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Stigma Associated With Classical Congenital Adrenal Hyperplasia In Women’S Sexual Lives, Heino F.L. Meyer-Bahlburg, Jananne Khuri, Jazmin Reyes-Portillo, Anke A. Ehrhardt, Maria I. New
Stigma Associated With Classical Congenital Adrenal Hyperplasia In Women’S Sexual Lives, Heino F.L. Meyer-Bahlburg, Jananne Khuri, Jazmin Reyes-Portillo, Anke A. Ehrhardt, Maria I. New
Department of Psychology Faculty Scholarship and Creative Works
The risk of intersex-related stigma often serves as social indication for “corrective” genital surgery, but has not been comprehensively documented. In preparation for the development of an intersex-specific stigma assessment tool, this qualitative project aimed to explore stigma in girls and women with classical congenital adrenal hyperplasia (CAH) due to 21-hydroxylase deficiency. As part of a comprehensive follow-up project, 62 adult women with classical CAH (age range 18–51 years) took part in an open-ended retrospective interview focusing on the impact of CAH and its treatment on various aspects of girls’ and women’s lives. Deductive qualitative content analysis (Patton, 2014) of …