Digital Commons Network^™

Inpatient Palliative Care Utilization In Sickle Cell Disease: Temporal Trends And Factors Associated With Usage, Lois C. Akpati

Research Colloquium

Background: Sickle cell disease (SCD) is a highly morbid condition notable for recurrent hospitalizations due to vaso-occlusive crises and complications of end-organ damage. Palliative care (PC) aims to provide holistic care to patients with serious chronic illnesses. Little is known about the use of inpatient palliative care services in adult patients with SCD.

Methods: We conducted a retrospective cross-sectional study utilizing data from the National Inpatient Sample (NIS) from 2008-2017. Patients >18 years old hospitalized with a primary or secondary ICD-9-CM and ICD-10-CM diagnosis of SCD were included. Outcome of interest was PC service utilization using ICD-9-CM and ICD-10-CM diagnosis …

Touch Of Grace Project, Marie Eaton, Sarah Bear

Palliative Care Institute

Touch of Grace is a video-based training program on palliative and end-of-life care for nursing home and assisted living staff, including all non-licensed support staff.

Pre- and Post-test data and focus group feedback indicate that the Touch of Grace training program improved understanding of palliative and end of life concepts and also provided tools to improve staff interactions with families and residents during the final days of a resident’s life. As predicted, the largest shifts in understanding were seen in the non-licensed staff, although gains were seen in all staff groups. Some facility-wide procedural changes to support a more palliative …

Embracing Cultural Humility In Palliative Care: A Journey From The Professional To The Personal, Arika Patneaude

Palliative Care Institute

Arika Patneaude, MSW, LICSW - Embracing Cultural Humility in Palliative Care. Patneaude is part of the interdisciplinary team at Children's Hospital and will help us explore how cultural perspectives and beliefs intersect with access to and implementation of palliative care.

Objectives:

• Examine how our own personal cultural identities can (and do) intersect with those of the patients and families we serve

• Understand how the medical model “culture” can impact how a patient and family may make medical decisions at the end-of-life

• Describe how cultural identity impacts decision making at the end-of-life

• Explore the importance of understanding …