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Navigating Professional Paradigms: Transactional Sex, Behavior Change, And Structural Responses In Uganda, Shelley K. White, Hugo A. Kamya Dec 2023

Navigating Professional Paradigms: Transactional Sex, Behavior Change, And Structural Responses In Uganda, Shelley K. White, Hugo A. Kamya

Journal of Social Work in the Global Community

Professional paradigms within social work and related social service fields have been critiqued for being behaviorally focused, thereby obscuring and perhaps excusing structural determinants of health and well-being. Recent initiatives in international social work have aimed to align theory, practice, education, and research with sustainable development, reflecting the United Nations’ Sustainable Development Goals, which aim to address structural determinants. Our qualitative research examined responses to transactional sex among Ugandan youth through in-depth interviews with 23 professionals working in social services with youth who were vulnerable to HIV. Through thematic content analysis, using deductive and inductive analysis, we examined the demographics …


“How Did I Not Know Any Of This?” Teaching Reproductive Justice In An Abortion Desert, Lena R. Hann Apr 2023

“How Did I Not Know Any Of This?” Teaching Reproductive Justice In An Abortion Desert, Lena R. Hann

Feminist Pedagogy

Reproductive justice is often used interchangeably with reproductive rights and reproductive health, overshadowing the importance of each movement’s contributions to understanding bodily autonomy. I am a former abortion care worker, now faculty at a Lutheran liberal arts college in an abortion desert. Antiabortion events on campus motivated students to request evidence-based education about reproductive issues, leading me to develop an immersive reproductive justice course. Reproductive justice is a framework that analyzes how systems of power prevent equitable access to and enjoyment of rights and health. The course examined how multifaceted oppressions shape reproductive self-determination and included content about abortion, adoption, …


Community Approaches To Veterans And Active-Duty Service Member Suicide Prevention Through Public Health Outreach: A Commentary, Joe Bohn, Tommy Childers, Christopher Baglivo Dec 2022

Community Approaches To Veterans And Active-Duty Service Member Suicide Prevention Through Public Health Outreach: A Commentary, Joe Bohn, Tommy Childers, Christopher Baglivo

Florida Public Health Review

We discuss insights on a West Central Florida community-based Veterans suicide prevention effort- a series of Veterans coffee socials. Noted as a public health crisis which has been well documented, the article provides an overview of the importance of public health approaches and academic public health engagement at a local level to addressing suicide prevention at community levels. An active-duty service member’s perspective is provided that points to common pain points that that extend to the Veterans community with reintegration challenges. A community-based participatory research methodology has been applied which stressed the importance of community partners (e.g., public, private and …


Birth Justice Philly: Equitable Community Engagement In Action, Simone N. Snead, Imani Davis, Samantha Shuster, Elizabeth Guman, Cynthia Estremera Gauthier, Aasta D. Mehta Aug 2022

Birth Justice Philly: Equitable Community Engagement In Action, Simone N. Snead, Imani Davis, Samantha Shuster, Elizabeth Guman, Cynthia Estremera Gauthier, Aasta D. Mehta

Journal of Health Disparities Research and Practice

This article describes how a multi-sector coalition focusing on carrying out recommendations of the Philadelphia Maternal Mortality Review Committee (MMRC) engages community participation through the development of equitable strategies that culminate in the implementation of actionable methods to improve perinatal outcomes.

The U.S. maternal mortality crisis continues to impact countless families and communities. Despite having some of the finest academic medical centers in the nation and a functioning county-level maternal mortality review committee, the maternal mortality rate in Philadelphia, Pennsylvania is far above the national average. Vital statistics show that Philadelphia’s rate of pregnancy-related deaths from 2012 to 2018 was …


“If I Were To Suffer A Stroke Right Now, The First Place That I Should Be Taken To Is The Traditional Healer”: Community Beliefs And Health-Seeking Practices For Noncommunicable Diseases In Rural Kwazulu-Natal, South Africa, Herbert Chikafu, Innocent Tinashe Mutero Dr., Moses John Chimbari Prof. Jan 2022

“If I Were To Suffer A Stroke Right Now, The First Place That I Should Be Taken To Is The Traditional Healer”: Community Beliefs And Health-Seeking Practices For Noncommunicable Diseases In Rural Kwazulu-Natal, South Africa, Herbert Chikafu, Innocent Tinashe Mutero Dr., Moses John Chimbari Prof.

The Qualitative Report

T

The burden of chronic noncommunicable diseases in rural South Africa is exacerbated by delayed health-seeking. This study explored awareness, beliefs and health-seeking behaviour relating to diabetes, hypertension and cardiovascular diseases in Ingwavuma, a poor rural community in the uMkhanyakude district of KwaZulu-Natal, South Africa. Eight gender and age-stratified Focus Group Discussions (FGD) were conducted in isiZulu using a pre-tested FGD guide with seventy-six participants. Thematic analysis was done to discern views on access to care for noncommunicable diseases. Findings revealed limited awareness of hypertension, diabetes, and cardiovascular-related disease burden. The community practices medical plurality, and consultation with traditional healers …


4-H Student Nutrition Advisory Councils Support Positive Youth Development And Health Outcomes Among Underserved Populations, Shannon Klisch, Katherine E. Soule Sep 2021

4-H Student Nutrition Advisory Councils Support Positive Youth Development And Health Outcomes Among Underserved Populations, Shannon Klisch, Katherine E. Soule

The Journal of Extension

4-H SNAC Clubs engage youth in low-income schools with majority Latinx enrollment in leadership activities to increase schoolwide health and wellness. 4-H SNAC Clubs aim to develop youth health leaders, establish youth-adult partnerships, and increase access to 4-H in Latinx communities. Outcomes related to healthful living and positive youth development were assessed using the Teen Teacher Retrospective Survey (n=59) across five 4-H SNAC Clubs. Results show positive outcomes related to self-reported health behaviors for students and their families and leadership development. 4-H SNAC Clubs can increase access to 4-H among Latinx youth and support healthier communities through the Supplemental Nutrition …


Facilitators And Barriers To Patient-Centered Outcomes Research Partnership Sustainability In The United States, Tristen L. Hall, Charlene Barrientos-Ortiz, Griselda Peña-Jackson, Courtney Fultineer, Kevin Werner, Justine Sunshine Jan 2021

Facilitators And Barriers To Patient-Centered Outcomes Research Partnership Sustainability In The United States, Tristen L. Hall, Charlene Barrientos-Ortiz, Griselda Peña-Jackson, Courtney Fultineer, Kevin Werner, Justine Sunshine

Journal of Patient-Centered Research and Reviews

Purpose: Engaging patients in research can enhance relevance and accelerate implementation of findings. Despite investment in patient-centered outcomes research (PCOR), short-term funding cannot maintain such efforts beyond the program timeframe. Sustained interaction between researchers, practitioners, patients, and other stakeholders is needed to sustain use of evidence-based practices and achieve maximum benefit. While previous literature describes components of public health program sustainability, such factors do not necessarily apply to the partnerships that implement those programs, and facilitators are likely to differ across disciplines. We sought to determine facilitators and barriers to PCOR partnership sustainability from participant experiences with sustainable and unsustainable …


When Duty Calls. A Faith & Health Collaborative Response To Covid 19 And Social Justice: A Commentary, Joe Bohn, Karen Liller Dec 2020

When Duty Calls. A Faith & Health Collaborative Response To Covid 19 And Social Justice: A Commentary, Joe Bohn, Karen Liller

Florida Public Health Review

We provide information pertaining to an interdisciplinary collaboration in West Central Florida that launched a faith & wellness teleconference intervention in March 2020 in response to the COVID-19 crisis. The collaborative partners engaged from across the 4-county region upon community lockdowns in response to the COVID-19 crisis and later addressing calls for social justice due to the deaths of George Floyd and other African Americans. For 17-weeks Christian and Muslim faith leaders provided live messages of hope along with community partners providing wellness (mental health and wellbeing) focused strategies for coping with the crisis. Thematic analysis of anecdoctal comments revealed …


Generational Impacts Of 1930s Housing Discrimination And The Imperative Need For The Healthy Start Initiative To Address Structural Racism, Brittney Butler, Michael Outrich, Jessica Roach, Arthur James Nov 2020

Generational Impacts Of 1930s Housing Discrimination And The Imperative Need For The Healthy Start Initiative To Address Structural Racism, Brittney Butler, Michael Outrich, Jessica Roach, Arthur James

Journal of Health Disparities Research and Practice

For nearly three decades, Healthy Start Initiative(HSI) has served communities with high rates of adverse pregnancy outcomes--with the goal to lower them by 50%. Despite a large focus on social determinants of health, HSI has narrowly addressed racism. The effects of legal housing discrimination continue to be felt and have profound implications for pregnancy. To understand the historical context of racism in these communities, we geospatially evaluated the relationship between HSI service areas and Home-Owners Loan Corporation(HOLC) graded maps. Using data from John Snow Inc, National Healthy Start Association, and Mapping Inequality we found that 73 of 100 communities served …


Management Of Frequent Ed Users By Community Paramedics Improves Patient Experiences And Reduces Ems Utilization, Oluwakemi Aiyedun Adio, Laura Ikuma, Sonja Wiley Nov 2020

Management Of Frequent Ed Users By Community Paramedics Improves Patient Experiences And Reduces Ems Utilization, Oluwakemi Aiyedun Adio, Laura Ikuma, Sonja Wiley

Patient Experience Journal

This study examined a suburban emergency medical system (EMS)-led community paramedicine (CP) program in terms of adherence to protocol, patient-paramedic interactions, patient experience, and cost. Participants (n=57) are frequent emergency department (ED) users (≥ 4 ED visits/year), with a mean age of 59.8±17.6 years and have multiple chronic conditions. Of these, 36 completed a modified Clinician and Group Consumer Assessment of Healthcare Providers and Systems (CG-CAHPS) survey at 3- and 6-months following program enrollment. The main outcome measures were adherence to intake goals; types, modes, and frequencies of CP interventions; CG-CAHPS patient experience scores; and cost savings. Cost savings compared …


Responding To Appalachian Voices: Steps In Developing Substance-Use Recovery Ecosystems, Bruce Behringer Jul 2020

Responding To Appalachian Voices: Steps In Developing Substance-Use Recovery Ecosystems, Bruce Behringer

Journal of Appalachian Health

A description is presented of the four-step process used by the Appalachian Regional Commission to develop a new Recovery to Work initiative. The Commission identified, defined, and described issues facing individuals who complete substance abuse disorder treatment and who seek reentry into the workforce. Key elements were identified for resources and supports to develop and maintain community-based substance abuse recovery ecosystems. The steps included conceptualization, data collection, analysis, and review to formulate recommendations for program and policy development. The full process of development was accomplished in twelve months.



Perspective On Substance-Abuse Recovery Ecosystem From The Appalachian Regional Commission Federal Co-Chair, Tim Thomas Jul 2020

Perspective On Substance-Abuse Recovery Ecosystem From The Appalachian Regional Commission Federal Co-Chair, Tim Thomas

Journal of Appalachian Health

The Appalachian Regional Commission (ARC) is a local, state, and federal partnership focused on economic development in the communities of the Appalachian Region. ARC Federal Co-Chairman Tim Thomas provides his perspective on how an economic development entity, such as ARC, can support efforts to address the Region’s drug crisis in a way that both saves lives and strengthens economic opportunity in communities throughout Appalachia.


Identifying The Weak Foundation Of Public Health Resilience Fornational Disaster Policy In Indonesia’S Mid-Term Developmentagenda 2015–2019: A Policy Content Analysis, Gita Miranda Warsito, Meiwita Budiharsana, Sharyn Burns May 2020

Identifying The Weak Foundation Of Public Health Resilience Fornational Disaster Policy In Indonesia’S Mid-Term Developmentagenda 2015–2019: A Policy Content Analysis, Gita Miranda Warsito, Meiwita Budiharsana, Sharyn Burns

Kesmas

Indonesia is one of the most susceptible nations toward natural disasters in the world. Since 1992, approximately 37 tsunami incidents have occurred inIndonesia, with at least 1,244 cases of natural disasters during 2018. Despite the overwhelming impact of disasters on Indonesia, Public Health Resilience,as an approach to disaster countermeasures, has been poorly elaborated in Indonesia’s development agenda (National Mid-term Development Plan (NMDP),or Rencana Pembangunan Jangka Menengah Nasional (RPJMN), 2015 - 2019). By utilizing the method of policy content analysis, this study aimed to analyzethe policy background of Public Health Resilience against disasters in the NMDP 2015 - 2019 and National …


Promising Practices For Boating Safety Initiatives That Target Indigenous Peoples In New Zealand, Australia, The United States Of America, And Canada, Mitchell Crozier, Audrey R. Giles May 2020

Promising Practices For Boating Safety Initiatives That Target Indigenous Peoples In New Zealand, Australia, The United States Of America, And Canada, Mitchell Crozier, Audrey R. Giles

International Journal of Aquatic Research and Education

Boating-related incidents are responsible for a significant number of the drowning fatalities that occur within Indigenous communities in New Zealand, Australia, the USA, and Canada. The aim of this paper was to identify promising practices for boating safety initiatives that target Indigenous peoples within these countries and evaluate past and ongoing boating safety initiatives delivered to/with Indigenous peoples within these countries to suggest the ways in which they – or programs that follow them - may be more effective. Based upon evidence from previous research, boating safety initiatives that target Indigenous peoples in New Zealand, Australia, the USA, and Canada …


Citizen Engagement In Aquatics Equity: The Case Of Winston Waterworks, Steven N. Waller Phd, James H. Bemiller Jd, Emliy J. Johnson, Chermaine D. Cole, Jason Scott Phd, Angela Wozencroft, Phd Apr 2020

Citizen Engagement In Aquatics Equity: The Case Of Winston Waterworks, Steven N. Waller Phd, James H. Bemiller Jd, Emliy J. Johnson, Chermaine D. Cole, Jason Scott Phd, Angela Wozencroft, Phd

International Journal of Aquatic Research and Education

Historically, swimming pools have been a source of inequity when it comes to the distribution of recreation services in the United States. Many of the problems that correlate with the inequitable allocation of recreation resources including public swimming pools began with ideas about race, geography, poor planning practices and faulty policymaking (Rothstein, 2017). Moreover, one of the primary outcomes of engaged, inclusive planning is equity in the provision of recreation programs and facilities. In this essay, we offer a summary of key legal cases that help address questions related resource allocation related to public swimming pools. Finally, we present a …


Improving The Public’S Health Through Sustained, Multidisciplinary Academic And Community Partnerships: The Msm Model, Desiree A. Rivers Phd, Carla Durham Walker Ma, Ashley K. Mitchell Drph, Msph, Shirleta Lawrence, Carey Roth Bayer Edd, Med, Bsn, Rn, Cse Jan 2020

Improving The Public’S Health Through Sustained, Multidisciplinary Academic And Community Partnerships: The Msm Model, Desiree A. Rivers Phd, Carla Durham Walker Ma, Ashley K. Mitchell Drph, Msph, Shirleta Lawrence, Carey Roth Bayer Edd, Med, Bsn, Rn, Cse

Journal of the Georgia Public Health Association

Background: To meet the growing needs of communities with increased chronic conditions, decreased access to health services, and a changing sociocultural environment, there is a critical need for community-oriented physicians equipped with the skills to attend to the health of underserved populations. The Morehouse School of Medicine Community Health Course’s (CHC) purpose is to inculcate service-learning and public health techniques to equip community-oriented physicians with empathy and tools to effectively engage diverse communities and provide care that addresses the social determinants of health to achieve health equity. The purpose of this practice note is to discuss CHC multidisciplinary strategies used …


Lessons Learned In The Early Stages Of A Community-Academic Partnership To Address Health Disparities In A Rural Community, Tiffany R. Washington, Brian M. Rivers, L. Sherrié Raleigh, Natalie D. Hernandez, Mindy Le, A. Keith Green, Jeffery Lawrence, Henry N. Young Jan 2020

Lessons Learned In The Early Stages Of A Community-Academic Partnership To Address Health Disparities In A Rural Community, Tiffany R. Washington, Brian M. Rivers, L. Sherrié Raleigh, Natalie D. Hernandez, Mindy Le, A. Keith Green, Jeffery Lawrence, Henry N. Young

Journal of the Georgia Public Health Association

In rural Georgia, African American men are burdened by chronic health diseases such as cancer, diabetes, and cardiovascular disease. Community-academic partnerships that leverage community-based participatory research (CBPR) principles can facilitate the adaptation and translation of multilevel programs to address chronic disease prevention and management in rural areas. The objective of this study was to explore key components of the CBPR process that bolstered the early stages of a partnership established between rural-residing community leaders and academic partners in Georgia. Qualitative methodology was used to collect and assess data regarding the initial engagement between the community and academic partners. Findings indicate …


Sustainable Solutions, Fall/Winter 2020, Issue 41 Nov 2019

Sustainable Solutions, Fall/Winter 2020, Issue 41

Sustain Magazine

No abstract provided.


Sustainable Communities, Fall/Winter 2010, Issue 21 Sep 2019

Sustainable Communities, Fall/Winter 2010, Issue 21

Sustain Magazine

No abstract provided.


Environmental Justice, Spring/Summer 2004, Issue 10 Sep 2019

Environmental Justice, Spring/Summer 2004, Issue 10

Sustain Magazine

No abstract provided.


Active Transportation, Spring/Summer 2012, Issue 26 Sep 2019

Active Transportation, Spring/Summer 2012, Issue 26

Sustain Magazine

No abstract provided.


Sustainable Behavior, Spring/Summer 2013, Issue 28 Sep 2019

Sustainable Behavior, Spring/Summer 2013, Issue 28

Sustain Magazine

No abstract provided.


Healthcare Access Barriers In Rural America, Lakyn E. Jolly Jun 2019

Healthcare Access Barriers In Rural America, Lakyn E. Jolly

Kentucky Journal of Undergraduate Scholarship

  • In rural America, the path to accessing healthcare is met with many challenges. These challenges can present geographically and structurally within rural healthcare systems, as well as larger healthcare delivery entities. Due to these access barriers, rural Americans are at higher risk for developing poor health outcomes, as compared to their urban counterparts. Among these are higher mortality and morbidity rates, higher instances of chronic conditions, and higher rates of childhood obesity. Because rural communities are at risk for adverse health outcomes, it is vital that research and policy be geared toward reducing barriers to accessing healthcare within this population. …


Patient Barriers For Weight Management Among African American Women, Owen Bowie, Jennifer Kusch, George L. Morris Iii, Tracy Flood, Jessica Gill, Renee E. Walker, Ron A. Cisler, Jennifer T. Fink Oct 2018

Patient Barriers For Weight Management Among African American Women, Owen Bowie, Jennifer Kusch, George L. Morris Iii, Tracy Flood, Jessica Gill, Renee E. Walker, Ron A. Cisler, Jennifer T. Fink

Journal of Patient-Centered Research and Reviews

Purpose: The primary aim of this study was to assess the perceptions of local African American women who are overweight or obese using semi-structured focus groups to identify barriers to weight management and factors that support strategy success. The secondary aim of this study was to determine recommendations for patient-centered weight management interventions established specifically for African American women in the Milwaukee-area community.

Methods: Three semi-structured focus groups to explore barriers to weight management were performed among women patients. Participants (N = 41) were recruited via email, postal mail, and phone as available from an academic medical center in Milwaukee, …


Promoting Community And Population Health In Public Health And Medicine: A Stepwise Guide To Initiating And Conducting Community-Engaged Research, Scott D. Rhodes, Amanda E. Tanner, Lilli Mann-Jackson, Jorge Alonzo, Florence Siman, Eunyoung Y. Song, Jonathan Bell, Megan B. Irby, Aaron T. Vissman, Robert E. Aronson Oct 2018

Promoting Community And Population Health In Public Health And Medicine: A Stepwise Guide To Initiating And Conducting Community-Engaged Research, Scott D. Rhodes, Amanda E. Tanner, Lilli Mann-Jackson, Jorge Alonzo, Florence Siman, Eunyoung Y. Song, Jonathan Bell, Megan B. Irby, Aaron T. Vissman, Robert E. Aronson

Journal of Health Disparities Research and Practice

Various methods, approaches, and strategies designed to understand and reduce health disparities, increase health equity, and promote community and population health have emerged within public health and medicine. One such approach is community-engaged research. While the literature describing the theory, principles, and rationale underlying community engagement is broad, few models or frameworks exist to guide its implementation. We abstracted, analyzed, and interpreted data from existing project documentation including proposal documents, project-specific logic models, research team and partnership meeting notes, and other materials from 24 funded community-engaged research projects conducted over the past 17 years. We developed a 15-step process designed …


Community-Based Participatory Research At Jacksonville, Florida Superfund Ash Site: Toxicology Training To Improve The Knowledge Of The Lay Community, Alan Becker, Sandra Suther, Cynthia Harris, Grazyna Pawlowicz, Gale Disney-Tucker, Matthew Dutton, Fran Close, Aaron Hilliard, Richard Gragg Jan 2018

Community-Based Participatory Research At Jacksonville, Florida Superfund Ash Site: Toxicology Training To Improve The Knowledge Of The Lay Community, Alan Becker, Sandra Suther, Cynthia Harris, Grazyna Pawlowicz, Gale Disney-Tucker, Matthew Dutton, Fran Close, Aaron Hilliard, Richard Gragg

Florida Public Health Review

Until the late 1960’s, Jacksonville, Florida incinerated its solid waste with the resultant ash deposited in landfills or used to fill flood-prone areas. These filled areas were later developed into parks, school sites and residential areas. Lead in soil at these sites was the major toxicant of concern and driver of clean-up actions. During the period of assessment of lead-levels in soil, there were no established lines of communication between the City and residents of affected neighborhoods resulting in mistrust in the community. To address communication issues, a community-based, culturally sensitive Community Environmental Toxicology Curriculum (CETC) and a short video …


Mapping The Alignment Of Programmatic Mission, Functions And Outcomes With The Attainment Of Health Equity: An Overview Of The Approach And Initial Outcomes Through The Lens Of The Usda’S Cyfar Scp Program, Onyemaechi Nweke, Kara Ryan, Mpp, Bonita Williams, Phd Aug 2017

Mapping The Alignment Of Programmatic Mission, Functions And Outcomes With The Attainment Of Health Equity: An Overview Of The Approach And Initial Outcomes Through The Lens Of The Usda’S Cyfar Scp Program, Onyemaechi Nweke, Kara Ryan, Mpp, Bonita Williams, Phd

Journal of Health Disparities Research and Practice

Eliminating health disparities is a priority across national agenda and initiatives such as the National Partnership for Action to End Health Disparities (NPA), the National Prevention Strategy, and Healthy People 2020. To advance this priority under the NPA, the Federal Interagency Health Equity Team (FIHET), which is an NPA federal cross-sector and collaborative platform, initiated a voluntary pilot “health equity mapping” exercise in 2014. This exercise served as a strategy to clarify the strategic alignment between participant federal partner program missions, goals, and activities, and the goal to end health disparities and promote health equity. The mapping process included an …


Community Preparedness: Expanding Existing Partnerships With Academia To Build Resilience Through Experiential Learning, Nina Cleveland, Mark Palen Jul 2016

Community Preparedness: Expanding Existing Partnerships With Academia To Build Resilience Through Experiential Learning, Nina Cleveland, Mark Palen

Journal of the Georgia Public Health Association

Background: Sustainability and mitigation in preparedness after grant money is gone has suddenly become a hot topic in the public health emergency preparedness world. By the same token, funding provided by the Federal Emergency Management Agency (FEMA) for individual preparedness initiatives has not had the desired mitigation impacts. The question becomes, are there alternative approaches that reach more individuals to build a culture of preparedness in communities? One solution involves the leveraging of academic and regional public health partnerships with their Medical Reserve Corps Units (MRC), to train college students in individual preparedness. The purpose of this study is to …


Assessment Of The Building Collaborative Research Capacity Model: Bridging The Community-Academic Researcher Divide, Tabia Henry Akintobi, Donoria Evans Wilkerson, Kirsten Rodgers, Cam Escoffery, Regine Haardörfer, Michelle Kegler Jul 2016

Assessment Of The Building Collaborative Research Capacity Model: Bridging The Community-Academic Researcher Divide, Tabia Henry Akintobi, Donoria Evans Wilkerson, Kirsten Rodgers, Cam Escoffery, Regine Haardörfer, Michelle Kegler

Journal of the Georgia Public Health Association

Background: Community–based Participatory Research (CBPR) can be challenging when community leaders and academic researchers have not previously co-led research or worked together with established rules guiding their relationships, roles, and respective functions. The objective of this investigation was to assess the processes and outcomes of the Building Collaborative Research Capacity Grant Program, sponsored by the Community Engagement Research Program of The Atlanta Clinical and Translational Science Institute and designed to foster CBPR.

Methods: Four competitively selected community-based organizations (CBOs) participated in capacity-building workshops designed to build research skills and receive technical assistance to plan a pilot study with academic researchers. …


Applying Experience-Based Co-Design With Vulnerable Populations: Lessons From A Systematic Review Of Methods To Involve Patients, Families And Service Providers In Child And Youth Mental Health Service Improvement, Alison Mulvale, Ashleigh Miatello, Christina Hackett, Gillian Mulvale Apr 2016

Applying Experience-Based Co-Design With Vulnerable Populations: Lessons From A Systematic Review Of Methods To Involve Patients, Families And Service Providers In Child And Youth Mental Health Service Improvement, Alison Mulvale, Ashleigh Miatello, Christina Hackett, Gillian Mulvale

Patient Experience Journal

The objective was to identify methods used to involve patients, family and service providers in child and youth mental health service improvement research. We analyzed the alignment of methods used with Experience-Based Co-Design (EBCD) methodology, and how power imbalances among participants were addressed. A systematic review of the English-language peer review literature since 2004 was carried out. The EMBASE, Scholar’s Portal, PubMed, Web of Science databases and the Ontario College of Art and Design University libraries were searched electronically for variations of ‘child’, ‘mental health’, ‘experience-based co-design’, ‘participatory research’ and ‘health care services’. Textual data was systematically extracted and analyzed. …