of Dementia-Specific Nutritional Approaches, Danielle Freitag

All Graduate Theses, Dissertations, and Other Capstone Projects

Dementia is a syndrome that affects millions worldwide. The syndrome can cause great distress not only for the diagnosed individual but also for the family and friends who provide care. It is known that many caregivers for people with dementia face difficulties in planning and preparing meals, feeding, and making nutritional decisions for their loved ones. Several diets have been shown to assist with dementia-related symptoms pre and post diagnosis. However, what is unknown is whether caregivers are aware of the benefits of these diets and what the barriers are to implementing them into their nutrition regime. This study surveyed …

Loneliness, Sense Of Control, And Risk Of Dementia In Healthy Older Adults: A Moderated Mediation Analysis, Hwajin Yang, Germaine Tng, Wee Qin Ng, Sujin Yang

Research Collection School of Social Sciences

Objectives: Despite the rising prevalence of dementia, little research has been conducted to identify modifiable psychological factors that alleviate the risk of dementia in older adults and the underlying mechanisms. Given that loneliness is, in part, concomitant with a weakened sense of control, we examined whether sense of control would mediate the relation between loneliness and dementia risk. Further, considering that working -memory capacity is a critical cognitive resource that serves as a buffer against age-related cognitive decline, we examined a second-order moderated mediational model whereby working-memory capacity moderates the relation between control beliefs and dementia risk in older adults. …

Defying Dementia: An Exploration Of Recovery, Deb Miller, Corey W. Johnson

The Qualitative Report

Exploring the human side of dementia helps put a face on this fast-growing affliction. This study reflects one elderly woman’s story of recovery from dementia that arose following a stroke. Painting a portrait of life with dementia can help us conceptualize the experience, how people live and how they would like to live. The woman is Marcia, my mom, and this is a qualitative inquiry with a collaborative narrative design to explore her experiences and to document my own. This study may help dementia patients and their support teams better understand the process of living with dementia and can perhaps …

Remote Monitoring Technologies In Dementia Care: An Interpretative Phenomenological Analysis Of Family Caregivers’ Experiences, Martha Snyder, Laurie Dringus, Manon Maitland Schladen, Ronald Chenail, Elizabeth Oviawe

The Qualitative Report

The desire to maintain an independent lifestyle is one shared by an increasing number of older adults. Adult children, spouses, siblings, and other relatives, also known as family caregivers, play an integral role in helping their loved ones maintain independence. Remote monitoring technologies (RMTs) such as wearable sensors, mobile emergency devices, smartphone apps, and webcams can be used to monitor, sense, record, and communicate a person’s daily activities. However, understanding is limited of the family caregiver’s needs and perceptions of RMTs used in a home-based setting. The purpose was to explore how family caregivers perceive RMTs and their use for …