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‘We Are Not Just Participants—We Are In Charge’: The Naccho Ear Trial And The Process For Aboriginal Community- Controlled Health Research, Traven Lea, Richard Murray, Margaret Culbong Jan 2005

‘We Are Not Just Participants—We Are In Charge’: The Naccho Ear Trial And The Process For Aboriginal Community- Controlled Health Research, Traven Lea, Richard Murray, Margaret Culbong

Aboriginal Policy Research Consortium International (APRCi)

Objective. Methodological criteria that characterise ethically sound community-based studies are often described in overviews but are rarely documented in clinical studies. Research investigating the health of Aboriginal Australians is often small-scale, descriptive and largely driven by non-Indigenous people. The ‘community-controlled’ model of research relating to Aboriginal peoples health is a form of ‘participatory’ research that shifts the balance of control towards those being researched. This paper describes the methodological issues and principles that underpin community-controlled health research; their practical application; and encourages their adoption in research involving Indigenous populations.

Design. Descriptive report of the methods used to conduct the landmark …


Supplemental Security Income - An Underused Resource For Disabled Tanf Recipients In Illinois, Center For Urban Research And Learning, Michael A. O'Connor Mar 1999

Supplemental Security Income - An Underused Resource For Disabled Tanf Recipients In Illinois, Center For Urban Research And Learning, Michael A. O'Connor

Center for Urban Research and Learning: Publications and Other Works

This paper reviews the literature that assesses the incidence of severe impairments among parents and children receiving AFDC and TANF, and projects that analysis to estimate the number of persons eligible for, but not receiving SSI in the Illinois TANF caseload. The paper also reviews current investment in screening for eligibility and pursuing SSI benefits for TANF recipients, and articulates a rationale for further investment. Prior research supports an estimate that between 8-12,000 children, and 4- 18,000 parents in the Illinois TANF caseload are SSI eligible but not enrolled. This paper describes strategies and costs necessary to promote full enrolment …