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University of Nebraska - Lincoln

2023

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Radicalisation And Extremism On Social Media: What Steps Can Be Taken?, Emeka Williams Etumnu, Oluchi I. Williams-Etumnu Dec 2023

Radicalisation And Extremism On Social Media: What Steps Can Be Taken?, Emeka Williams Etumnu, Oluchi I. Williams-Etumnu

Library Philosophy and Practice (e-journal)

Unarguably, the social media has brought the world together in an online space and as a result of this, extremist groups utilise the social media to radicalise people especially the youths who are vulnerable and fancy their ideology towards their cause. The paper was underpinned on public sphere theory and the desk research method was employed in the course of the study. It was revealed that social media plays a tremendous role towards radicalisation and extremism. The need for digital literacy, where rules can be made to assist individuals of all ages in developing critical thinking skills and building resilience …


An Investigation Of Match For Lossless Video Compression, Brittany Sullivan-Reicks Dec 2023

An Investigation Of Match For Lossless Video Compression, Brittany Sullivan-Reicks

Department of Electrical and Computer Engineering: Dissertations, Theses, and Student Research

A new lossless video compression technique, Match, is investigated. Match uses the similarity between the frames of a video or the slices of medical images to find a prediction for the current pixel. A portion of the previous frame is searched to find a matching context, which is the pixels surrounding the current pixel, within some distance centered on the current location. The best distance to use for each dataset is found experimentally. The matching context refers to the neighborhood of w, nw, n, and ne, where the pixel in the previous frame with the closest matching context becomes the …


Discursive Struggles Reflected In The Communication Of Conservative Christian Parents And Their Adult Children With Differing Religious Beliefs And Values, Braedon G. Worman Nov 2023

Discursive Struggles Reflected In The Communication Of Conservative Christian Parents And Their Adult Children With Differing Religious Beliefs And Values, Braedon G. Worman

Dissertations and Doctoral Documents from University of Nebraska-Lincoln, 2023–

Nearly half of American adults no longer believe in their childhood faiths (Pew Research Center, 2015). The steady decline of Christianity could have considerable impacts on family life (Pew Research Center, 2022). From a postmodern critical perspective and guided by Relational Dialectics Theory 2.0, the researcher sought to discern how conservative Christian parents and their adult children with differing religious beliefs and values communicated when they discussed these differences, as well as to identify the discourses that informed and were reflected in their talk and illustrate how these discourses interplayed and animated the meaning of participants’ Christian family identities. The …


Off The Rails: Cinematic Trains As Technological Controls Of The Natural World, Trinity Thompson Nov 2023

Off The Rails: Cinematic Trains As Technological Controls Of The Natural World, Trinity Thompson

Honors Theses

Short train rail lines across the United States are seeing increased national funding to reduce toxic chemical spills caused by train derailments, the most notable of which happened in February 2023 in East Palestine, Ohio. A year prior, the film White Noise (2022) featured a similar toxic train derailment incident, taking place, too, in Eastern Ohio, and featuring actors from the town of East Palestine. In considering other films featuring trains, I identified a pattern of environmental conflict, leading me to question the relationship between trains and the natural environment as portrayed in popular cinema. To conduct my research, I …


Discursive Struggles Reflected In The Communication Of Conservative Christian Parents And Their Adult Children With Differing Religious Beliefs And Values, Braedon G. Worman Nov 2023

Discursive Struggles Reflected In The Communication Of Conservative Christian Parents And Their Adult Children With Differing Religious Beliefs And Values, Braedon G. Worman

Department of Communication Studies: Dissertations, Theses, and Student Research

Nearly half of American adults no longer believe in their childhood faiths (Pew Research Center, 2015). The steady decline of Christianity could have considerable impacts on family life (Pew Research Center, 2022). From a postmodern critical perspective and guided by Relational Dialectics Theory 2.0, the researcher sought to discern how conservative Christian parents and their adult children with differing religious beliefs and values communicated when they discussed these differences, as well as to identify the discourses that informed and were reflected in their talk and illustrate how these discourses interplayed and animated the meaning of participants’ Christian family identities. The …


Farming For Nebraska's Future: Regenerative Agriculture In The Cornhusker State, Megan Buffington Oct 2023

Farming For Nebraska's Future: Regenerative Agriculture In The Cornhusker State, Megan Buffington

Honors Theses

This reporting project started, as many do, with questions: Who is practicing sustainable agriculture in Nebraska? Why? What is stopping others from doing the same? And what even is sustainable agriculture?

Over the course of this project, I spoke with farmers, ranchers and academics, eventually learning that regenerative agriculture is the more widely used term, and there are a wide swath of systemic barriers preventing more producers from adopting it. But for those who do take the leap, the unconventional method leads to personal and financial well-being traditional agriculture never provided. The final project is made up of three articles …


Comparative Analysis Of Covid-19 Non-Pharmaceutical Intervention Videos On Facebook: Insights From Nigeria And Benin Republic, Jimme Matyek, Sheba Umbule Tayo-Garbson, Philomena Effiong Umoren Phd, Benmun Paul, Emeka Williams Etumnu Sep 2023

Comparative Analysis Of Covid-19 Non-Pharmaceutical Intervention Videos On Facebook: Insights From Nigeria And Benin Republic, Jimme Matyek, Sheba Umbule Tayo-Garbson, Philomena Effiong Umoren Phd, Benmun Paul, Emeka Williams Etumnu

Library Philosophy and Practice (e-journal)

Facebook has been adopted by public health organisations for health promotion, psychoeducation and behaviour change campaigns. Studies have underscored the potential advantages of non-pharmaceutical interventions (NPIs) in decelerating the transmission of COVID-19 and mitigating its severe health consequences. However, these studies did not content analyse these NPI messages especially on Facebook. This study sought to investigate the phenomenon of NPI COVID-19 videos on Facebook that were viewed by Nigerians and Beninese. This study used quantitative content analysis as the research design and analysed 56 Nigerian videos and 36 Beninese videos totalling 92 on Facebook with an inter-rater reliability of 96%. …


Prevalence And Factors Associated With Vaping Cannabidiol Among Us Adolescents, Hongying Daisy Dai, Roma Subramanian, Avina Mahroke, Ming Wang Aug 2023

Prevalence And Factors Associated With Vaping Cannabidiol Among Us Adolescents, Hongying Daisy Dai, Roma Subramanian, Avina Mahroke, Ming Wang

College of Journalism and Mass Communications: Faculty Publications

IMPORTANCE e-Cigarette use and vaping marijuana (cannabis) are popular among US adolescents. Cannabidiol (CBD) is a compound found in the cannabis plant that has recently increased in use.

OBJECTIVES To examine the prevalence of and factors associated with youths vaping CBD

DESIGN, SETTING, AND PARTICIPANTS This cross-sectional study included a nationally representative sample of students from middle and high schools (typical age, 11-18 years) in the US from the 2022 National Youth Tobacco Survey, conducted from January to May 2022.

EXPOSURE Demographic characteristics, harm perception of tobacco use, and vaping behaviors.

MAIN OUTCOMES AND MEASURES The main outcomes were weighted …


Public Mediations Of Accountability In The #Metoo Era, Amanda Brand Jul 2023

Public Mediations Of Accountability In The #Metoo Era, Amanda Brand

Department of Communication Studies: Dissertations, Theses, and Student Research

Tarana Burke initially launched the Me Too movement to cultivate solidarity among sexual assault survivors in 2006, and public appropriations of this effort have resulted in a kairotic moment of accountability in sexual assault cases. Particularly, the 2017 hashtag, #MeToo populates media platforms as the public invokes it to make sense of sexual assault cases, bearing witness to victim-survivors, assigning blame, or disavowing culpability. Challenging legacies of public denial, #MeToo marks a cultural shift in which victim-survivors are not only speaking out, they are also being heard and believed. I argue that accountability is rhetorically-constructed, negotiated, and imposed through …


Students’ Knowledge Of And Attitudes Toward Dairy Production: A Survey Methodology Report, Heather Akin, Babatope Akinyemi, Julia Mcquillan, Tami Brown-Brandl Jun 2023

Students’ Knowledge Of And Attitudes Toward Dairy Production: A Survey Methodology Report, Heather Akin, Babatope Akinyemi, Julia Mcquillan, Tami Brown-Brandl

Department of Agricultural Leadership, Education, and Communication: Faculty Publications

This report presents findings from a pilot survey conducted among undergraduate and graduate students (N = 410) at the University of Nebraska-Lincoln about students’ perspectives on technology usage, consumption, and sustainability in dairy production systems. An interdisciplinary research team developed the survey instrument and report. The main purpose of this pilot study was to create and administer survey items to support further research on experiential education and outreach opportunities related to robotics in small-scale dairy production and rural economic development. Descriptive findings indicated that most students had some familiarity with dairy production and the nutritional aspects of dairy products …


Thyroid Sat510 I-131 Therapy With Dosimetry For Advanced Thyroid Carcinoma: Recombinant Tsh Vs Thyroid Hormone Withdrawal, Dana Awad, Jarod Hamsa, Abbey Fingeret, Craig M. Johnson, Frank Rutar, Carrie Carso, Anupam Kotwal, Anery Patel, Angela Thornburg, Whitney Sears Goldner Jun 2023

Thyroid Sat510 I-131 Therapy With Dosimetry For Advanced Thyroid Carcinoma: Recombinant Tsh Vs Thyroid Hormone Withdrawal, Dana Awad, Jarod Hamsa, Abbey Fingeret, Craig M. Johnson, Frank Rutar, Carrie Carso, Anupam Kotwal, Anery Patel, Angela Thornburg, Whitney Sears Goldner

College of Journalism and Mass Communications: Faculty Publications

Background: Dosimetry can be used to calculate an optimal and safe dose of Iodine-131 (I-131) for treatment of advanced differentiated thyroid cancer (DTC). Thyroid hormone withdrawal (THW) is the preferred method of TSH elevation for I-131 therapy with dosimetry. At our institution, Recombinant TSH (RhTSH) is used in patients in whom prolonged hypothyroidism is deemed clinically unsafe or cannot tolerate THW. We aim to evaluate if RhTSH and THW are equivalent methods of preparation for I-131 therapy using dosimetry (I-131D).


Midweed: A Comparison Between Marijuana Laws, Regulations, And Social Attitudes In Cannabis-Legal Vs. Cannabis-Illegal Midwest States, Abagail Lim May 2023

Midweed: A Comparison Between Marijuana Laws, Regulations, And Social Attitudes In Cannabis-Legal Vs. Cannabis-Illegal Midwest States, Abagail Lim

College of Journalism and Mass Communications: Professional Projects

This professional project is a series of three journalistic articles. Each article focuses on laws, regulations and social attitudes surrounding marijuana in the United States. These topics are explored primarily through the lenses of two Midwest states (Illinois & Nebraska), which have highly contrasting laws and regulations regarding marijuana. The state of Illinois legalized medical marijuana in January 2014 and recreational marijuana in January 2020, while in Nebraska, both medical and recreational use still remains illegal, though possession of up to one ounce has been decriminalized.

The purpose of choosing these two states is to show how stark a contrast …


"Don't Put Restrictions On Us": The Dangers Of Conservative And Populist Appeals For Abortion Access In Post-Roe America, Kayla Schmitz May 2023

"Don't Put Restrictions On Us": The Dangers Of Conservative And Populist Appeals For Abortion Access In Post-Roe America, Kayla Schmitz

Department of Communication Studies: Dissertations, Theses, and Student Research

This thesis critically analyzes Kansans for Constitutional Freedom’s campaign ads for their campaign against the Value Them Both Amendment in Kansas in 2022. Value Them Both would have stripped the Kansas constitution of its protection of personal autonomy and therefore abortion rights. Kansans for Constitutional Freedom used populist and otherwise conservative appeals in their ads to reach audiences across the political “spectrum” to gain their votes against Value Them Both. While the campaign was widely successful, there are many things it did not do for the broader concern of reproductive healthcare access in the United States, particularly for those living …


Nebraska Women In Journalism: The Groundbreakers Before Us And Surrounding Us, Jolie Peal May 2023

Nebraska Women In Journalism: The Groundbreakers Before Us And Surrounding Us, Jolie Peal

Honors Theses

Nebraska women in journalism: The groundbreakers before us and surrounding us is a 30-minute documentary about six Nebraska women and their journeys as journalists. This project seeks to answer the question: “How do women in the media overcome gender bias?” I interviewed six women ranging in age and from a variety of journalistic fields to discover what biases they faced in the industry as well as their advice for young journalists as we enter into a field that is constantly evolving. I discovered that Nebraska women in the media do experience the bias we see throughout the nation and in …


An Exploration Of Influences On Consumers' Behaviors/Decisions In Relation To Animal Agriculture, Abigail Durheim May 2023

An Exploration Of Influences On Consumers' Behaviors/Decisions In Relation To Animal Agriculture, Abigail Durheim

Department of Agricultural Leadership, Education and Communication: Dissertations, Theses, and Student Scholarship

Animal agriculture provides many daily resources for consumers around the globe. While the average American is at least three generations removed from agriculture, they still hold power to influence the industry with the dollar and their vote. The purpose of this study was to identify influences on consumer behaviors/decisions in relation to animal agriculture. Seven hundred four complete and usable responses were collected via a researcher-developed online survey. Using branding concepts as a framework, the first study evaluated how visual stimuli influenced consumers' intention to purchase Nebraska beef products. Researchers found that visual stimuli did influence respondents to choose Nebraska …


Implementation Of Health Communication In Tb Management In Indonesia, Olih Solihin, Djuara P. Lubis, Pudji Muljono, Siti Amanah Apr 2023

Implementation Of Health Communication In Tb Management In Indonesia, Olih Solihin, Djuara P. Lubis, Pudji Muljono, Siti Amanah

Library Philosophy and Practice (e-journal)

Tuberculosis (TB) remains a public health problem in Indonesia despite various efforts to combat it. TB is the leading cause of death in Indonesia and requires more comprehensive action, including in health communication. Indonesia ranks second after India in the number of TB cases and fourth in TB deaths in Asia. Efforts to address TB in Indonesia continue, including the implementation of more comprehensive prevention and treatment programs and effective health communication campaigns. However, the implementation of health communication in TB management in Indonesia still faces challenges such as infrastructure, policy, human resources, and community participation. Evaluation of the effectiveness …


Building Before: Community Resiliency As Emergency Management, Alexandria Rinne Apr 2023

Building Before: Community Resiliency As Emergency Management, Alexandria Rinne

Honors Theses

This project seeks to address gaps in emergency preparedness education related to tornado response. Through an examination of current research about best practices for tornado emergency management response and an examination of the needs of FEMA Regions 7 and 8, the author has identified key strategies and stakeholders to increase positive outcome through building community engagement and resiliency. Three presentations were created for delivery to key community stakeholders—local government officials; non-governmental organizations, social networks, and associations; and individual private citizens. The project offers an overview of background research and provides presentation slide decks, scripts, and discussion guides, all created with …


Performance Expectancy And Use Of Social Media For Marketing By Staff Of Selected Publishing Firms In South-West, Nigeria, Osarobu E. Igudia Dr, Solomon Tosin Ogunsina Mr Apr 2023

Performance Expectancy And Use Of Social Media For Marketing By Staff Of Selected Publishing Firms In South-West, Nigeria, Osarobu E. Igudia Dr, Solomon Tosin Ogunsina Mr

Library Philosophy and Practice (e-journal)

Social media are platforms through which people of the different networks create, share and exchange information, ideas and also market products such as books in a virtual community. They are instruments for communication that do not just pass information but interact with customers. Since many benefits are derivable from the use of social media for marketing, it becomes imperative to investigate how book marketers use social media to achieve the objectives of their organisations. This study adopted a descriptive research design of correlational type. The population of the study was 212 marketing and sales staff of selected publishing firms. The …


“Evolving Homes, Not Revolving Doors”: Examining Lesbian, Gay, And Bisexual Foster Parents’ Discursive Construction And Negotiation Of Identity Layers And Identity Gaps, Lucas Hackenburg Apr 2023

“Evolving Homes, Not Revolving Doors”: Examining Lesbian, Gay, And Bisexual Foster Parents’ Discursive Construction And Negotiation Of Identity Layers And Identity Gaps, Lucas Hackenburg

Department of Communication Studies: Dissertations, Theses, and Student Research

The United States foster care system serves more than half a million children each year (U.S. Department of Health and Human Services [DHH], 2023). The purpose of this study was to examine how LGB foster parents discursively construct and navigate their identities in the fostering context. The researcher undertook in-depth interviews with 18 LGB people who were currently fostering or had previously fostered at least one child from the foster care system. The researcher analyzed the interview data using Braun and Clarke’s reflexive thematic analysis (2019).

Consistent with the Communication Theory of Identity (Hecht, 1993; 2015; Hecht & Phillips, 2022), …


Nebraska Politics And The Environment: Framing Political Communication In The State Of Nebraska In Comparison To National Level Discourse, Samuel Taylor Mar 2023

Nebraska Politics And The Environment: Framing Political Communication In The State Of Nebraska In Comparison To National Level Discourse, Samuel Taylor

Honors Theses

Environmental public policy has seen little change on the national level in recent decades due to Congressional gridlock. Politicians on both sides of the aisle have entrenched their opposing viewpoints, and their communication on the topic utilizes issue frames to help sway the public to see their side. On the Republican side, these issue frames take the form of the “scientific uncertainty” and “economic consequences” frames. This study, based on issue framing, surveys the communication of Nebraska’s Republican State Senators to determine if they utilize the same issue frames or if they diverge from their national counterparts. By analyzing recent …


Chatgpt As Metamorphosis Designer For The Future Of Artificial Intelligence (Ai): A Conceptual Investigation, Amarjit Kumar Singh (Library Assistant), Dr. Pankaj Mathur (Deputy Librarian) Mar 2023

Chatgpt As Metamorphosis Designer For The Future Of Artificial Intelligence (Ai): A Conceptual Investigation, Amarjit Kumar Singh (Library Assistant), Dr. Pankaj Mathur (Deputy Librarian)

Library Philosophy and Practice (e-journal)

Abstract

Purpose: The purpose of this research paper is to explore ChatGPT’s potential as an innovative designer tool for the future development of artificial intelligence. Specifically, this conceptual investigation aims to analyze ChatGPT’s capabilities as a tool for designing and developing near about human intelligent systems for futuristic used and developed in the field of Artificial Intelligence (AI). Also with the helps of this paper, researchers are analyzed the strengths and weaknesses of ChatGPT as a tool, and identify possible areas for improvement in its development and implementation. This investigation focused on the various features and functions of ChatGPT that …


The Call Sheet: A Six-Part Podcast Interview Series On The Film Industry In Nebraska, Tanner Dykstra Mar 2023

The Call Sheet: A Six-Part Podcast Interview Series On The Film Industry In Nebraska, Tanner Dykstra

Honors Theses

My University of Nebraska-Lincoln Honors Thesis project is a six-part podcast interview series entitled The Call Sheet. This is classified as an Applied Knowledge project and encapsulates my interests and areas of study in Journalism, Broadcasting, and Film Studies. I sought out interviews with people who currently reside or once resided in the state of Nebraska who work in association with the film industry. This industry is broad, and my interview subjects reflected this. The six episodes comprising my project are as follows: writer/director Aliza Brugger, writer/professor Michael Svoboda, director of the Mary Riepma Ross Media Arts Center Danny Lee …


Utilization Of Facebook As A Media For Political Literacy In Building Political Awareness Of The Voters In The Regional Elections In The Province Of West Nusa Tenggara, Indonesia, Fathurrijal Fathurrijal Mar 2023

Utilization Of Facebook As A Media For Political Literacy In Building Political Awareness Of The Voters In The Regional Elections In The Province Of West Nusa Tenggara, Indonesia, Fathurrijal Fathurrijal

Library Philosophy and Practice (e-journal)

Abstract: This paper discusses the use of Facebook accounts as a media for political literacy by the Nahdlatul Wathan organization on the island of Lombok, in welcoming the regional head elections in the Province of West Nusa Tenggara (NTB) Indonesia. The questions answered in this study are what is the strategy of the Nahdlatul Wathan organization in using a Facebook account as a media for political literacy. This study was conducted to describe the political literacy activities of the Nahdlatul Wathan organization in the 2018 regional head elections in West Nusa Tenggara Province. The Nahdlatul Wathan organization has an active …


Closing The Gap Between College Students: An Intergroup Dialogue Program To Reach Understanding And Reduction Of Disparities, Lilly Zhou Jan 2023

Closing The Gap Between College Students: An Intergroup Dialogue Program To Reach Understanding And Reduction Of Disparities, Lilly Zhou

Honors Theses

The goals of the intergroup dialogue program are exploration and collective action. The goal of exploration is to spread awareness by presenting the situation. Several students are not aware that disparities between students exist, so this dialogue provided awareness of the issue. With increased understanding of each other, collective action can be taken. Actions by a small number of students are still steps taken to reduce the gap between the financially supported and not financially supported students. Action can look like spreading awareness of the issue, advocating for policy changes, and more.

The structure of the intergroup dialogue program required …


Paradox As Resistance In Male Dominated Fields And The Value Of (Sur)Facing Enthymematic Narratives, Jennifer J. Mease (Also Peeksmease), Bronwyn Neal Jan 2023

Paradox As Resistance In Male Dominated Fields And The Value Of (Sur)Facing Enthymematic Narratives, Jennifer J. Mease (Also Peeksmease), Bronwyn Neal

Department of Communication Studies: Faculty Publications

Women working in masculine organizational contexts face a challenge of balancing (1) access to power by co-opting masculine discourse in ways that risk reinforcing it, with (2) challenging and resisting practices that privilege masculinity. In this manuscript, we address one communication strategy for navigating that challenge: The denial/acknowledgment paradox in which women explicitly deny that gender affected their experience, but also describe the many ways it affected their experience. To do so, we examined transcripts of interviews with 11 women candidates who ran in the 2017 Virginia House of Delegates election in the United States and demonstrated this paradoxical communication …


Video Tools In Pediatric Goals Of Care Communication: A Systematic Review, Caitlin M. Nalda, Megan L. Mcsherry, Cynthia M. Schmidt, Marie L. Neumann, Renee D. Boss, Meaghann S. Weaver Jan 2023

Video Tools In Pediatric Goals Of Care Communication: A Systematic Review, Caitlin M. Nalda, Megan L. Mcsherry, Cynthia M. Schmidt, Marie L. Neumann, Renee D. Boss, Meaghann S. Weaver

Department of Communication Studies: Faculty Publications

Medical advancesmean a growing array of interventions, therapies, and technologies are available to support care for children with chronic and serious conditions. Some of these approaches are supported by robust data drawn from populations that perfectly reflect an individual patient's physiologic, psychologic, and social situation. But much more often, clinicians and families face decisions in the context of some—or much—uncertainty about whether the intervention will do a child more harm than good. This is particularly true for seriously ill children with a limited lifespan— whether the child is a neonate born with a life-threatening brain anomaly or an adolescent with …


Difficult Conversations Concerning Identity And Difference: Diverse Approaches And Perspectives, Jordan Soliz, Srividya Ramasubramanian Jan 2023

Difficult Conversations Concerning Identity And Difference: Diverse Approaches And Perspectives, Jordan Soliz, Srividya Ramasubramanian

Department of Communication Studies: Faculty Publications

This essay is an introduction to the special issue on “Difficult Conversations Concerning Identity and Difference.” The essay begins with our argument that inquiries into difficult conversations are important as these interactions are key to addressing social inequities, creating and/or maintaining community and relational solidarity, amplifying voices of marginalized populations and/or diverse experiences, and enacting social change. Following this, we introduce the articles in the special issue highlighting the theoretical frameworks and methodological pluralism across the various relational and social contexts represented in the research (e.g., health care, higher education, community organizations, personal relationships). To complement the implications discussed by …


Exploring The Impact Of Pediatric Short Bowel Syndrome On Parent Well‐Being Using A Disease‐Specific Pilot Survey, Marie L. Neumann, Jessica Y. Allen, Amy Ladner, Swapna Kakani, Meaghann S. Weaver, David F. Mercer Jan 2023

Exploring The Impact Of Pediatric Short Bowel Syndrome On Parent Well‐Being Using A Disease‐Specific Pilot Survey, Marie L. Neumann, Jessica Y. Allen, Amy Ladner, Swapna Kakani, Meaghann S. Weaver, David F. Mercer

Department of Communication Studies: Faculty Publications

Background: Children with short bowel syndrome (SBS) have complex care needs, most of which are met in the home by family caregivers who may experience a range of stressors unique to this experience. Prior research suggests that parents of children with SBS have poorer health‐related quality of life than peers parenting children without health needs, but the mechanisms shaping parent outcomes are understudied.

Methods: A pilot survey was developed using a community‐driven research design to measure the impact of disease‐specific items on parent‐perceived well‐being. The cross‐sectional survey, which included both closed‐ended and open‐ended items, was distributed to a …


Advocating For A Patient‐ And Family Centered Care Approach To Management Of Short Bowel Syndrome, Vanessa J. Kumpf, Marie L. Neumann, Swapna R. Kakani Jan 2023

Advocating For A Patient‐ And Family Centered Care Approach To Management Of Short Bowel Syndrome, Vanessa J. Kumpf, Marie L. Neumann, Swapna R. Kakani

Department of Communication Studies: Faculty Publications

Patient‐ and family centered care (PFCC) is a model of providing healthcare that incorporates the preferences, needs, and values of the patient and their family and is built on a solid partnership between the healthcare team and patient/family. This partnership is critical in short bowel syndrome (SBS) management since the condition is rare, chronic, involves a heterogenous population, and calls for a personalized approach to care. Institutions can facilitate the practice of PFCC by supporting a teamwork approach to care, which, in the case of SBS, ideally involves a comprehensive intestinal rehabilitation program consisting of qualified healthcare practitioners who are …


Exploring The Impact Of Pediatric Short Bowel Syndrome On Parent Well‐Being Using A Disease‐Specific Pilot Survey, Marie L. Neumann, Jessica Y. Allen, Amy Ladner, Swapna Kakani, Meaghann S. Weaver, David F. Mercer Jan 2023

Exploring The Impact Of Pediatric Short Bowel Syndrome On Parent Well‐Being Using A Disease‐Specific Pilot Survey, Marie L. Neumann, Jessica Y. Allen, Amy Ladner, Swapna Kakani, Meaghann S. Weaver, David F. Mercer

Department of Communication Studies: Faculty Publications

Background: Children with short bowel syndrome (SBS) have complex care needs, most of which are met in the home by family caregivers who may experience a range of stressors unique to this experience. Prior research suggests that parents of children with SBS have poorer health‐related quality of life than peers parenting children without health needs, but the mechanisms shaping parent outcomes are understudied.

Methods: A pilot survey was developed using a community‐driven research design to measure the impact of disease‐specific items on parent‐perceived well‐being. The cross‐sectional survey, which included both closed‐ended and open‐ended items, was distributed to a …