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Genetic Medical Clinic In Kentucky: A Needs Assessment Of Anabaptist Households, Matthew M. Hunt, Susan L. Jones
Genetic Medical Clinic In Kentucky: A Needs Assessment Of Anabaptist Households, Matthew M. Hunt, Susan L. Jones
Journal of Amish and Plain Anabaptist Studies
The purposes of this study are to (a) describe the process of collecting survey data related to un/diagnosed genetic disorders in Anabaptist households, and (b) determine the need for a genetic medical clinic in Kentucky. A six-page adapted survey questionnaire was utilized to collect family status, un/diagnosed genetic conditions, reproductive history, history of deceased children, and demographics. The questionnaire was mailed to over 2,000 households; addresses were collected from Anabaptist directories. Data suggest that more than one-third of households include a family member with an un/diagnosed genetic condition. Collectively, 120 diagnosed conditions and 90 undiagnosed conditions were reported. Half of …
Anabaptist Community Members' Perceptions And Preferences Related To Healthcare, Dawn Garrett-Wright, M. Eve Main, M. Susan Jones
Anabaptist Community Members' Perceptions And Preferences Related To Healthcare, Dawn Garrett-Wright, M. Eve Main, M. Susan Jones
Journal of Amish and Plain Anabaptist Studies
The plain Anabaptists are thought to differ from mainstream U.S. health care beliefs and practices. Many non-Anabaptist health care providers have limited knowledge of the specific health beliefs and preferences of Anabaptists, which can lead to misunderstandings. The purpose of this descriptive qualitative study was to collect information from Anabaptist community members related to health care beliefs and preferences in their communities. Participants, who were members of various plain Anabaptist communities, completed a questionnaire containing open-ended questions about health issues. Seven themes emerged in results: (1) health viewed as a gift from God that provides the ability to work; (2) …